thleensd
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by thleensd
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We can certainly sympathize that getting used to the diet is rough. When you have some time, look through some of our stories here and hopefully you will see what your future could've held without the early diagnosis. If I was diagnosed based on my anemia and low weight, I would've saves many years of pain, suffering, and tremendous expense. I, too had no...
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JER. Perfect. =)
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Absurd. She definitely needs a little gluten-free etiquette lesson! I'm fascinated by this: >also about wheat deamadization, which is pretty scary, what they do to wheat chemically to make it into a polymer. as if it was'nt scary enough!! What's the deal with that?
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(it's either laugh or cry) I love this. Maybe I'll email her and ask her to code in JUSTIFIED EXTREME RAGE instead.
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I hear what you're saying, Korwyn, but I don't think that the diagnosis of a mood disorder is required to test my nutrients, iron, and thyroid. She could've easily written something that would've been more accurate like "anemia" or even "malnutrition". She's straightforward with me about the system sucking, so she shouldn't try to be sneaky and not tell me...
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Went back to my primary care doc to address my ongoing issues (mostly major fatigue, but other left over recovery stuff, too). I actually like her because she has a background in Chinese Traditional Medicine (though she doesn't use it... but nice to know she's more open minded than most). I think three times in the appointment she apologized for the...
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Not fear of heights, but yes to both anxiety and balance issues. Both are getting better. Before gluten-free I was having a hard time riding in the car (anxious) and I was prone to walking into walls from time to time So, yeah... I could see that connection.
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Just had a little mini emotional *moment* in the kitchen when there was NOTHING I wanted to eat. So, I'm looking for ideas for quick snacks... but there are restrictions. -Since I need to eat a late night snack/meal (or I wake up in the middle of the night with anxiety and dizziness), it needs to have some lasting energy/protein. I can't just have...
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I sat down with guy at the local MAC store- and asked him a ton of questions. He got out his giant ingredient book, but that was overkill. ALL of their products clearly label if there is gluten! They aren't all gluten-free, though. One of their mascaras has barley in it. Really? Barley? Just look at the label and it will use actual plain English. Not all...
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I've read that the oil-filled soft-gels are better than dry. I take Country Life brand, 5000 IU (D3) per day. They make smaller doses, too. Certified gluten-free. When I was super deficient, I got a prescription for 50,000 IU once per week. It looked just like the soft-gels I take now. Did that for eight weeks.
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ARCHIVED Looking To Meet People Who Have Been Bed Ridden From Celiac
thleensd replied to MissBonnie's topic in Introduce Yourself / Share Stuff
Hang in there. It's been two years since diagnosis for me. When I was at my worst I needed help eating and getting up to use the restroom. As I progressed, there were little milestones... I could wash my own hair. I could take a shower without a nap afterwards. I could walk down the street. Then around the block. I'm not 100% yet... maybe 50 or 60, but... -
ARCHIVED Where's The Google Search!?!
thleensd replied to Truleesmom's topic in Board/Forum Technical Help
Wow, thanks! WIth the colors and the lighting in here right now (screen turned down because it's dark), I couldn't see the lettering! =) -
Hey. When I was diagnosed I had read somewhere 6 months to 2 years. It's been more than 2 years for me and I'm still not better. On the 1-10, 10 being just kill me now scale (that was a good one, by the way), I'm between a 6 and 8 depending on the day, now with fleeting moments of "yay, I feel normal right now!" I also am struggling to maintain/gain...
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Not a wimp. You gotta do what you gotta do. I toughed it out for a long time which made my recovery slow, I'm sure. Probably should've quit sooner... Now I still can't work. It's different for everyone. Take care of your body. It's the only one you get.
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ARCHIVED Celiac Vaccine Anyone?
thleensd replied to Tigercat17's topic in Coping with Celiac Disease
Preach it, girl! Seriously, this is so familiar to me. Gah.... (Curious how your physical therapy is going, or if you're still in it. I go just about every week.) I'm fascinated by this thread in part because of how emotionally so many of us respond to the modern medicine quick fix. Don't get me wrong, if I have appendicitis or a broken leg, I'll be... -
ARCHIVED Where's The Google Search!?!
thleensd replied to Truleesmom's topic in Board/Forum Technical Help
Is the non-google search still available? The only search I see is "search forum via google", and that doesn't have options like the other. What am I missing? -
ARCHIVED What Is Going On? Can You Help?
thleensd replied to proud-armywife's topic in Coping with Celiac Disease
-You're definitely not alone. -You'll have to learn more than your doctor, because they probably won't go out of their way to do so. I had similar iron issues (ferritin below 2, iron in the teens). Your doctor should be saying to you "how are you still walking"... and shoving iron at you. The only way I got mine into the borderline normal area was liquid... -
Agreed. I feel that way about a lot of organizations! =)
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ARCHIVED Brain Fog
thleensd replied to WinterSong's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yeah... sounds like the brain fog curse. =) I had a case of it for a good couple years before diagnosis (my friends joke about those being my "lost" years, since I can't remember much from that time!). I still have trouble with it, but it's getting SO much better, and I'm "normal" for longer periods of time. I still have moments where I'll just stop mid sentence... -
It's not just you. It's been two years and two months for me. I've been very strict about my gluten-free, including non-food products... Also eliminated corn, soy, nearly everything artificial or overprocessed, sorghum, and experimented with eliminating quite a few other things. That being said, I was pretty bad (hospital stay) by the time I was diagnosed...
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I went shopping with the intent of buying millet flour... they didn't have any, but I walked out with Buckwheat Groats and Millet. I have no idea what to do with them! Ideas??
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AH HA! Found a statement with some substance for us (um...sorta)! Check it out: "The main hazard of creating novel proteins is their effect as a potential allergen. While TG itself is non-allergenic, there are studies that show that gluten can be made more allergenic if treated with TG. Gluten-free cereal products can contain a small amount of gluten...
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I am quite familiar with the US labeling laws and the difference between most of the grocery store vs. meat (and who is responsible for the labeling: following the statutes of FMIA, PPIA, EPIA, etc). I've spent lots of time reading about them all... But, you're saying that if they use this meat glue, they'll list it? I think the whole idea behind this...
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Yep. Wrecked my work life. I had a pretty crazy job actively working 8-12 hrs/day working with kids. I'd been working at my position 8 years when I got sick, missed an entire month of work... all of my sick leave and vacation time. I found another position where I had an assistant, but felt terrible because she always had to pick up the slack when I was down...
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Thanks =) It is appreciated. And, of course "bad publicity based on misinformation is worthy of discussion". That made me chuckle, though I agree (thus my active discussion on it) The article came up on my google news alerts and I see a lot of people blindly tweeting it/etc, so that is my concern. As you know, many people read something like that on...
