Jump to content

sylviaann

Advanced Members
 View Profile  See their activity

  • Posts

    118

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by sylviaann

  1. sylviaann
    My nutrient levels were checked last November by Spectracell Labs (intracellular levels were checked). My main deficiencies were zinc and antioxidants. My B12 levels were normal but I chose to take B12 on my own. I have been taking several gluten-free supplements (recommended by the doctor and lab) since that time. I have been tracking my diet daily and...
  2. sylviaann
    Amy's has cross contamination issues for sure. I will check out the book! Thank you Dee
  3. sylviaann
    You are a Lifesaver Krista!! Thank you for all the great info and I appreciate you sharing the safe soda brands (when you have the opportunity I have become "anal" about cross contamination..I sat in a restaurant last Sunday and would not touch my water glass because I was thinking like you. Next time I will ask for a bottle so I can feel comfortable...
  4. sylviaann
    I will steer clear of Rice Chex and Bush's baked beans for the time being. Are you able to safely eat any other gluten-free cereals (hot or cold cereals) made by gluten-free companies such as "Enjoy For Life" or Kinnick brand cereals? Sylviaann
  5. sylviaann
    Thank you Patti I really appreciate your knowledge and experience with my specific problem. I know you are super sensitive, have neuro reactions llike me and was hoping you would reply to my message. I have not reacted to Smirnoff but am hesitant to drink it. I am fearful of eating anything processed right now. I would love to have an occasional glass...
  6. sylviaann

    ARCHIVED Nuts!

    sylviaann replied to digmom1014's topic in Coping with Celiac Disease

    I love creamy "Sunbutter" which is made from sunflower seeds. It is expensive (close to $6.00 per jar) but nutritious. Keep in mind that Sunbutter is manufactured in a facilty that uses soy to maufacture other products. Sylviaann Florida
  7. sylviaann
    I have read where many posters on this forum (some Super Sensitive Celiacs) have encountered problems drinking distilled liquor. Some have even commented on reactions from certain wines. These reacions could possibly be from other food sensitivities but I was curious to know if anyone who is Gluten Sensitive had a reaction from drinking distilled liquors...
  8. sylviaann
    Thank you so much I am supersensitive and Gluten is my primary problem. I am concerned that several posters in this thread are not familiar with super sensitive gluten reactions vs. other food intolerances. MY myoclonus is caused by Celiac Disease, not by other food intolerances. I agree with you and am aware about the FDA's current stand on allowing manufacturers...
  9. sylviaann
    Thank you..I agree with you that the root of my problem is cutting out the hidden sources of gluten which are causing me frustration and ongoing dehabilitating symptoms. Are these tests expensive?
  10. sylviaann
    Thank you for your knowledgable insight. Nitrates are a definite possibility and I have shyed away from bacon, ham and lunch meats during the last month. I am currently taking methalcobalamin (sublingual form of B12) so hopefully vitamin B12 is not an issue. I probably need to order a nutrient panel since it has been about seven months since my last check...
  11. sylviaann
    I definitely believe I am having reactions to cross contamination caused by gluten. My doubting husband is finally realizing it as well! What are EZ Gluten tests? How long have they been on the market and how accurate or proven are they? Thanks a million SylviaG. Florida
  12. sylviaann
    Patti, I am also curious ...When you stopped consuming soy, did that include edamame (frozen or fresh soybeans)? I think I may have an intolerance to soy and have been eliminating it from my diet. I am questioning if fresh or frozen soybeans are safe vs. eating processed soy products. Thanks a million, SylviaG
  13. sylviaann
    I had low ferritin like yours (6) in 2007 but a normal hemoglobin. I suffered from a number of symptoms, including periodic tachycardia and myoclonus at sleep onset that would not diminish. Low ferritin is frequently found in Celiacs prior to diagnosis-it is a RED Flag (and it is a concern if your ferritin cannot rise and stay at a normal level!) Your body...
  14. sylviaann
    Thank you..I have been keeping a food diary/Journal for over two months. This is how I arrived at my corn product intolerance and possible soy intolerance. I do not want to keep jerking at night as it has ruined my life for the past 2.5 years. Gluten ingestion is the primary culprit for inducing my myoclonus. I am extremely sensitive to products that are...
  15. sylviaann
    Thank you for your input. I am certain that Amy's "gluten-free" soups and the frozen dinner I ate last month caused my myoclonus to worsen because I read the back of the cans and the box (the next day). Both products had the "disclaimer"....manufactured in a faciilty that produces products made with wheat, eggs, soy, etc. My jerking is definitely caused...
  16. sylviaann
    I have been gluten-free since last October since my Celiac Specialist in Atlanta and I were highly suspicious of my symptoms (GI and neurological). During my gluten-free "learning curve" (recently) , I discovered that my myoclonus (Limb jerking & twitching at sleep onset) is induced by many food products that are cross contaminated (i.e. Lay's potato...
  17. sylviaann
    I took the blood tests twice (nine years apart) and was scoped once (1999) and I came back negative as well. My symptoms (myoclonus, weight loss, iron deficiency anemia and high autoimmune thyroid #'s) and and family history of IBD made me a high risk candidate. My doctor advised me that some Celiacs will have an IGA deficiency, which repeatedly causes their...
  18. sylviaann
    Thank you so much!. I will check and see if Whole Foods carries it.
  19. sylviaann
    I am Super Sensitive to cross contamination and am discovering a new product everyday that I react to (I will have myoclonus for days if I get glutened and not sleep). I was poisoned by Lays potato chips last week (Wavy Lays). I have been using Neutrogena body emulsion (fragrance free) but started thinking that the risk for cross-contamination is high...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.