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seezee

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Everything posted by seezee

  1. seezee
    I live in Cambridge and work for Harvard and there are lots of places you can buy food, Shaws in Porter square has a gluten-free section lots of prepared gluten-free frozen/canned foods and is on the red line. (there's another Shaws on Beacon street which has nothing gluten-free though so go to the Porter Square one) There are also 3 or 4 whole foods...
  2. seezee
    I found this a while ago which I think might be helpful. Open Original Shared Link I know nothing about the laws in Canada. Is there a local chapter of Canadian Celiac Association. Open Original Shared Link you can call? Your requests seem very reasonable for a kindergartner. An internet search w/key words celiac and 504 would give you samples...
  3. seezee
    Phew. It sounds like your baby is getting better. It does take time to heal and we found out when my daughter was in fourth grade so babies probably get better faster.
  4. seezee
    We are planning a trip to Germany at the end of this month and have an apartment in Garching about 20 minute train ride from Munich. Any advice about restaurants and grocery stores near there? Any other useful tips. Thanks much,
  5. seezee
    There's a pretty good book by Dana Korn called Raising Our Celiac Kids that you may want to try. It sounds like they diagnosed your son and just sent you on your way. Where we go they have training by the nutritionist for the family on this. We took an hour long training where the nutritionist explained ways to have a shared kitchen or not, how to read...
  6. seezee
    There's a magazine called Living Without that has a lot of ideas for kids birthday parties and have resources on modifying recipes to replace dairy, eggs etc. Open Original Shared Link and recipes. They have a lot of menu ideas on their website. I think if it's your daughter's birthday you can have a tasty party with foods she can eat - just think meats...
  7. seezee
    There's also the added twist that most 10-year old girls are moody. I can never tell if it's regular 12-year-old hormones which they all seem to get or gluten.
  8. seezee
    It seems you have to convince your husband. Would it help to bring him to talk to the pediatric GI who made the diagnosis or the pediatrician? You know him best. What would convince him? I took my husband and father to the celiac class at Children's Hospital Boston. It was a pretty clear hour-long course that all of us took, my daughter included. I thought...
  9. seezee
    You can get most Hood stuff. (Open Original Shared Link) Most popsicle brand - Open Original Shared Link Italian Ice (Open Original Shared Link) I think that's what most of the ice cream trucks around here carry. Also, a lot of ice cream trucks will have ingredients for soft serve if you ask. I sent Hood an email about their softserve and it was...
  10. seezee
    Ankle pain is one symptom our pediatric GI always asks about when we check in with her. We had follow-ups every six months after my daughter was diagnosed, now just once a year. So, far no real ankle pain but the doctor said she would send us to see a rheumatologist if we did.
  11. seezee
    We like them too. They also have a facebook page you can 'like' if you use facebook. They post useful stuff Open Original Shared Link Also Glutenus Minimus is a good bakery if you need cupcakes etc. It's a nice place to bring your kid because he can pick out anything. S
  12. seezee
    My daughter was diagnosed at 10, 6/09. She didn't seem to have any problems until in January she got the flu and just didn't get entirely better. She started losing weight and was weak and tired. If you look at her growth chart it's completely smooth - she is in the same percentile every year (100% height, 50% weight) except for a big dip that year. Looking...
  13. seezee
    At whole foods my daughter usually gets a frozen entree and heats it up in the microwave. They have many gluten-free frozen entrees to choose from and there's a microwave in the cafe area.
  14. seezee
    Thanks so much for all the replies. You are all so helpful. I feel much better. I will talk to my mom. She is generally pretty good about all this stuff. All our family meals at her house are gluten-free and she is careful to not have things in her kitchen that would leave crumbs around. She has made mistakes not checking labels since she doesn't always...
  15. seezee
    My daughter, age 12, has celiac. Last night my mother and father took her to a seder at my cousin's house that I could not attend. She brought her own entree. When they got back both my mother and daughter were really upset with each other over a flourless chocolate cake that one of the guests brought. It was made from cocoa, chocolate, eggs, butter, and...
  16. seezee
    One other thought, Whole Foods will give you a gluten-free tour of the supermarket which can be quite helpful. Just ask at customer service. I think some other grocery stores do this too. You can also go to customer service and they'll help you figure out if somehing is gluten-free. My daughter like Ian's chicken nuggets the best. (but hates the tenders...
  17. seezee
    We usually keep a cooler with food and then buy beverages, fruit, and candy along the way. Most places you can get fruit, juice, milk etc. Sometimes I pack cereal in a disposable container and then we buy milk so it's cold. Many convenience stores have microwaves which we have used to heat up soup or amy's mac and cheese or etc. Once we got in trouble in...
  18. seezee
    This isn't a decision with a right or wrong answer. Trust your instincts or maybe try getting a second opinion from a specialist. From reading your question it seems that you already know what you want to do. By the way, my co-worker has a mother with celiac and he showed me this article today: Open Original Shared Link It's about non-celiac gluten...
  19. seezee
    Our next door neighbor's daughter had similar troubles at 3. She doesn't have celiac, but they diagnosed her with encopresis which they were able to help her with. I believe she saw a GI doctor for this.
  20. seezee
    Thanks so much for all the help. It made me feel better. I sent a note to the teacher running the potluck and then she gave me her home number and I called her and we talked about it today. She's going to let her opt out tomorrow - either by going to the library or doing some other thing that is special. She thought it might be a good idea to have someone...
  21. seezee
    I brought this up because next week they are taking their state MCAS exams, so as a "treat" they are having food before the test. The message asked for healthy snacks, but it different folks think muffins an donuts are "healthy". Then I got an email about an international celebration with a giant potluck and another message about an end of the year barbeque...
  22. seezee
    Does anyone have ideas or suggestions for classroom and school celebrations that aren't potluck, pizza party, or BBQs, etc. Any experiences suggesting these to your child's school? I feel like such a pain, but it seems really unfair that these are the main type of reward. It's just something my 12-year old endures. I think she would rather sit in detention...
  23. seezee
    Some shots contain egg like the flu shot but they warn you.
  24. seezee
    It seems reasonable to limit/prohibit anything airborne like wheat flour or oatmeal because that stays in the air for a long time and can make you sick since it settles on your food and on surfaces. Maybe you can explain it's kind of like second hand smoke to you? If you want to stay with baking with gluten, you can also ask parents to mix up the pancake...
  25. seezee
    Fighting with schools to get basic/simple things is the most frustrating and upsetting thing. We had just an awful time with my daughter's school the year after she was first diagnosed. She ended up switching schools. There's a pretty steep learning curve for some with celiac. They can read the stuff, nod their heads, but they just don't get it. It just...
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