Jump to content

gfb1

Advanced Members
 View Profile  See their activity

  • Posts

    156

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by gfb1

  1. gfb1
    part of the problem that body weight faces as a 'classic' symptom of celiac disease, is that we live in industrialized countries and overeat everything. the original identification of celiac disease occurred among low-weight children consuming marginal diets (and, obviously, not growing). so, yes. body weight is not necessarily a strict diagnostic criteria...
  2. gfb1
    your post made me smile...being 'barely celiac' is indeed like being a 'little bit' pregnant...
  3. gfb1
    from my mouth to gods ears... Open Original Shared Link check it out.
  4. gfb1
    another of the soon-to-be-'urban myths' .... imho. many restaurants now have gluten-free menus; just ask when you go out (outback springs to mind). and even mcdonalds is pretty good about limiting crosscontamination (e.g., doublequarterpounderwithcheeseWITHOUTthebun) and their fries may be the ultimate in badforyoubutgoodforthesoul-foods (with lots of...
  5. gfb1
    there are no data to confirm what i am about to suggest. however. some anecdotal data exists. my concern is that the 'on-again'/'off-again' diet you propose is very dangerous and could make each subsequent exposure to gluten more severe. since a large part of celiac disease is the bodies' immune response to gluten/gliadin contacting the intestinal...
  6. gfb1
    if you've been gluten-free for a year, and your 'blood panel' is looking for celiac markers... then don't be surprised if the tests are negative. after one year; the celiac panel of tests would definitely be negative EVEN IF YOU ARE A CELIAC. as for depression; that's one of the worst (and insidious) problems a person can have. get to your primary care...
  7. gfb1
    another good question. this has to do with the chemistry behind the particular assays. if you were to do a standard curve of all possible concentrations of known TTG (or, anything else for that matter) from zero (0) to 1 million (10^6), the graph formed between the measurement and the actual concentration would NOT be linear. in general, clinical assays...
  8. gfb1
    this is an interesting question at several levels. a larger percentage of celiacs are IGA-low/deficient compared to the population at large. IGA was originally discovered in mucosal tissues... and may, in an 'aseops fable'-kind-of-way, be responsible for an increase in eye/ear/throat issues. there is little if no consistent evidence for this; but, is certainly...
  9. gfb1
    only adding to rwg's response... in general, B12 deficiencies are not common among RECOVERING celiacs on a gluten free (gluten-free) diet. however, undiagnosed/gluten-consuming celiacs commonly have B12 deficiencies due to malabsorption. so... depending on where you are in the spectrum, you may be B12 deficient, or not. it is more likely, among recovering...
  10. gfb1
    it certainly appears that the population at-large (esp those in the north -- with less sun) have greater insufficiencies (if not deficiencies) of VitD than previously thought. although, i don't know of any evidence that celiacs are unique in this regard. as far as osteoporosis; the prevalence of celiac disease among osteoporotic patients is increased...
  11. gfb1
    actually, the same link as in my original post... Open Original Shared Link 10% of B12 rda... though, i would never really suggest that anyone celiac should eat wonderbread... or any bread for that matter... i was just being obnoxiously glib as a substitute for humor...
  12. gfb1
    another symptom is the inability to feel the little bumps on the letters 'F' and 'J' on your leba;ird/// (btw -- don't wait on the artificial tears... just eyedrops and they help significantly. also water is notorious for being unable to make dry-mouth feel better... try a little salt or baking soda in water and rinse periodically. my wife found...
  13. gfb1
    sjogren's disease can be found in celiac patients; there are reports of an increased frequency of sjogrens among celiacs -- but, i can't remember the exact number: here is some info: Open Original Shared Link mostly, but not exclusively, occurs in women and often mistaken for fibromyalgia... my wife was diagnosed with this 2 yrs after the celiac diagnosis...
  14. gfb1
    interesting question. during the 'early days', when my wife was first diagnosed with celiac disease (going on 10 yrs) -- we blood tested her every 3-4 months for the anti-gliadin ab's (to find if gluten was sneaking into her diet) and, with less frequency, the ttg/em ab's (to be sure there was no continuing damage to the bowel). we also had regular...
  15. gfb1
    igg and iga what?? igg and iga are just terms for different types of antibodies. as a rule of thumb, igg is the type of antibody that the body produces in the blood in response to an antigen. iga was originally discovered in the mucosa -- but, is also found (albeit at smaller concentrations) in the blood. so... these antibodies are made in response...
  16. gfb1
    depends on your insurance. also ASK if the doctor has prior experience with celiacs. this will save a world of hurt -- and they ARE out there these days. as someone else commented; if you are gluten free -- you will subvert blood tests and, possibly, biopsy -- depending on the length of time you are gluten free. sorry for all the family trouble...
  17. gfb1
    to quote House... yes, again: "tests lie; symptoms don't" remember that in order for tissue transglutaminase to be positive; you must have sufficient intestinal damage to increase the level of TTG in the bloodstream and THEN have an immune response (hence, the measurement of iga/igg instead of directly measuring TTG). same with endomysial test. heck;...
  18. gfb1
    just after i posted, i caught up with an interesting opinion piece (from a company that does personal gene sequencing) entitled: Open Original Shared Link.
  19. gfb1
    um... 'high likelihood'?? without any information about the childs' other parent (even carrying the MHC haplotype) is insufficient information to determine anything. celiac is NOT a simply inherited trait -- regardless of what the 'gene testing' companies would like you to believe. i have no idea where the other poster received the 60:40 information...
  20. gfb1
    total iga seems to be within the normal range -- if a bit on the low-normal side (numerically). this may or may not have any clinical relevance; so, you need to check out the laboratory-specific ranges for your sex/age. this should be included in the report. i assume that other things were tested as well..... ????
  21. gfb1
    See Open Original Shared Link
  22. gfb1
    please stop this. you are wasting your time, money and effort. if you have heavy metal poisoning -- and it IS possible. you can blood test for the appropriate metals. my wife had manganese poisoning after consuming nutritional supplements recommended by a 'nutritionist'. the supplements are unregulated, and had 100-times (yes, one hundred) the RDA of manganese...
  23. gfb1
    i hate to ask a stupid question; but, why would you get a 'gene test' BEFORE any of the 'celiac panel'?? that makes absolutely no sense. [and i really wish people would stop refering to these markers as 'celiac genes', but, that's another story] also, not to be rude.. but, 8-10 slices of bread per day?? depending on the kind of bread that you buy,...
  24. gfb1
    thanks for the reply! i am also 'not sure'... cheers.
  25. gfb1
    periactin is an antihistamine. use to stimulate appetitie is a common off-label use. while it's safety/effectiveness have not been rigorously tested for children under 2... there is nothing magical that happens between 23 and 25 months of age.... so your doc probably thinks that 20 months is close enough. so... last question; what was he eating when...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.