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Karrin

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Karrin

  1. Karrin
    I was wondering if anyone has had a Jennie-O turkey recently or knows if they are gluten-free? It's on the menu tomorrow for Thanksgiving and I've not had much luck surfing their site. It's a regular frozen bird. They have everything else under the sun listed but their frozen poultry. Or I'm blind.
  2. Karrin
    I know how you feel in regards to feeling like a 'burden'. I went undiagnosed for years, nearly 5 of those I have been too sick too work and not knowing why. My poor husband has had to pick up all the slack and I feel awful about it. I'm very luck to have such an understanding man in my life. It can be extremely frustrating - the isolation and the complete...
  3. Karrin
    It seems quite possible you were glutened - maybe by the spices put on the chicken, many contain wheat to make them stick - or maybe from a contaminated surface or where it was cooked, a shared spatula etc. I've had similar experiences going out to eat, been fine once and the next time there was a different chef who perhaps wasn't as careful. Now, I like...
  4. Karrin
    I have had thyroid panels done and they are always normal. I'm thinking it could have been the lack of food absorption that was causing it. It's a relief to hear your husband's story. It sounds very similar to my own and I wish I'd heard it earlier. I think it's important to get the word out to those of us who are suffering without result from the diet...
  5. Karrin
    Thanks, I'm hoping so too. So far this seems to be doing the trick, but if things turn around again I will go in for that endoscopy without delay. I'm in constant contact with my doctor and he's keeping a close eye on me. My stool turned normal only a day or so after going on the prednisone and the terrible nausea I was experiencing has gone away too. I'm...
  6. Karrin
    I had a positive blood test for RA and celiac sprue - the only positive blood tests I have had. The reason I feel I have something more than these two, maybe refractory sprue, is due to my continuing digestive issues - which are now clearing up along with all my other problems with the prednisone. I have not had any endoscopies to verify this however, and...
  7. Karrin
    My only official diagnosises are celiac, ra, endometriosis and reynaulds. I do believe I have another autoimmune disease however. I was receiving no relief from the diet except in my first few weeks. My digestive symptoms were also atypical for me - before going gluten free I was chronically constipated and was inflated like a balloon. For me the prednisone...
  8. Karrin
    Oh it didn't at all and I didn't mean to imply you were in any way demonizing its use! My reply was a general one to anyone who might stumble upon this thread that is not feeling any relief. I think you are absolutely right to caution others and I was trying to do the same, but wanted to make sure they also understood that it had helped me tremendously and...
  9. Karrin
    I understand it is no ones intention to frighten me off this medication, but to educate. However, I do think anyone stumbling upon this thread that is not feeling any relief from the diet alone might read this and freak. I know I did after stumbling on some older threads on this site regarding prednisone. We read the side effects and think the worst. We...
  10. Karrin
    I'm curious about a few fertility studies I've stumbled upon online. My husband and I have been trying to get pregnant for 5 years, after going gluten free (blood test confirmed celiac disease) I unexpectedly conceived in June but miscarried (we'd given up it was possible). I've suspected in the past I was getting pregnant, but losing the pregnancies before...
  11. Karrin
    I was diagnosed with celiac sprue back in June and felt some relief after switching to the diet (yes I am very strict and I have ruled out CC's/other allergies). Many symptoms never went away completely - only sort of fade in and out -, and about September all my symptoms started coming back with a vengeance - minus the constipation and trapped gas which...
  12. Karrin
    I have had similar problems with family members not understanding the smallest drop of gluten hurts (despite every effort to explain I still get, 'oh just a bite of stuffing') - and that it hurts beyond an upset stomach, it absolutely debilitates me for weeks. They can't seem to wrap their heads around the fact it isn't an allergy let alone what an autoimmune...
  13. Karrin
    I've read a lot on it as well. There have been a few times inflamation was mentioned. My periods have always been clockwork - different than your situation. My husband and I had been trying for roughly 5 years to conceive and less than 2 weeks gluten free I discovered I was pregnant. I did end up miscarrying shortly afterward. But I do tend to agree with...
  14. Karrin
    How many years have you been trying to live a gluten-free life? Started June 2009 How often or many times do you think you've been hit with wheat? Probably once a month in small cc'd doses. Anyone been diagnosed with cancer, kidney or liver problems? Just got over a kidney infection. Have you ever said "what the hell" and just ate something you...
  15. Karrin
    I suspect I had a sensitivity to it through my teen years. I was lethargic a lot and had periods of time where I would gain a lot of weight and then suddenly my appetite would disappear and I'd drop it all, becoming a bit scary skinny. I had a lot of head fog too as well as bouts of constipation/diarrhea. I have enamel missing too that started in my teens...
  16. Karrin
    I used to get mucus in my stool as well, more so after I started the diet. My stool also seemed to soften a bit. I think it might have been due to a hemmoroid however, which has gone away over the months. I was chronically constipated before going gluten free and that is a contributing factor to hemmoroids. It might be worth checking? Hope she feels better...
  17. Karrin

    ARCHIVED Down

    Karrin replied to Karrin's topic in Coping with Celiac Disease

    I've never heard of checking for ferratin. I'll have to look into that. As for the rest I'm doing great today. I'll keep everyone's suggestions in mind though if the medicine I'm on doesn't do the trick.
  18. Karrin

    ARCHIVED Down

    Karrin replied to Karrin's topic in Coping with Celiac Disease

    Ugh, I know what you mean. I always can guess when I've accidently cc'd myself (I generally don't get GI symptoms anymore). I get so moody - crying one moment and the next ready to tear someone limb from limb. I also get creepy crawlies under my skin which makes it hard to rest - the traveling itch you just can't scratch! I was (I thought) in remission...
  19. Karrin

    ARCHIVED Down

    Karrin replied to Karrin's topic in Coping with Celiac Disease

    Thanks. I'm feeling a lot better today. I started the predizone yesterday morning. I woke up feeling wretched, pale yellow skin, rash, achy joints, sick to my stomach etc, etc, but around 4pm it was like someone had flipped a switch. I had energy and a clear head! I can hardly believe it worked so fast. I'm feeling great today too. I'm optimistically pessimistic...
  20. Karrin

    ARCHIVED Down

    Karrin posted a topic in Coping with Celiac Disease

    I was diagnosed with Celiac disease via blood work back in June, felt great for awhile, but am now back to how I felt before - if not worse. On top of celiac disease I've tested positive for RA. I also have endometriosis, reynaulds, and my rheumatologist and I are on the hunt - possibly for lupus. I've been feeling really overwhelmed. I stick to the diet...
  21. Karrin
    I have read that the wax coating they put on apples in the supermarkets can have gluten in them and to avoid eating them. I'm not sure if this is true or not, but since I don't dare buy from any place other than a local apple orchard I love. Once they're out of season though I'll really miss my apples! I also notice a coating of wax on turnips too,...
  22. Karrin
    Yes, they give you a big plastic container with everything minus the tortilla - in fact I think you tend to get more without because the bowl is quite large. I always have enough for at least two meals! I've gotten so I don't even miss the tortilla anymore.
  23. Karrin
    It's nice to stumble across this thread as I read often about people having the big 'd' and rarely do I see the constipation. I was like you, bouts of D at first, and scattered here and there throughout, but mostly years of constipation - I was lucky if a laxative would get me more than a little...rabbit pile, for lack of a better way to say it. I'm only...
  24. Karrin
    I've gone to a few different Qdobas and haven't been glutened yet, even though all but the one with a fellow celiac working there gave me the 'your what' look when I told them I couldn't have gluten. I'm so addicted to mexican food I don't know what I'd do without them as I absolutely despise cooking. Maybe my success is in that I always get the naked burrito...
  25. Karrin
    If there are any Qdobas around you they've been great to me (I need my mexican food fix)!! Just make sure if you get a corn tortilla that you don't get it steamed or pressed. They're regular chicken is safe, the lime rice, beans, salsa, guacamole, sour cream, cheese...that is generally what I have (naked burrito), but the girl who worked there, who just...
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