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g1gg1e

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by g1gg1e

  1. g1gg1e
    I was at the celiac conference in Ohio last year. I lost my notes I',m looking for the study that followed those that tested + on the blood tests and had grade 2-3 damage . They split the group of grades 2-3 into gluten free and gluten. They followed up a few months later and those that had gone gluten-free had grade 1 scopes and the other group had grades...
  2. g1gg1e
    Make sure you ask for the FULL celiac panel to be run. Antibody and gene test. Hope you figure out what it could be. Also there is a dairy induced auto immune disorder like celiac ( the name escapes me right now) you could look into milk and or soy if formula has been the main source of food lately.
  3. g1gg1e
    If she is embarrassed Id call the other parents before the event ans have a heart to heart. Just tell them a little about celiac then ask them not to ask her if she wants anything because her feelings would be hurt. Try to make cupcakes or cake up before you go to parties...easier said then done though. It will get easier.
  4. g1gg1e
    Id try soy first 4 days off 24 hours back on 4 days off to figure out if its soy. Gluten 2 weeks off 1 day on 2 weeks off...soy an dairy often go hand and hand. I was dairy free / gluten free for a year oh what fun!
  5. g1gg1e
    We have a tiny kiddo here. Our ODD is really big for her age...we got the over feeding guilt trip with her and now with YDD its she isn't getting enough. The both eat health foods , can't keep them out of the garden! We don't eat allot of processed foods here because ODD has a dairy allergy...YDD has always eaten better then her larger sister as far a quantity...
  6. g1gg1e
    We are in the same boat with our two year old. We figured it out through breastfeeding that gluten was an issue. She grows now thats all we can ask for. I'm finding through my support group most kids are 10 before they get a + biopsy ( thats with sometimes even a family history) AND the kids have been sick often the whole time... We choose NOT to go on with...
  7. g1gg1e
    We have the same issue with family events...sometimes people like a reason to point out differences. If they ask a question about what she can eat Id give them a little celiac 101 info.... other then that ignore them and keep up the great work.
  8. g1gg1e
    Earth Balance is dairy and gluten free also tastes great. Ice cream - so delicious all of theirs are diary free and mostly gluten free...just read the label really well I think they are all gluten free ingredients. Cheese - that is a hard one...we "like toffuti brand cheese , sour cream and cream cheese...though its not like the real thing...not...
  9. g1gg1e
    Hope you Celiac screening makes the list. I'm glad the dentist drama is over for the most part.... I informed dentist #3 we had been to others before and to stay on my good side She helped me check the tooth paste for gluten ( it says its gluten free). She also does "happy" pills ( a.k.a valium) I feel much better about that then gas or putting her...
  10. g1gg1e
    https://www.celiac.com/gluten-free/index.ph...&pid=295970 Gluten passes unchanged and in high amounts. It is completely possible that your LO is reacting...that is how we figured out...even with the head of childrens saying no way....well read that buddy
  11. g1gg1e
    I'm looking at this one: Open Original Shared Link Its small enough for her wrist and looks friendly for a 2 yo. Any more suggestions or feedback?
  12. g1gg1e
    Well the paperwork came in the mail for dentist #3 and I already feel better about this one ( watch me eat my words ) it was addressed to my youngest and wanted more family history and habit info... so I stand by my feelings that dentist #2 was a he had a nice office in a fancy part of town but I guess that doesn't mean he is the most educated I...
  13. g1gg1e
    Well we have been to two dentists now. The first did not charge us and wanted to see Celiac teeth AND educate himself more. He referred us to a Ped dentisit ( #2). That one was not for us ( he kept saying her allergy was a "factor" , but that it was because she was eating to often etc. ) , He didn't know what Celiac was nor do I feel the urge to educate or...
  14. g1gg1e
    What have you bought? My 2yo is going to get one , Ive found a sports band for small kids to wear. Its the smallest I can find. We feel this will keep strangers from randomly handing her candy MAYBE and make people more aware in the family.
  15. g1gg1e
    Yeah....I haven't been in 10 + years...Ive never had a cavity or any issues LOL that would be a great place to start though. Every one that Ive talked to on the phone either had not ever seen a child with Celiacs OR my friends had said they have had there issues blamed on nursing , bad diet etc...the kid hardly ever has refined sugar , colorings , eat...
  16. g1gg1e
    I think there is confusion! From what I have read MSG is a possible contaminate: https://www.celiac.com/gluten-free/lofivers....php/t6100.html It seems SOME people have an issue with it and it should be considered. Wither validated by an official source does not mean that people don't have an issue with it. My Oldest does not get her DTaP vaccine...
  17. g1gg1e
    I found a holistic Dentist , he normally sees adults but said he would see her because of her condition Wish us luck!
  18. g1gg1e
    So that would mean that skin care products with Gluten are safe then and does not effect any other part of the body. Thanks for the correction it fixed my dyslexia
  19. g1gg1e
    Thanks OP for the info. Celiacs puts kids at a higher risk for reactions to vaccines , maybe this could be a reason that the vaccines listed have a high reaction rate? Don't we consider ingesting this a poison? Why would injecting it be any less?
  20. g1gg1e
    Hope things went well. Did you get anymore info? We found a Cavity on our Youngest ( who has Celiacs) and we are going to take her...I should have sooner but no cavities and just staining...Ive had all I can of getting support from Dr.'s so I was not in the mood for this fight... So what did you learn? My DD is 2
  21. g1gg1e
    One issue with our YDD is she has low enamel...we noticed last night ( at tooth inspection ) that she has a cavity on a molar. What do you look for in a pediatric dentist? Do you have any tips for going to one with a child with Celiacs?
  22. g1gg1e
    Can I have your kids Dr? LOL This was my YDD BUT we kept breastfeeding. I had an LC tell me to cut it out for 2 weeks and then test.WOW new baby! She wasnt making eye contact or acting normal before ( also FTT)...but after the elimination she was a normal baby. FF to age 2 we got a full celiac panel and she also has DQ2. Our GI Dr. is a !@# and wont...
  23. g1gg1e
    We are having an awful time getting through to our confrontational family members ( DH's parents) . Right now I'm going to show them Discovery channels medical mysteries ( like mother like son season 1) about celaics..to put the fear in them. We are though trying not to make this a big tado. We have had allot of gluten containing slip up ( last time...
  24. g1gg1e
    My youngest was about 4 months when we ( after our testing through ellimination) went gluten-free . she was close to weaning because she would not latch long or often , just scream and arch her back all day long. I fought hard and wont go into that but at 6 months she was nursing normal and often. her teeth are stained in the front from low enamel from gluten...
  25. g1gg1e
    Thanks for the info! OUr panel came back negative but the Gene test came back + . I told them that being gluten free ( I think the GI didnt think I really had her really gluten-free) that the test would not come back + other then the gene test. We worked vary hard and took gluten out vary early ( at age 12 weeks) because it was vary obvious that this was...
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