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The Fluffy Assassin

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Everything posted by The Fluffy Assassin

  1. The Fluffy Assassin
    I tell you what, if you start getting pins and needles in the hands and feet, go back on those vitamins, oat straw or not. (I still take the Aldi multivitamins; I'm not that confident that they're gluten, casein or soy free, but at least the listed ingredients are.) My appointment is for Friday, a good and bad thing. Obviously, I'd like to get things...
  2. The Fluffy Assassin
    Sure, I'm one. I'll be back momentarily with links to earlier SC threads, but here's the support group in Columbia: Open Original Shared Link Meetings are the third Monday of the month, this month the 21st, at 6:30. Every other month, including this one, the meeting is at Capital Senior Center, behind Maxcy Gregg Park in Columbia. The other months, the meetings...
  3. The Fluffy Assassin
    Hypo. Sorry, my mistake, the TSH number was high (7.310). The only other high readings were white blood cell count (or that's what I assume WBC Count is) at 12 and calcium at 10.3 (so apparently I'm doing better than ok finding substitutes for dairy). As I feared, there is ketone in my urine, but the number shown is 15, which apparently is low. Thanks...
  4. The Fluffy Assassin
    I've been posting a lot of fairly foolish stuff for months about what I thought might be causing my odd symptoms (light-headedness, flighty heart, pins and needles in hands and feet) and you all have been very pleasant and very patient about it all. In the last week, things got a lot worse, and I had about three nights in a row where when I went to bed I...
  5. The Fluffy Assassin
    Thanks. Then again, maybe the used ones would be best; I could pick my results. Thanks also for your replies, Ahorsesoul and missy'smom, and thanks in advance to anyone else who might reply. I probably won't be back to the thread until/unless I get a definitive answer from somebody in medicine, but here's a preliminary answer: After a couple of...
  6. The Fluffy Assassin
    Fasting blood sugar was 97, so whatever it is it isn't diabetes. I have a call in to the internalist I saw in 2001, and they're trying to resurrect my medical records from cold storage. The receptionist made fun of my own tendency to run to the Merck Manual Online at every turn (but nicely). I wonder what the Merck Manual entry for hypochondria says? Latest...
  7. The Fluffy Assassin
    Denial, as we all know, is not just a river in Egypt. Upon further reading, I find that it's hard, almost impossible, to trigger ketosis without almost totally giving up carbs, which I certainly have never done. So I'm back to diabetes, after one last pleasant day of denial. Will get a finger stick from my dad or another doctor first thing in the morning...
  8. The Fluffy Assassin
    After less than 24 hours eating less protein and more carbs (much more like an anti-diabetes diet than the accidental Atkins I was on) I feel vastly better. I think most of the problems I've had this summer were because I was starving. Pretty ironic as I was eating a good bit. Went over to my dad's for a blood sugar test, but forgot to drink enough...
  9. The Fluffy Assassin
    Thanks! I'm strongly leaning towards the idea that my second guess was the correct one, that being that I accidentally put myself on a low-carb high-protein diet. Felt better immediately when I started gobbling rice cakes without the peanut butter or hummus slathered on. (This is as the bread to go with my highly proteiny chicken stew; not just gobbling them...
  10. The Fluffy Assassin
    In my case, it meant that food was racing through me without getting digested particularly. I gave up fruit and dairy and the situation improved, but I suspect what really helped was adding in lots and lots of vegetables. Adding more fiber is almost always a good idea. For flatulence, you might buy Lactaid milk and see if that's better. If so, you're lactose...
  11. The Fluffy Assassin
    but there's celiac stuff, too. Open Original Shared Link Oddly, Downtown U. (sorry, the University of South Carolina) is the only library to serve all 50 states. They sent me a guide to eating for autism. As I say, it was mainly for parents of autistic kids and not so useful for an adult with Asperger's, but certainly better than nothing. They also send a...
  12. The Fluffy Assassin
    Thanks! My problem isn't the ingredients, which I mastered eventually by getting back to basics. My problem is meal planning. Today I've been going back and forth. This morning I was convinced that I just have to bite the bullet and accept that I'm diabetic. This afternoon I think it's more likely that in my highly-finite wisdom, I've managed to put myself...
  13. The Fluffy Assassin
    I can't seem to handle the ins and outs of diet and dietary supplements. Gluten-free was a breeze, but gluten-free casein-free soy-free low-sugar appears to be beyond my powers. I wonder if Docs-in-a-box can manage referrals to gastroenterologists or nutritionists. (I have no doctor nor insurance, but funds aren't a problem.)
  14. The Fluffy Assassin
    Those are fairly typical celiac disease symptoms. If you can't get a doctor's appointment soon you might want to try going gluten-free for a few days to see if it helps. Of course, you need to keep eating gluten to make sure the blood tests are accurate, so if you get an appointment in the very near future, stay on gluten. If you don't have a specific gastroenterologist...
  15. The Fluffy Assassin
    I eliminated dairy completely. Going gluten-free was a cakewalk--OK, a breeze by comparison. If you can have soy (whee, I eliminated that, too), Vegan Gourmet's mozzarella substitute is really very good slipped into lasagna. Not anything like mozzarella but vaguely like a mix of lasagna and ricotta, as in what you would put in lasagna anyway. But really...
  16. The Fluffy Assassin
    You may be a member of my tribe, people with Asperger's. It is recommended that we give up casein (ie all dairy) and soy as well. I just found that my almond milk has soy lecithin in it; this may explain transitory feelings of rage I get in the mornings (which are the only times I have the almond milk). In general, I agree with all the replies before...
  17. The Fluffy Assassin
    The standard answer for cramps is eat a banana, though this is more the "my mom" answer than the "my doctor" answer. Leg cramps at night could be a magnesium shortfall; I believe that's the cause of nighttime restless leg syndrome anyway. Here's the not terribly helpful suggestions from the Mayo Clinic: Open Original Shared Link Here's more info for one of...
  18. The Fluffy Assassin
    Mrs. Smith: The pins and needles I got from B12 depletion during the last 20 years of gluten eating wandered around. I'm having trouble getting a definitive answer (from medical sources that ought to be definitive) about pins and needles (or paresthesia, if you want to get all medical) in the hands and feet only . I've seen mention of B1, B5 and B6; eventually...
  19. The Fluffy Assassin
    I found out the hard way what "calcium and magnesium compete to be used in the body" means. Was taking Calcium-magnesium supplements and also eating a lot of nuts (which supply a lot of magnesium). I still had pins and needles sensations in my hands and sometimes feet. In the context of no dairy, that should mean I was still not taking in enough calcium,...
  20. The Fluffy Assassin
    If I'm reading this correctly, 4 years ago you were suffering from symptoms that might be from celiac disease, you were tested, and were diagnosed with celiac disease, though your pathologist was unsure. So you went gluten-free for three years, but the symptoms didn't improve. So you started a gluten challenge and... you have no symptoms? They didn't get...
  21. The Fluffy Assassin
    Vitamins B12 and D and minerals iron, calcium and magnesium are the ones celiacs usually need the most. A decent multivitamin is usually sufficient, though if you're avoiding dairy you'll need additional calcium/magnesium. I can't say definitively which vitamin brands are gluten-free. Most are, but you definitely need to check the ingredients. I noticed that...
  22. The Fluffy Assassin
    If you are celiac and you continue eating gluten you will die prematurely by 10 or 20 years in intense pain from intestinal cancer. You can of course get a second opinion from another gastroenterologist to confirm the diagnosis. Anyone telling you that if you aren't having symptoms then you don't have to bother with the diet doesn't know what they're talking...
  23. The Fluffy Assassin
    Yes. I quit gluten two years ago, but was still having periodic diarrhea (though the peeing out the butt thing had thankfully become rarer) until I gave up dairy and fruit a month or so ago. (Fruit I think was just because I was taking in vastly too much fruit juice for years at a time; I could probably reintroduce it but am a little gunshy, for reasons I...
  24. The Fluffy Assassin
    My B12 is the Earthfare house brand, but unless you live in the Carolinas this won't be very helpful. Any health food store should be able to help you. You just need a sublingual (ie, put it under the tongue and let it dissolve) tablet that's gluten free. She can take additional B12 no problem; there are no known side effects of too much B12. Open Original...
  25. The Fluffy Assassin
    As far as I know, that's just called indigestion. Possible causes, per the Mayo Clinic: Open Original Shared Link Many celiacs have trouble with dairy; might be something to think about. Indigestion (and insomnia) can be caused by anxiety. Celiac disease leads to vitamin B12 malabsorption, which in turn leads to anxiety. Sublingual B12 supplements can help...
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