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thleensd

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by thleensd

  1. thleensd
    ^^^^ This. Yes. Hang in there. It's been 2.5 years for me, and I'm definitely still recovering. The latest puzzle piece for me was to go completely grain-free. It has helped tremendously. *Almost* grain-free and *almost* processed foods free wasn't helping. Now I'm starting to have longer and longer moments of clarity and energy. It started with 5 or...
  2. thleensd
    Niles Crane... that's good. =) I feel like Jack Nicholson's character in "As Good As It Gets" sometimes! Not to make light of actual OCD, but I completely understand! I don't shake hands nearly as often as I used to. I'm trying to figure out good responses to that one. To cope with the hand shaking situation, things I've done/said: "Oh, sorry, my hands...
  3. thleensd
    GAH! Seriously? I wonder if they can test it with something other than wheat. Sounds scary. Easy to take apart and clean or no? Do you grind nut flours in it?
  4. thleensd
    What kind of grinder do you use? What kinds of flours do you grind?
  5. thleensd
    I get nuts from nutsonline and like them a lot =) ...I worry because of the other things they might grind (Like I said, I don't know how sensitive I am to things like corn CC. My corn issues came on at the same time as my celiac issues. Weird.) Maybe I can call them and ask what else they process with the same equipment. Thanks.
  6. thleensd
    Hey my sensitive people! I've gone totally grain-free and am liking the results so far. I know a few of you have problems with Bob's Red Mill products, so maybe you can help me. I have sensitivity to corn for sure, but no idea if corn CC affects me. I am avoiding Bob's for the time being - possible issues with oat CC or...? Uncertain. At the moment...
  7. thleensd
    Gluten Free kitchen. It's worth my health and sanity.
  8. thleensd

    ARCHIVED All Nuts?

    thleensd replied to alexsami's topic in Coping with Celiac Disease

    While my gut was in the early healing process, I couldn't handle nuts, even safe ones. My body just couldn't break them down-they're hard to digest. Lay off of them for a while and give your body some time to adjust. It honestly took me a good year, but I was pretty damaged. I was able to handle natural (pure!) nut butters pretty quickly though - almond and...
  9. thleensd
    Great question. I hope someone can find a scientific article with some solid facts, but I don't know if research has gone quite that far... at least the placebo controlled/double blind types of studies. Based on what I've read, I have a couple of guesses. Note the word guesses. Sorry. (They aren't totally blind guesses, though!) -Inflammation. We know...
  10. thleensd
    Here's a link to Fussy Cat. You can also buy it online from that company that starts with A and is a river in South America. =) Open Original Shared Link
  11. thleensd
    My cat gets fussy cat. All of the ingredients are actual recognizable food ingredients, and it looks like pieces of fish, shrimp, etc (she doesn't like any of the chicken varieties). Can't get it at a regular grocery store, but my cat loves it, and it's a good price (though a smallish portion). For dry we use Taste of the Wild. There are quite a few grain...
  12. thleensd
    One of my friends is a bar tender. When I mentioned vodka/tonic as a safe drink she laughed...Most bars have huge potential from CC, and they are just not very safe places. Think of all the beer. Pre-celiac I remember seeing a glass rim-side down on a bar covered in beer. I think the bartender just kind of wiped it off and used the glass anyway. Often...
  13. thleensd
    I've discovered I'm better off grain-free. I'm still not healthy/independently functional yet (need help with cooking, chores), but I took a big step up when I cut out grains. I've known for a while that I can't tolerate corn or many of it's related products like Xanthan Gum. I'm wondering how careful I need to be with corn alcohol (specifically that...
  14. thleensd
    Yup. Was 18 and falling (no one told me until an observant doc looked back at the numbers months later), went on 50K for 6 weeks-brought to 59, supplemented at 2k/day, dropped to 46 (still normal, but didn't like the direction), now I take 5k multiple times per week (3-6) and I seem to be holding pretty steady: 56. Consider looking into taking magnesium with...
  15. thleensd
    Last night I dreamt I ate half of a burrito before I noticed. It's been 2.5 years since I went gluten-free. The good news is, I don't get those dreams nearly as often as I used to. At times I've wondered if they're connected to stress (I've had a lot of stressful dreams this week), but I've had them even when I don't seem to be under a lot of stress. More...
  16. thleensd
    That is wonderful! I'd love to see a meeting like that here... not just "this is a good recipe for rice bread". It is hard for many people to understand the emotional difficulties many of us face/have faced. How many people were there at the meeting?
  17. thleensd
    +1 for the urban legend that won't die theory. That being said, I don't lick anything that I didn't wash, grow, or read the label on. Please pass the envelope sponge or a damp paper towel! Of course, now that I'm also corn-free it's not even a question, I don't lick stuff. Well, except that one frog in that one rain forest..... ;-)
  18. thleensd
    Wow, that's great! Of course, I don't know how they'll give you meds. I guess IVs. I've recently gone grain-free, because I'm apparently super sensitive, too. My health has improved a lot since then. I'm not sure what to do about that same issue. I guess if I have to have a prescription I can get them from a compounding pharmacy, but in an emergency,...
  19. thleensd
    Health is more important. I'd urge him to look for a new, less floury job!
  20. thleensd
    Just say no to oats. At least for a while. Some of us have problems with the gluten-free oats. You need to be gluten-free for a long time before trying them (at least a year), then limit your amount AND check back with a doctor in 3-6 months. Not worth the risk for me. Give it a year, then you can decide if it's worth trying again.
  21. thleensd
    Parts per million is kind of difficult to imagine, because it's milligram per kilogram of food. So, it really depends on how much potentially tainted food you're eating. Less than 20ppm could mean 0 or it could mean 19. According to this website: Open Original Shared Link
  22. thleensd
    I received the same email today, and am concerned about 20 ppm being considered gluten-free. Many of us react to these low-gluten amounts. I hope that many of us (even if you do not personally experience an outward reaction to 15ppm) will voice that issue.
  23. thleensd
    Gluten-free needs to mean gluten-free! Low gluten to me is 20ppm. If testing and good manufacturing practices are available to make products with no gluten (how low can they detect it now?) they should do it. I am unhappy at the suggestion that 20ppm is gluten free. It is most certainly not (see peanut comments...people seem to "get" that). Gluten free...
  24. thleensd
    Yes! I am currently putting my thoughts together to submit to the FDA. One option is to have a "low gluten" label and a "gluten-free" label. Would a company sell a product and claim it was peanut-free if it has 20ppm of peanut in it? I doubt it. Low-gluten labeling would give the gluten-free trendies and the less sensitives what they need, and gluten-free...
  25. thleensd
    You guys are the best, thanks. I was so excited to see the glass storage containers. Some of my meals are for three, but I eat 2x more often... and I'm not a big fan of eating the same meal 2 or 3 times in a day! My malnourished celiac brain-fog is staring to recede, but I can't think very well when I need to eat (come to think of it, I'm not very coordinated...
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