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OptimisticMom42

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  1. missy'smom is right. Most of the really healthy foods in this world are naturally gluten free. But the fun stuff is also out there in gluten/dairy free form.

    If you need more specific information for the "what will he eat" try making a menu and researching this site and others for specific ingredients to meals. It's not hard once you get started.

    Sunday

    chex

    banana

    almond milk

    Monday

    eggs

    rice cake

    strawberry jam

    juice

    Tuesday

    gluten free hot cereal

    diced apple/cinnimon

    almond milk

    maple syrup

    OK this is making me hungry. I'm off to make a Mondays breakfast and finish the laundry. Take care

  2. My son's blood test was negative. But the Dr prescribed a gluten free diet anyways based on family history and symptoms. He's not taking it very seriously and his body is punishing him for it. He's 18 so I can only point him in the right direction and hope for the best.

    I thought maltodextrin was safe here in the U.S. But like soy lecithin some people react to it and some don't.

  3. The article said the new information will help point the scientists to the next set of questions to ask. Mine would be..... Is there a difference in the level of risk if the mother has an active case of celiacs or carries the genes but has not been triggered yet? Is the risk lowered if the mother is gluten free during pregnancy?

    In this article they only spoke about children of mother's with celiacs. What about the fathers? Are the children of fathers with celiacs at a higher risk of autism. What if the father is gluten free for a period of time before conception? How long would that period of time have to be?

    Somedays I wish the whole world was gluten free.

  4. As your friends age they will also begin having restrictions. No salt, low fat, no sugar, unable to walk or stand for long periods, frequent trips to the restroom, sore backs, bad knees. We will all make accomodations because we still want to be together and not sit home alone. As long as you return the favor and accomodate their needs there really is no reason to feel odd.

    But for now if you want, you could just say, "I'm on a diet."

  5. Hi, I know you only needed one interview but I wanted make sure that you understand that the hard work that has been done by people like Ravenwoodglass has made life so much easier for those of us who came latter.

    1. How long did it take for you to realize you had the disease? How were you diagnosed?

    Within weeks of seeking a Dr's advise. A co-worker and fellow celiac recognised it first and the immunologist agreed after the use of an elimination diet and repeated DH rash on elbows and knees when exposed to gluten.

    2. Has living with the disease affected your family much?

    They know a lot more about nutrition and miss some of thier old favorites that I haven't replaced yet.

    3. Is it difficult to cope when you accidentally ingest gluten? Are the symptoms worse after being off gluten for a long while?

    It's uncomfortable but it's less scary now that I know what is happening and how to respond. I've only been gluten free for about four months but my responces to gluten are refining. I can tell now when I get a small amount before I make myself really ill.

    4. Are you able to enjoy many of the same restaurants, just different menu choices?

    For now I'm staying clear of restaurants because I am still identifying intolerances like corn.

    5. Is there anything positive that has resulted from having the disease?

    Yes, I found a new hobby. I'm fascinated by the mind, body, nutrition connection. I love looking all this stuff up and finding little gems of information like that taking vitamin D can help my sensitive nose tolerate perfume and that gluten can cross the brain blood barrier causing anything from funny smells to epilesy and mental illness. Each person who researches and discusses this with another person who researches and ......... it's a positive thing, we are saving lives.

    I would appreciate any help I can get.

    You're Welcome

  6. Thank you Freeda and Rondar for responding. I'm glad to hear that the word is getting out and that dr's are responding positively. It gives me hope that my son's illness will be recognised and treated appropriately should he ever be placed in a hospital or correctional setting again. No one should have to be mentally ill and have the runs!

    I worked as a guard for several years in an institution that housed over 500 inmates. I don't recall even one being on a gluten free diet. Statistically there should have been 4 or 5 at all times. The inmates who did receive special diets were given milk, bread, lunch meat and condiments before bed for acid reflux.

  7. Hi, the elimination diet my Dr. had me use was like this....

    Make yourself a very basic list of foods you think are safe for you. Eat from only that list for a week. If you're not feeling well you will have to rotate the foods on that list in and out of your diet until you have removed the offending food. After you are sure you have your safe list, begin bringing in other foods one at a time. You should only try one new food a week. Being impatient will only confuse things as it can take several days to recognise a mild reaction. If you react to a plant food research the entire plant family.

    You also have to keep in mind that sometimes you will be reacting to a process not the food. Like I don't tolerate smoked foods or vinegar because of my mold allergy. I react to celery seed with itchy eyelids. I do not react to celery stalks. I react to carrots and parships with blisters on the back of my head. I reacted to sweet potatoes on my last allergy test. Sweet potatoes and carrots are not in the same plant family but are both treated to keep them from sprouting roots while sitting in the store. So I may be able to eat home grown organtic carrots and sweet potatoes. I just haven't gotten to testing that one out yet.

    You are suppose to write all this down but I never have. I've been winging it for years. If you write it down maybe you won't still be doing this years from now.

    Hope this helps

  8. I've been gluten free since March, so about four months. Until the last couple weeks it felt like I really needed those healing naps on my days off and I was in bed at 9pm. Now I'm working 10 hour days and staying up until about 11pm. I'm still not planning fun things to do on my days off or jumping right into my chores like I need to but I'm awake.

  9. I would be really tired and hungry if I only ate what you described. I usually eat two eggs and a banana for breakfast. Apple, peanut butter, juice or almond milk for lunch. Afternoon snack of cereal or chips. Meat, veggie and rice or potato for supper. And I've lost 13lbs. If I wanted to lose more I would replace the banana with tomato, juice with water and the rice or potato with an extra helping of veggies.

  10. Adherance to the diet shouldn't be a problem. My son and I found that the less gluten we ingested (I never ingested it on purpose, he did) the stronger our reactions were to the gluten we did ingest. You'll want to do the elimination diet and a food log - what she ate/when/how much - and how she's feeling. It's just like when you started her on solids as an infant. Start with a menu of simple foods. Add a new food, take it out, bring it back. If she reacts badly to it, leave it out. It's not as hard or complicated as it sounds and because she is old enough to tell you how she's feeling you can add a new food every three days or so. Also if something doesn't work for her research the plant family. I'm allergic to everything in the celery family.

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