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gfb1

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by gfb1

  1. gfb1
    this is a great answer. in any analytical test, there are both false negatives AND false positives, though they occur at different rates -- and probability theory is never easy on anyone... However, in any clinical test -- if a false positive is suspected the recommended course of action is to REPEAT THE TEST. having said that, gemini's response is...
  2. gfb1
    Open Original Shared Link its really not that bad --- my brotherinlaw was beer-free for over a year when redbridge was released. he thought it was nectar of the gods... however, it definitely WON'T help symptoms of consuming one-too-many...
  3. gfb1
    i'm not sure why you need an 'official answer', or what that term implies. celiac disease has been around for a MUCH longer time than blood tests, biopsies and genetic typing. the 'official answer' was (and, imo, still is); if you get better after going gluten-free -- then you are/were celiac. frankly, i think many people classified as gluten...
  4. gfb1
    i hate to ask a silly question.... but.... were you better on the gluten-free diet? if your symptoms were relieved while gluten-free, and returned after going 'off the diet' ... then, i think you have your answer (regardless of testing issues/opinions).
  5. gfb1
    you have to remember that 'gluten' is the protein in wheat, barley, rye (and some other grasses) that celiacs are unable to digest (early evidence suggested that celiacs were missing an enzyme that metabolised the signature glutamine-rich amino acid sequence in gluten -- called gliadin). when gliadin (or similar proteins) comes in contact with the intestinal...
  6. gfb1
    whew... you've got a ton to deal with... i almost hate to ask... but; who tested for what?? you've got a small reference to "paraites" . did you mean "parasites"?? if so, which one/ones?? parasites in the blood are very serious. you need to check this out first thing to tackle, BEFORE all the rest. i also don't intend to be mean-spirited, and want...
  7. gfb1
    its hard to say what it all means; 5hiaa really isn't a primary diagnostic for many conditions and (as you pointed out in your first post), the values are usually 'off the charts' if there is an intestinal tumor present. repeating the test will help to determine if its a spurious result (or if 5hiaa levels are spiking irregularly). btw -- sorry to hear...
  8. gfb1
    once upon a time, i used to analyze catcholamines, indoleamines (serotonin is one) and their metablolites for a living. measuring 5-hiaa is nontrivial, and depending on the method there are lots of things that cross-react with the antibodies (or, co-elute in a chromatogram). there are also a variety of foods and meds that can increase levels of serotonin...
  9. gfb1
    WARNING: overly sensitive geneticist alert.... or....... you were both exposed to the same cleaning fluid....
  10. gfb1
    this is a more complicated question than it appears. im(ns)ho -- a 'negative' blood test means that you do not have DETECTABLE levels of antibodies to (gliadin, ema, ttg, etc,etc); this is extremely accurate. however, whether this means you do not have celiac disease is where there is difficulty in interpretation. without going into human error on all...
  11. gfb1
    the combination of celiac disease and sjogren's is not unusual. however, depending on the degree of damage done to the tear glands -- you may, or may not, have recovery of the symptoms of sjogren's. my wife was diagnosed with celiac disease 10yrs ago, and, nearly simultaneously with sjogren's. on the advice of an opthamologist, specializing in sjogren...
  12. gfb1
    moj; sorry; i did not mean to denigrate you or your education or opinion. i am overly sensitive to the overuse of HLA-typing for disease diagnosis (for reasons that have nothing to do with celiac or this list) and tend to be overly critical of language that suggests that there is a useful diagnosis that can be obtained from the information. my wife tells...
  13. gfb1
    to my knowledge, all published materials screen confirmed celiacs for the presence or absence of DQ2/DQ8 -- in which case, there are a large proportion of celiacs who have those markers (approx. 80
  14. gfb1
    that's curious; do you have the same reaction to egg-derived lecithin?
  15. gfb1
    a bit off topic (perhaps not unusual for me...) this is an interesting statistical question -- do 5, instead of 3, samples increase the chances of a correct diagnosis ?? the increase of 2 observations only increases the accuracy of diagnosis by a few percentage points (as compared to doing 10-20 samples). its a long statistical argument... but...
  16. gfb1
    generally this type of intermittent pain after eating -- usually (but not always) distinguished by pain radiating up to the neck/shoulder region -- is caused by irritation of the vagus nerve and can be caused by a variety of factors, ranging from esophagitis, pancreatitis & gastritis. all possible secondary symptoms of celiac disease. usual disclaimer...
  17. gfb1
    don't know about celiac-dogs... BUT, we discovered that iams eukanuba is gluten-free -- which means that my wife (who has celiac) can handle the dogfood, feed the dogs and not worry about getting licked! unfortunately, it is still my job to clean the yard....
  18. gfb1
    because substances delivered via sublinqual route (e.g., B-vitamins) are WATER-SOLUBLE; fatty acids, on the other hand, are HYDROPHOBIC -- i.e., NOT water soluble. sublingual delivery of hydrophobic molecules can be accomplished via carriers (e.g., alcohols, DMSO, PEG, methylcellulose, etc). none of these things are in salad oil. sorry all; but, sometimes...
  19. gfb1
    there are a variety of conditions that can cause a 'false' B12/folate assay. most of them are diseases of the liver and associated with overall high blood protein levels. however, before you google, find bad things, and panic, there are also a fair number of drugs that will interfere with the B12/folate assay. i assume that your doc has a list of your...
  20. gfb1
    i'm sorry; but there is absolutely no (as in zero) reputable scientific evidence that these enzymes have any effect. i realize that it is a wonderfully comforting thought, that taking a pill can replace the enzyme that will allow anyone with celiac disease to digest gluten normally... but, it's not true. there are a couple of enzyme treatments in clinical...
  21. gfb1
    good instincts. if it quacks like a duck..... find a new doctor. its not significant at all. i don't mean to challenge anyones belief system (or, maybe i do....); but, this is nonsense. find a new doctor. stop with the digestive enzymes. they are completely unnecessary (unless you have pancreatic exocrine deficiency). in any case, there...
  22. gfb1
    trying a gluten-free diet costs nothing. it is absolutely possible to have negative tests and still be a celiac. this is (mostly) due to the high variability in the age of onset and response/severity to gluten at that time. i strongly suspect that in many people much of the celiac symptomology occurs long before there is sufficient and consistent intestinal...
  23. gfb1
    everything else was good advice... but.... (and i don't mean to be a scold), but this is not so. there is clearly an increased risk for 1st degree relatives ... and it might be a 20-some-odd% INCREASE in risk. but, with no other knowledge.... never that high.
  24. gfb1
    ok... please listen to 'mushroom'. good advice. [warning] now, my rant. who is your doctor? what are her/his credentials? if you wan to figure out a problem you don't start with a stool test; you do blood tests. seeing a dietician is a good idea; HOWEVER: it has to be a REAL professional, not someone who wants to sell you costly supplements. ...
  25. gfb1
    you'll probably get lots of stories... but, my father-in-law was diagnosed at 73. he was a meat&potatoes-guy, and may have had 2 slices of bread per week til his wife passed (his age 64). then he started eating sandwiches every day (sometimes 2x/day) and discovered pretzels.... people have varying tolerances to intestinal discomfort and a range...
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