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gfb1

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by gfb1

  1. gfb1
    you are certainly IgA low, if not clinically deficient. with a value on the 'border' of low i would make sure and follow the suggestion noted below on the laboratory analysis. ang1e had good advice. at the risk of banging yet another drum; take this to your doctor... Open Original Shared Link note the 2nd rectangle in the right-most column...
  2. gfb1
    yes. after the serology and endoscopy you will have the answers you need. there is NO genetic test to diagnose for celiac disease (as noone knows what gene or genes are causing the disease). usually the celiac serology panel listed by mommagoose are done together ... but, the diagnosis tree remains the same.
  3. gfb1
    i'll take a shot.... i pick door#1; ask your doctor and see what he suggests. then; be prepared to ask which tests... usually blood tests are first, a good decision tree can be found here: Open Original Shared Link print it and take it with you. many docs like to measure total IgA at the same time as the blood tests -- since low IgA can confound...
  4. gfb1
    wow. i don't know where to start. sounds like you had a really tough time. i also understand the desire for 'open source' medicine .... but, there is a reason that it takes years to be a doctor -- and its just not the classroom answers. surfing the net is no substitute for training and experience. a few notes in no particular order... just stream...
  5. gfb1
    were the blood tests done by a standard lab? or were they something like the 'biophysical 250'??
  6. gfb1
    absolutely. approx 1:700 caucasians in the US are IgA deficient, there is a family history/heritable component... but, its inheritance pattern is unclear. among celiacs, the literature is highly variable depending on country of origin and sample size; but around 1:70 celiacs present as IgA deficient. there is also a 3rd subcategory of marginally-deficient...
  7. gfb1
    i understand your impatience. many folks here and elsewhere went years before finding an answer. and it stunk. however, 1st. if you start eating a gluten free diet (or, were gluten free prior to your blood test) -- you will more than likely have negative results. you MUST continue to eat a diet including gluten if you want to have a chance of receiving...
  8. gfb1
    i REALLY hate asking stupid questions... (well... maybe not....); but... your signature name is 'Live4Hiking'; if you have a rash on your lower calves/legs, is it possible you walked through something?? generally oral steroids (prescribed by a doc) are effective for treating poison ivy/oak, but topical creams (especially non-prescription brands) are...
  9. gfb1
    i fell off my little computer chair reading that one!! that is the "best" diagnosis i have ever heard. i am "terribly pleased" that we have been "clearly misunderstood" by all the medical "butt heads" who "almost exactly" can tell us, yes, its a "definite maybe".... what a bunch of (oxy)morons.
  10. gfb1
    gluten is a protein molecule, made up of a long sequence of amino acids (like beads on a string). gliadin is a shorter sequence/string of amino acids found WITHIN the gluten sequence. the gliadin sequence is found in all the grasses of a particular family; including wheat, barley, spelt and RYE (as well as a few other grasses, many considered weeds and...
  11. gfb1
    in general, IgE-mediated allergies (the type that you get 'pricked' with an allergen in the dr's office and they look for a bump/rash/redness) are not necessarily gluten-related. many of these types of allergies are actually mediated by a group of compounds called 'lectins', which are complex combinations of proteins and starch (i.e., strings of sugar molecules...
  12. gfb1
    oh dear. i guess i am showing my age, i suppose i meant the 'archaic' definition of 'silly', i.e., 5. rustic; plain; homely. i am very glad that any information led to someone else being diagnosed and getting relief; even if they were for the incorrect reasons. i used to tell my students to 'show their work', because you can often arrive at the...
  13. gfb1
    i understand completely... my motherinlaw used to say... she was a hoot ... AND a celiac! anyway... the difficulty of diagnosis is compounded as the secondary symptoms (joint pain, fatigue, bloating, etc, etc) can be much worse to bear than the actual damage done to the intestinal tissue. in fact, they can actually occur BEFORE you test positive...
  14. gfb1
    at the risk of being labelled an old crank (which i will admit to being on a part-time basis); asking for gene testing (ie., HLA haplotypes) is not a helpful diagnostic. you may as well ask how many celiacs have brown (or brunette) hair. i'd guess about 80% or higher are brunette. does this mean that all brunettes have celiac? i also do not believe...
  15. gfb1
    excellent work to get copies of all test results. i usually scan them and keep them somewhere like zoho/google docs/box.net -- or even Open Original Shared Link . this allows me to have access to all the families medical records from anywhere (and if a doc wants them, i can provide direct access -- or see them from her/his office). your results show signs...
  16. gfb1
    your frustration is understandable -- although it is REALLY GOOD that you are feeling better on a Gluten-free diet! your test results are perfectly predictable. if you were on a Gluten-free diet, then you should be negative. even ravingdyedinthewoolgoldstandardbiopsyapproved-celiacs will test negative when on a Gluten-free diet. in fact, once Gluten...
  17. gfb1
    interesting doesn't mean reliable or accurate. in case you don't feel like searching here was part of lma88's answer. its worth repeating.
  18. gfb1
    prometheus seems to put a lot of faith in their genetic testing... from their brochure: i suppose using the words 'may allow' give them an out; but, the DQ-haplotype analyses are not absolutely predictive. their serology tests generally includes: o Anti-gliadin IgG ELISA: <3.5 EU/mL o Anti-gliadin IgA ELISA: <4.0 EU/mL o Anti-human tTG...
  19. gfb1
    lyme disease is NOT heritable. it is caused by bacteria -- spread (mostly) in the US by several species of ticks. it can, however, be spread from a pregnant mom to her fetus. there are several possible causes of igg deficiency in children. as most in the forum know, many celiacs are iga-deficient. people can also be igg deficient as well. igg deficiency...
  20. gfb1
    there's NEVER enough baseball .... but, ... from center.for.science.in.the.public.interest: Open Original Shared Link STEVIA Natural, high-potency sweetener: powdered dietary supplement and used in diet beverages. Also called rebaudioside A or rebiana (brand names Truvia and PureVia). Stevia, which is about 100 times sweeter than...
  21. gfb1
    i'm not sure i understand your question. if you are on a gluten-free diet, the tests are pretty much worthless from a diagnostic point of view. back in the day (around 9 yrs ago), my wife (one of our celiacs) would periodically get tested for gliadin, just to be sure she was gluten free. we rapidly found that her 'health-sense' was much more acute than...
  22. gfb1
    leadmeastray raises good points. why would you want to have genetic testing?
  23. gfb1
  24. gfb1
    allow me to jump in. on the one hand, we have no way of knowing if there is a biological 'zero'. lots of people have intestinal damage, from either accident, surgery or disease, which might release ttg and cause your body to create antibodies. on the other, the assay itself may not ever read 'zero' (even in the presence of some amount of ttg-ab...
  25. gfb1
    sounds like bullsh*t to me. Open Original Shared Link aside from ridiculous claims, like ... tests for 96,000 allergens ... stress produces allergies... and, my personal favorite (which is actually NOT ridiculous): this statement is required to have FDA approval -- which only means that the treatment is not harmful. it does NOT imply that...
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