
thleensd
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Everything posted by thleensd
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ARCHIVED Anyone LDS? How Do You Handle The Sacrament Bread?
thleensd replied to terpeng's topic in Coping with Celiac Disease
I read an article about a family in Rexburg ID that would bring their own bread for their family. They had to get some buy in so the teenage boys that handle it knew about how easy cross contamination was. Turns out there were others in the ward that needed to be gluten-free and eventually they had a whole tray of gluten-free bread that went to those who... -
Ok, so I am embarrassed to admit that pre-celiac Dx, when my fridge was opened, I might have some corn tortillas, two left-over dinners from restaurants, some cheese and a couple beverages. I never learned how to buy and use all of what food I need. So, here are my perceived problems, I hope someone can help me with solutions! -my diet is now 95% non processed...
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ARCHIVED Food Testing For Gluten
thleensd replied to pgrovetom's topic in Coping with Celiac Disease
I've used home test kits, but they only test down to a certain level (10 or 20 ppm?). If you are highly sensitive, that won't help, sorry to say. -
ARCHIVED Brand New To This And Wonder What Your Advice To Me Is
thleensd replied to slee10018's topic in Coping with Celiac Disease
Eat clean. Fresh veggies, fruits, meat, dairy (if you can handle it), nuts and seeds... give yourself time to get accustomed to reading labels... by shopping the perimeter of the store (fresh foods), there are very few (if any) labels to read! If you avoid as much processed food as possible, the possibility of cross-contamination is very small! You'll... -
Yeah... I saw my GI doc a couple weeks in and the possibility of it being oats was her comment too... though I'm not 100% sure she gets it. I wished she would've suggested it a year ago. =b Whatever it is, this is working. I just don't know if I'll be able to start introducing things back in to see or if I'm going to be life-long grain free. I of course...
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Especially for those who have had a long recovery: I've been strictly gluten-free for two years and five months. When I went gluten-free I went from mostly bed-ridden to sort of being able to function. For the next two years I got a little better, but still had debilitating fatigue. I had to stop working and have family members care for me. We all have...
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I've gone completely grain-free and processed-food free. It's been a month, and I feel slightly better. (2+ years gluten-free, 1 year corn free, tried other eliminations, this is the one that seems to be working). I'm definitely super sensitive, but sometimes my reactions are subtle. I've heard from many that can't do Bob's Red Mill products (maybe a secondary...
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ARCHIVED Oats
thleensd replied to soccermom's topic in Gluten-Free Foods, Products, Shopping & Medications
The latest research I've read says to wait until your gut is healed (I've read one year or two years), then only take oats in small quantities under the supervision of a doctor. Then they may be tolerated in small amounts. Plenty of people don't have a problem with them... but many do. I just got back from my GI appointment (year two follow-up), where... -
ARCHIVED Celiac Diagnosed Just Today!
thleensd replied to MommyMonica's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
+100 to shopping the perimeter of the store! A lot of gluten-free processed foods aren't that good for you anyway... so, to avoid the crying breakdown in the supermarket while trying to figure out what to buy (been there, done that! ;-) ) Fruits, veggies, meats are a great way to start. Rice and beans, too. Then work in other things as you find them. Staples... -
ARCHIVED Finally Gaining Some Weight :)
thleensd replied to blissfully-unaware's topic in Related Issues & Disorders
Putting on a little muscle is a good way to gain weight. I'm similar height/weight, and I find if I do too much cardio I lose weight. If I do some resistance training without over-doing the cardio, I can gain. -
ARCHIVED Gluten Associated Sensitivity & Cross Reactive Foods
thleensd replied to laura4669's topic in Food Intolerance & Leaky Gut
This came up when I searched the forum for Cyrex... trying to figure out if their tests are legit. I'm 2 years gluten-free and not better yet. I think my next step is to try grain free. How did you get the Cyrex test? Are you feeling better off grains, chocolate, etc? I'll have to look into ANA... sounds interesting. I'm worried about grain free... -
ARCHIVED Refractory Celiac Disease
thleensd replied to tennisman's topic in Coping with Celiac Disease
Does anyone have more info on this? I know about the possible CC in grains, but I'm wondering how legit Cyrex labs and the idea of cross-reactivity is? Does anyone know anything about the research? I'm also aware of Dr. Osborne that advocated grain free (Open Original Shared Link), but I'm not finding more conclusive evidence. At this point I'm willing to... -
For energy bars, I'm a fan of Prana bars - fruit, nuts, coconut, puffed millet. They're easy to eat. and remind me of power bars a bit. My favorite flavor is coconut acai. I don't like the others as well. Lara bars are pretty good, too and made of fruit and nuts. If you figure out what you like, you can make your own. Sounds more complicated than it is...
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ARCHIVED Any Way To Help Celiacs That Have Been Impacted
thleensd replied to ravenwoodglass's topic in Introduce Yourself / Share Stuff
I didn't see this posted anywhere today... but here is a contact to help Celiacs in the Joplin area. Open Original Shared Link -
I had to laugh a little... my tastes have gotten SO sensitive. It's kind of become a joke. If you're eating less salt than you were before (not eating out, less processed foods, etc), you'll definitely be more sensitive to salt.
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ARCHIVED Back From Our Fantastic Vacation In Croatia And Italy!
thleensd replied to love2travel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I loved reading this! I've been to fatigued (etc) to travel but have a 10 day trip I've booked this summer on the other side of the US. The trip will (only? lol) take about 11 hours, then we'll have a car and can stop at a grocery store. Of course, I plan to lay down on the airport floor during the l=) I have very limited sitting tolerance, too (20-30 minutes... -
Oh wait.... haha... I guess I should've been more specific. I wish that my cat's vet (who is awesome) was my doctor, too! lol!
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HA! Totally. I wish my doc was my cat's vet!!
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Been there, done that! "You mean I can eat *everything* here?" *tear* .... if I had the energy and money I'd totally open up a cafe! Can I ask what state/country you're in? JER due to BDA ... being dicked around? We kill me.
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ARCHIVED Celiac And Back Problems?
thleensd replied to num1habsfan's topic in Related Issues & Disorders
I have severe back pain, and you bet it's related. Remember, Celiac (or gluten-intorance) can damage every system in the body (from inflammation or malnutrition...) See if you can find a heath care worker that will understand and help you through it. I have a very patient physical therapist who has come to understand that since I'm still in a health crisis... -
ARCHIVED My Boyfriend Isnt Coping With Me Being Ill
thleensd replied to MissBonnie's topic in Parents, Friends and Loved Ones of Celiacs
I feel for you! You said he feels he isn't showing he cares enough? If that is the case, it sounds like he *does* care... he just needs to learn how to show it in a way that *you* appreciate. It is SO hard on both people, isn't it? Is he willing to see a counselor with you? If not, maybe you can go and learn some things to cope and help communicate... -
I'm trying to think if there is anything I eat that isn't whole food. Sometimes I get boulder canyon plain potato chips. I think that's the main one, every couple of weeks. No pre-made stuff as far as cookies, meals, sauces, sausages. I don't even buy pre-cut produce. I buy bob's red mill gluten-free flours. The manufactured things I eat are: tinkyada pasta...
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ARCHIVED How Often Do You Cheat?
thleensd replied to steve-010's topic in Coping with Celiac Disease
Never. That is a dangerous game to play. She needs to do some research. Please help her. +100000000 to "a little bit of arsenic" -
Kneading amount and rise time is different. Here's a little write-up explaining: Open Original Shared Link Follow the directions/recipe carefully, though, because some call for a gluten free bread cycle and some don't. Meanwhile, he's a really easy recipe for little cheese-bread biscuits. No bread maker required. I use butter instead of oil, and...
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I'll talk to her!!!!