gaingus
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About Me
First major symptoms started early 2007, irritability, skin rash, constant gastroenteritis, depression, bloody stools, nausea, lethargic and un-controllable weight gain. Diagnosed Celiac from positive reaction to gluten free diet November 2008. Un-diagnosed after 8 months on Gluten free diet and no signs of disease with blood work or biopsies other than positive for both genes. Diagnosed Gluten sensitive after two month challenge due to ulcer (later found out from h-pylori), erosion to stomach and duodenum May 2009. Unofficial diagnosis of Celiac Disease August 13, 2009, official diagnosis of sever gluten intollerance at same time.
The reason for the unofficial and the official is because I am in the Navy and I do not want to be discharged with only 6 years left until retirement.
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ARCHIVED Restaurants Near Disneyland gluten-free?
gaingus replied to areyoufreakingceliac?'s topic in Gluten-Free Restaurants
The restaraunts at the Disney City Walk offer gluten free options and I found them very accomidating. Since they are on Disney property they have to comply with Disney's food regulations. Just like any other restaraunt, ensure you tell your waiter/waitress. A lot of the places I have noticed work like PF Changs used to by having a seperate menu from the... -
I just stared having kidney stone issues for about 5 months now to the point I am seeing a nephrologist and he has me on 10 mEq (1080 mg) of potassium citrate three times a day to prevent future recurrances of stones. I keep asking him if it is related to my celiac but he keeps saying no. I have read many articles and studies linking the two together because...
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I have never had a problem with PF Changs since going gluten free. I went to the one in Fresno because it's the closest to where I live. When we ordered our dinner, we ordered the lettuce wraps because for the longest time (even on this forum) they were gluten free. I found out from my waiter that when gluten free orders are put into the computer, they...
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I appreciate it, I also believe in positive healing energies. I will have to ask my doc about that when I see him again. Unfortunately, it is beyond a herniated disc. Got the results of my MRI and I have degenertating disc disease, degenerated joint disease, the hernia, spinal stenosis, and a disclocated vertibrae.
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So yea, it's not what they originally thought. Well, I still have the wedged vertebrae, but it is more along the lines of a herniated and torn disc that is causing all the pain. So it looks like surgery... Just waiting on when.
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ARCHIVED Ohno I Just Caved.
gaingus replied to revenant's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't know what symptoms you gut, but here is what I do when I get glutened: Drink a lot of water to help flush your system and prevent dehydration. Immodium for diareah. Tylenol for pains headache and fever. Benadryll for skin reaction (I get a really nasty itching rash). Gas-x for bloating (make sure you have the green capsule looking ones... -
I have to agree. We have a genetic reason as to why we are this way. If we get glutened, sure we can take things to help with the symptoms just like if we had a virus. I think confusing our immune systom into processing something that is, how should I put this.... Poison to our bodies could end up causing more damage. I know a lot of us (me included...
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ARCHIVED How Long Until The Gluten Craving Goes Away?
gaingus replied to luispgsf's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've been on the diet for around two or three years now. I agree completely that it dose easier over time however, I haven't noticed it totally go away. I still have the ocassional craving, and it is usually for foods that I have not found a replacement for yet. We are getting lucky that there are many different companies out there that make gluten... -
I'm sure someone may have posted something like this before, but I figured I would throw this out there. Has anyone had any back problems that came up after being diagnosed? Currently, my doctor is looking into one degenerating disc and two wedged vertebrae. DW is thinking it might be related to mal-absorption from the damage that we all went through.
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I haven't been to one for a while, according to one of the other posts I've seen, you can get the sauce in individual packets to put on your sandwich as well.
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ARCHIVED Glutenated - Is Imodium The Answer?
gaingus replied to The Glutenator's topic in Coping with Celiac Disease
I usually go with the Imodium multi symptom stuff that also helps with the other aspects without any problems. I also push the fluids like there was no tommorow. -
ARCHIVED Eating Out
gaingus replied to masterjen's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I prefer P.F. Changs, they make life a lot easier and the are the safest when it comes to CC. Going out to eat whas the hardest thing for me to start doing after diagnosis. It was scary and I wasn't too sure what to say. It is one of those things that does get easier with time. If you are unsure how to mention it to the restaraunt staff, there are cards... -
ARCHIVED Chicken And Gluten Intolerance
gaingus replied to Peace41's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I haven't had too many problems finding a safe Turkey. All my problems have been around chicken.... -
I've used gas-x softgels without any problems. Just be sure you actually grab the softgels. Their other products have gluten in them. Also I will say on the other hand, I have friends that had reactions to the softgels. Do not use Beano, it has wheat in it.... (learned the hard way).
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ARCHIVED Chicken And Gluten Intolerance
gaingus replied to Peace41's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
One thing I have learned is to read the packaging on anything/everything. There are some poultry products out there that brine the birds before packaging and they like to use various gluten products as preservatives. It also seems to be more prevalent in the whole chickens. Got to really love hidden gluten.