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thleensd

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Everything posted by thleensd

  1. thleensd
    I've been feeling down for a few days with the whole food frustration thing (7 weeks in!)...and today bought some cinnamon brown sugar Kinnikinick waffles. I put them in my brand new dedicated toaster and.... SO GOOD! ...like, went back to double check the box to make sure, then did the happy dance good. And, I decided the price could be easily justified...
  2. thleensd
    YES! I went yesterday and they were amazing. Ask for their celiac/gluten free list at city hall. If you're going to a sit-down restaurant, reserve ahead, but I was so happy to find out there was quite a lot I could eat at walk-up restaurants! Ask for a manager or chef, and with no hesitation they come out and talk to you, let you know your options, and oversee...
  3. thleensd
    Yay, three of us. =) haha...I'm sure there are more. I've picked up a couple of good cookbooks since my dx in February. Just went to Disneyland yesterday....they were AWESOME! They have a list of foods you can eat, and the chefs come out to talk to you when you request gluten free. I had a bad experience at my last Pei Wei outing =( but, I'm considering...
  4. thleensd
    Activa is not ok... most of the links I found were old, but many of them indicated that there was either cross contamination or that the flavorings are not ok! So, you should definitely replace that in your diet. Hang in there! Most of us here have has plenty of trials with patience and frustration!
  5. thleensd
    *raises hand* (one of my glutened symptoms? anxiety!) Me too! Based on the response here, I hope you at least don't feel alone. My blood work was negative. Fortunately I got the biopsy done, and that was positive. Not uncommon! Good luck.
  6. thleensd
    Me me me! This has been one of the most persistent annoyances for me! Before I was diagnosed, I was told this was everything from reflux to stress. And, of course, they wanted to throw drugs at it (prilosec--I know some people can't live without it, but it is NOT a good thing for me). Even had it checked out by the allergist...he said it wasn't related to...
  7. thleensd
    I've just been searching the board here for chicken, because I discovered the "frozen chicken tenderloins" I've been eating have the broth coating you're talking about...and I've had a bad health week. They're Ralph's brand (same as Krogers), and the ingredients said, "broth and sodium phosphate". What exactly did they tell you? Did it sound like you were...
  8. thleensd
    I'm a bit wary of the restaurant thing. Only been doing this a bit over a month. How careful are the pizza places about cross contamination? It seems to be that a pizza place would have flour everywhere.... Have you had any good conversations with managers? Thanks. =)
  9. thleensd
    Your RDW isn't all that low...it's really pretty close to range. Keep in mind that different labs set different "normal" standards, too. Some define "low" as below 10.2. However, you should insist that your doc follows up to be sure. I'd be more concerned with the low RBC count. If your low RBC count is caused by iron deficiency, your doc needs to...
  10. thleensd
    A few years back I was diagnosis with chronic hives and swelling...idiopathic. I don't have any allergies--I've been tested for nearly 90 foods. This condition is an auto-immune disorder. I was also diagnosed with dermagraphism. (Pretty much, if you run your fingernail across your skin lightly it turns into a big itchy welt) I read an snippet online (don...
  11. thleensd
    THIS is the part that is exciting to me! Mainstream attention to gluten-free! I talked with managers at both my local grocery stores. One of them really had NO IDEA that there is this huge population of people that avoids gluten. Yesterday I went into Ralphs and they had five (yeah, that's all I found in the whole store) gluten-free tags up for easy...
  12. thleensd
    Anyone else have problems with Dasani? I've always kind of avoided it because I don't like the taste, but I had some today, and my system is having a fit. I don't know if it was that or CC from something I ate. Trying to figure it out. Anyone??
  13. thleensd
    Wow. Ok. Here goes: Probably some less significant things before this past year (except low iron for all of adult life), but... One year ago I got the flu (real flu, not stomach flu). Developed lower right abdominal pain. Nearly passed out, was very weak, and had my first ambulance ride. Tests, tests, tests, you know the story. After that, I had a very...
  14. thleensd
    I was diagnosed two and a half weeks ago. Been totally gluten free for three weeks (gluten light before I *knew*). I'm getting stronger, and usually feeling better, but I am definitely reacting to SOMETHING. I've exorcised my house of all gluten! Including lotions, soaps, etc! So, I've been very careful. Only eating at home, new toaster, etc. Went to...
  15. thleensd
    Went to a nutritionist/dietician today. Eh. After talking to me for about 2 minutes she said I probably knew more about it than her. True. At least she was nice. She told me I could take a multi-vitamin, but I wasn't really missing things from my diet...unless I went carb free. But I'm not. She did give me two good things. One was a print-out of websites...
  16. thleensd
    I'm not a poop expert...hehe, but in trying to figure out what the heck was wrong pre-diagnosis I learned some stuff. The best description I read that was stool should be the consistency of toothpaste, float for a moment, then sink slowly. THERE's something to strive for! Fatty stools float, but they often are hard to flush away - crud sticks to the...
  17. thleensd
    Getting my iron up was the hardest thing for me to do.... My ferritin was all the way down to TWO! But after my diagnosis and going 100% gluten free (not almost gluten free...it won't work), my iron shot WAY up. (And in two weeks! Not common if you visit the iron deficiency forums) And this is after years of trying to get my iron up with iron supplements...
  18. thleensd
    Yes! When you take calcium you should also take magnesium. They need each other. Important to get them in the right ratio, though. I've heard different numbers so I won't quote them, but a few google searches should help you with that. In short, calcium helps muscles contract and magnesium helps them relax. There's a great book called, "The Magnesium...
  19. thleensd
    I was diagnosed last week. The first thing my GI doc did was give me a referral to a dietician (Kaiser- "nutrition services" or something like that). I'm going Friday. I've been doing a ton of reading, though, and that seems to arm me pretty well. I'll do my best to let you know if they offer anything interesting. (PM me if I forget) One of my seemingly unrelated...
  20. thleensd
    Hey, you San Diego folks.... Give me a holler. Diagnosed last week. Wheeee! I have discovered Pei Wei already =) but looking for other eats, events, etc. I was thoroughly traumatized last weekend on a two-day trip to Phoenix trying to eat out. *whew*! I've been to the support group site, but they meet pretty infrequently, and at times I can't usually...
  21. thleensd

    ARCHIVED Educating Doctos

    thleensd posted a topic in Doctors

    I was diagnosed last week. Like most of you, what I have to say is, FINALLY!!!!! ...and then a whole bunch of much more colorful, much less appropriate things for the DOZENS of doctors who diagnosed everything from "nothing" to "take some metamucil" to "let's check for stroke and brain tumor" to "see a shrink". Even my naturopathic doc (who was the one...
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