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QueenOfPain

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by QueenOfPain

  1. QueenOfPain
    No, they don't use separate toppings, but they do pull from the middle of the stack. I've eaten at Subway twice so far this week and have not had any problems. Their staff has been extremely careful when preparing my sandwiches. I applaud Subway for testing this out. And best of all, the bread and brownies taste delicious! Typing this post is making me crave...
  2. QueenOfPain
    Well, I still have my joint and tendon pain even after being gluten-free for a little over two years now. I would've thought that maybe my pain would gradually subside, but no. I still hurt just as frequently as I did before I went gluten-free. (Which is usually anywhere from 12-19 days every single month. And I can have pain in up to 4 areas at one time...
  3. QueenOfPain
    On my iPhone I use "is that GLUTEN FREE? eating out" and "is that GLUTEN FREE". I also have "GFNews" which lists a lot of current gluten-free related news.
  4. QueenOfPain
    I just so happen to live in the Tyler area! Hooray! I emailed the company the other day regarding their new gluten-free menu and my cc concerns. They just replied with a very generic email that pointed me back to the nutritional info section on their website. They said if I had questions about anything not listed on the pdf I could ask somebody at the actual...
  5. QueenOfPain
    Hello Mohamed, I am by no means an expert on any of this. But, I do know that Celiac can be tricky to diagnose. My blood results were very similar to yours. The ONLY part of the Celiac tests that I tested positive for was the Anti Gliadin IGA--just like you. Everything else came back negative. I even had a biopsy, and my GI doctor stated that she was very...
  6. QueenOfPain
    Yep, I agree! (And I'm extremely picky.) Those are the BEST brownies--I can't tell that they're gluten-free. My husband and kids love them, too. And their chocolate chip cookie mix is really good--not too crumbly and not too cakey. Hooray for Betty Crocker!!! Now, if I could only find a GOOD gluten-free yellow cake mix.
  7. QueenOfPain
    I ate at Pei Wei for the first time last weekend and had no problems. (But, I can eat gluten-free soy sauce.) However, I don't think the dish I ate had soy in it, but I'm not sure. I tried the Pei Wei Spicy Chicken and white rice.
  8. QueenOfPain
    I've never heard of Ankylosing Spondylitis before. Maybe it could be that. A lot of my symptoms do sound the same. When I have a flare the affected joint(s) get more painful and stiff if I'm sedentary. But if I get up and move around for awhile, they usually losen up a bit. And they usually only get extremely painful and stiff late in the evening or first...
  9. QueenOfPain
    It just really depends. My headaches and abdominal pain went away pretty quickly. My gastro symptoms didn't improve until my 3rd month of being gluten-free. (But I think that's outside the norm.) Actually my gastro symptoms got much worse the first couple of months of being gluten-free. Hope you have a swift and full recovery!
  10. QueenOfPain
    Thanks for all of the tips everyone--keep 'em coming! Lisa16 I know what you mean. I get this joint problem in the weirdest places sometimes, too. And on occasion it occurs in my tendons behind my knees and in my achilles tendon. I don't think it's fibromyalgia, because the affected area actually gets a little red and slightly swollen and it feels warm...
  11. QueenOfPain
    My rheumatologist did a blood test for Lupus and it came back negative. So I don't think it's that. I'll probably give it another year, and if it's still not better I may go back to the doctor. But I really don't want to go that route, I HATE going to the doctor.
  12. QueenOfPain
    I'm getting close to my 1 year anniversary this September of being gluten-free. All of my problems are much better now. I almost feel like a normal person. "Almost" because I still have this stupid migratory joint pain. I've had it ever since my late teens. It used to just be in my lower body and only occur in one joint at a time before moving elsewhere....
  13. QueenOfPain
    lol... yeah, I guess my name isn't too fitting anymore, though. Well, I do still suffer from the joint pain, but everything else is sooo much better. Glad to hear you're on the road to recovery, too, koolkat222!
  14. QueenOfPain
    OR you could be going through gluten withdrawal like I did. I felt horrible in the beginning. Frequent bathroom visits--it was TERRIBLE. My gastro symptoms were way worse on the gluten-free diet than they were when I used to eat gluten. And I was always very careful about cross contamination. Finally by around the 3rd month my gastro symptoms were all cleared...
  15. QueenOfPain
    Ah ha! I've dealt with tonsil stones since my late teens. After I found out about Celiac Disease I had a feeling that my crazy tonsil stones were probably linked to gluten. All of my other weird quirky problems were! Glad to hear I'm not alone.
  16. QueenOfPain
    I definitely experienced gluten-withdrawal during the first couple months of my new diet. However, I did not experience any vomiting. My side cramps and headaches actually improved, BUT my horrible diarrhea (sorry TMI) got WAAAY worse. Immodium wouldn't even help stop it. =( I agree with ang1e0251's advice. Try to cook simple foods -- fresh meat, fresh...
  17. QueenOfPain
    Hi there, I'm certainly not an expert on any of this. I hadn't even heard of Celiac until about a year ago. However, I too tested negative for my TTG levels, but tested postive for an increased level of Antigliadin IGA antibodies. My doctor's office also said that this could be a false positive--that my body could be reacting to something else. (I have no...
  18. QueenOfPain
    They performed an endoscopy and a colonoscopy at the same time with me--so they had me knocked out for the whole procedure. I want to say they had me hooked up to an IV and maybe they delivered the anesthesia through the same line... I can't remember--it was a year ago. It wasn't too bad. And after they were finished I was just kind of groggy and tired the...
  19. QueenOfPain
    As for the symptoms--I didn't experience a lot of constipation (except for in the beginning when I was a kid.) As for the diarrhea, it would come and go. I might have a good week and then have a bad week or a bad month. I wouldn't usually have diarrhea every single day, but when I did it was bad. I might have to run to the bathroom four or five times. =...
  20. QueenOfPain
    Yes, I agree that doctors throw out an IBS diagnosis everytime they're stumped. It sounds like gluten could be the culprit for you. Definitely keep eating gluten if you're going to have the endoscopy. It is possible to have a false negative on the blood test. It is also possible to have a false negative biopsy. (Which is what happened in my case.) I would...
  21. QueenOfPain
    Here's a few tips that I've learned to help get you started. As far as spices go--I try to stick with McCormick brand, because they use pure spices and if there is a gluten ingredient they are supposed to include that on their label. (I haven't run into one yet.) Kraft is also a good brand to buy, because they will clearly list gluten ingredients as well...
  22. QueenOfPain
    You poor thing! Bags and bags of Dove chocolate is what helped me cope with this gluten-free diet. I should've bought stock in the Mars company!
  23. QueenOfPain
    I think it's probably legit. I had a positive blood test, but a negative biopsy. 3 months after that I was still having problems and still had no answers. My GI doc at the time suggested doing another endoscopy, and then said that if it came back negative AGAIN they would do the small bowel capsule. However, I decided to forgo the additional tests and just...
  24. QueenOfPain
    Hi there! I've been eating at the same 4 places over and over again for the past 8-1/2 months. Which I'm very thankful to have even that! But, I was wondering if any of you were from this area and knew of any other options for dining. Just thought I would try here first before I start contacting random restaurants around town. (I'm not a big fan of getting...
  25. QueenOfPain
    I was told that I had microscopic colitis last May when I had a colonoscopy. Actually, they said that it was the beginnings of it, and that it was probably caused from all of the ibuprofen and excedrin that I constantly took for my headaches/migraines and joint pains. They told me to stop taking the NSAIDs and that should prevent me from developing full blown...
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