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sylviaann

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Everything posted by sylviaann

  1. sylviaann
    These are classic symptoms of the initial onset of Lyme Disease. I had several similar symptoms early in the course of my illness. I thought I was going to die at the time. I went gluten free two years later but now that I have my real diagnosis, I can look back and clearly see how incredibly ill I was from this bacteria! Lyme patients cannot tolerate gluten...
  2. sylviaann
    You are welcome BigDog, I can definitely relate to your experience as I was tortured for three years with severe myoclonus anytime I tried to sleep, day or night. I had body aches, blurred vision, hyperactivity, weight loss, worsening GI problems, heart palpitations, insomnia and the list goes on! I have lost weight due to being on the low salicylate diet...
  3. sylviaann
    I have been in Savannah since last Sept and will be returning to Florida in a few days....I became extremely ill and almost ended up in the hospital after stopping my GI meds (which contained salicylates). I was on steriods for 2.5 months and recently weaned off of them. I saw an allergist in Savannah who treated my sister, nephew and mother for various allergy...
  4. sylviaann
    I am so sorry you are going through this. It is so frustrating and emotionally painful when family members and your employer have no understanding or empathy for this condition/illness. I wonder if the Gluten Intolerance Group of North America has any advocate programs? If you are really concerned about your job, you could consult with a good employment attorney...
  5. sylviaann
    Most mainstream tuna companies process tuna products with soy. You could be intolerant to soy. Tuna is also high in glutamic acid and some people react to this. Sylvia Ann
  6. sylviaann
    Hi Korwyn, I will definitely chek out the gaps diet but now I have discovered yet Another possible trigger for my myoclonus...foods and cosmetics that contain salicyalates. I have been taking two medications for my chronic GI problem for 12 years and they both contain salicylates. I had been suspicious that I was suffering an adverse reaction (or hypersensitivity...
  7. sylviaann
    So you are able to use pure extra virgin coconut oil on your skin with no reaction? My track record has not been good with skin absorption reactions so I don't think I am brave enough to risk it. After three years of myoclonic jerks, twitching and sleep deprivation, I am "over" being a risk taker!! Sylvia Ann
  8. sylviaann
    I am always hearing about Dr. Bronner's products but I have yet to try them. Are they all gluten-free and salicylate free? BTW, I am seriously wondering if I have a problem with coconut. I reacted severely to a gluten-free lip Balm called Sanre "Choclate Kiss" (my lips got extremely chapped and irritated). It contains coconut oil and cocoa. I recenty...
  9. sylviaann
    Unfortunately, I cannot use Giovanni products. I had a severe skin reaction (eyelids) after using their shampoo and conditioner last year. It took me a few weeks to realize it was the Hydrolgzed (spelling error) Soy protein that made my eye lids red, irritated and dry. My eyes also burned and were extremely irritated from these products. I learned that I...
  10. sylviaann
    I have three jars of the extra virgin coconut oil but I recentlly read that coconut is high in salicylates. Wouldn't coconut oil be off limits? Sylvia Ann
  11. sylviaann
    Thank you Patti I will be looking at this website today! Do you purchase lipsticks and foundation from this company? Do you happen to know if Rachel 24 is still active on the forum. I was hoping to connect with her since I read she has the same problem with Salicylates. She would be a great resource for me on this topic. Thanks a million, Sylvia Ann
  12. sylviaann
    I have been Gluten Free since last April and like many of us, have developed numerous additional sensitivities including MSG, Aspartame (artificial sweeteners), Soy, Dairy, and corn. My most recent sensitivity discovery is Salicylates so I feel as though I am "starting over"again (for the fourth time) with learning what products are safe for me to use. ...
  13. sylviaann
    Hi Lisa, You are very welcome ....I have been suffering from myoclonus for almost three years and I keep learning something new every day (additional intolerances). I reacted to eating flounder last night that I cooked and was up for most of the night. I wonder if "Leaky Gut" is causing all of these reactions?? I have finally decided to pursue an extensive...
  14. sylviaann
    Ditto Peter!! I know many of us can relate to your feelings and I agree! We will have to start a "Preparing for the dreaded holidays with uneducated relatives" or "The most ignorant comments made by family members during the holidays regarding gluten"! Sylvia Ann
  15. sylviaann
  16. sylviaann
    I would check and see if the deli meat contains MSG or an MSg derivative. Boar's Head delia meats are gluten free but they contain MSG. I just discovered last week that I was reacting to Boar's Head hot dogs and deli meats. Cross C. is also a possibility. Hope this helps you! Sylvia Ann
  17. sylviaann
    I have been taking probiotics for over a year, including VSL #3 (contains dairy). I stopped all dairy so I had to switch back to culturelle and remove the powder from the capsule (capsule contains gelatin-MSG) and mix with water. I tried Natural Calm two years ago but it is too harsh on my stomach. Thank you for sharing Sylvia Ann
  18. sylviaann
    Thank you Patti I know you and I are both super sensitive! I actually called Kirkland's yesterday and ordered several vitamins for the first time (after I read one of your previous posts about them). Their magnesium contains citric acid (I think) and I need to stay away from this. I am excited about trying their products but the person I spoke to was not...
  19. sylviaann
    "Ditto" I never used artificial sweetners in the past except for Trident gum. I stopped chewing all gum several months ago so I was shocked when my body was jerking and twitching all night after using a white tray. Several days later, I was reading Dr. Robert Blaylock's interview (on the web) about Excitotoxins (MSG & Aspartame) causing neurological...
  20. sylviaann
    I have been seriously thinking about that. Do you know any companies that make a "safe liquid" product? I thought that Solgar?? might have a liquid form but cannot recall for certain. Sylvia Ann
  21. sylviaann
    I agree with you I finally discovered last week through my food diary that I was reacting to Boar's Head deli meats and hot dogs. Every time I ate one of these "gluten-free, CF" products, my neurological symptoms (myoclonus) worsened...really worsened! I discovered that they use MSG in their products. I also react to whole foods containing high levels of...
  22. sylviaann
    Hi there! I hope you are feeling better. I checked the Hormel website and one of the ingredients listed on the Oven Roasted turkey deli product is Carrageenan (from seaweed). Carrageenan is a NATURALLY occuring MSG product and many people (especially gluten sensitive and celiacs) can be sensitive to it (including me). Maybe you should try to steer clear...
  23. sylviaann
    I have been researching for a magnesium supplement all morning and am still uncertain as to what is really safe. I have a chronic GI condition so it is imperative that I choose a product that wuill be extremely gentle on my stomach. I have read that chelated magnesium is a safer form and I know that I need to stay away from citric acid. I am intolerant...
  24. sylviaann
    I was glutened from eating their "All Natural chicken product" a month ago. I think is has "hidden MSG" because it tastes too processed. The sugar could have also caused it. Sylvia Ann
  25. sylviaann
    You may be actually reacting to MSG (found in all soy products) and other foods (whole foods) that contain naturally occuring glutamates. I recently discovered this through researching for info and reviewing my food/medication/cosmetics diary. MSG and aspartate (artifiicial sweeteners) are both strong excitotoxins to the brain and can cause GI and neuro...
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