pixiegirl

I'd certainly do the new therapy, once it was tested and proved to be totally effective, of course. I think they would be able to tell with endoscopy's if it really worked or if there was still intentinal damage.

Would I change my entire diet to a gluten one again... the answer to that is no, however I was not a huge bread eater/gluten eater before. But it would be nice to go to a restaurant and pop and pill and not have to worry about salad dressings and seasonings and such. I'm eating well now and happy with that but with all the travel I do it would certainly take a lot of the worry out of my life.

Susan

Hi Michelle,

I didn't use any more then a fully saturated q-tip with the 12 oz of warm water but I did really soak it and took it right from the tea tree bottle to the warm water so there may have been a drop on it at times and then swished it around.

It doesn't sting at all this way, it actually felt good. Again I used it 2 times a day for maybe 10 days or so then went to once a day. I think after 30 days or so I went to like every 3rd day for a few days then just stopped. I was really afraid that it was going to come back, I had hassled with it for so long and the medical community had totally thrown up their hands with me and just said, its drug resistant yeast and probably in a few years your body will fight it. A few years!!!! No way. I wasn't going to even entertain that idea, when I left the clinic I just cried and was at the point where I'd do anything.

This really worked for me. I love tea tree now too and use it in a variety of ways... seems to be good for just about anything. The only diet change I made while I was doing this was I stopped all sweets and sugar (as best I could but I did pretty well) I still ate fruit but not a lot of it. I'm sure I did get some sugar.... but I didn't eat sweets and stopped using it in my tea. I slowly went back to having some sugar again, I was so afraid that I'd get yeast again but its never come back.

Susan

Well to me the best gluten-free bread in the world is Manna by Anna, its a mix and you can just mix it up and bake it or put it in a bread machine. I've tried at least 15 different gluten-free breads and I felt just like you, they were terrible, I wouldn't even eat them. This is so different, its wonderful and doesn't stick to your teeth like many rice breads do (I'm not even sure it has rice flour in it). You can find it by doing a Google search for it.

Also if you have a Whole Foods market anywhere near you its worth going there. Mine has a whole section in the bakery of gluten-free bakery goods, many of them are excellent, but I will say in my opinion the breads have to be toasted to be really good (Manna by Anna does not). They have a cinnamon swirl gluten-free bread that is great. The store also has an entire gluten-free aisle, with cereals, cookies, chips all sorts of stuff. When I travel I take a bunch of snack bars with me there are a number of kinds that are gluten-free. Then in most airports I can get a fresh fruit salad or green salad and I have tea and a couple of the bars and I'm good till the next meal!

EnviroKids makes cereal and the health bars that are gluten-free and they are good (their bars as low calorie too). Laurabar (spelled wrong) is also gluten-free and they are more cakey like).

Hope this helps, I travel a lot and need easy to carry food.

Susan

Hmmm I'd be worried about the buttermilk, it contains a natural sugar and sugars feed yeast... do you know why that works?

I can relate my own yeast story. I had an almost constant yeast infection for 2 years.... I took so much dulfican it was awful. It helped and then it would come back a week later. My ob sent me to a clinic for drug resistant yeast... nothing they did helped. My very natural friend who is from CA (now lives near me) sent me to some crazy health practitioner, who I don't believe is licensed in anything. I was desperate.

She cured me... it took about a month. This is what I did, use at your own risk, I had no problems with it at all and it worked like a charm, this was 3 years ago and I've not had a single yeast problem since.

I bought a small d%$#@#$ kit (the one I got is tiny kit by faultless) they hold about 12 oz. I also had to buy orgainc Tea Tree oil (sold at all health food stores). This is how you do it:

fill up the bag with warm water (just stick it under the bathroom fawcet). Then take a q-tip and stick it in the tea tree oil. Then stick the q-tip with the tea tree oil in the d%$#@#$ bag and swish it around for about 20 seconds or so, so that little bit of tea tree oil comes off in the warm water. Put the nozzle on and use it. On the first day I did this I did take a dulfican (I thought that would jump start things) I started out with the tea tree d%$#@#$ twice a day for about 10 days and then once a day. After a few days I had already felt somewhat better and I never took the dulfican again. After a month I felt cured and stopped it. I've never had to do this again.

If you research tea tree oil its a natural astringent, anti bacterial, anti yeast, anti everything. Again I struggled with this problem for a long time and tried everything, this worked like a charm for me.

Susan

I hate to say I was severly glutend about a month ago and I'm not better yet, I still have the runs... I was fine before this.... sigh. I haven't really done much for it, I just now started Pepto (I get really sick with Imodium, it makes me feel drunk, dizzy vertigo, yuck) and its a bit better already. Once you've been gluten-free a while ingesting gluten can really do a number on you.

Susan

I'm not sure Clorox does any good! Certainly your countertops are sterlized but I don't believe it has any effect on gluten one way or another.

My household is easier to manage, its just my daughter and I... but at this point she is not gluten-free. I'm a neat person so that helps... I have my own cutting board and she has her's. I don't use any of the wooden utensils because she does. I stick with metal. I've certainly reduced the amount of gluten in our home, but she still eats it.

I just wipe before I cook/prepare. I wipe a lot, my kitchen is now a whole lot cleaner then it ever has been. I lecture my daughter over and over and now since she is sick of lecturing she is more careful with her gluten stuff. Anything that had gluten on it I rinse off really well before it goes in the dishwasher. I don't do hand washing, everything goes in the dishwasher.

I think I'm going ok with this, I'm quite sensitive to gluten and so far so good (sort of I got glutened a month ago on vacation and I'm still having some problems but prior to that all this was working!)

Susan

I was on the pill for over 20 years before I went off at 37 (and promptly got pregnant - 3 months later). I felt good when I went off of them, like I had a little extra energy. My periods got heavier (which they were prior to going on it) and I had a bit more cramping (which I had prior to the pill as well) but other then that I didn't have any problems at all.

I don't think you will have any problems at all.... I've never gone back on, I like being Rx free if I can....

Susan

Rob,

Thanks for the idea about New Morning... if it says no nuts thats fantastic! I'll look for it in Whole foods and/or Trader Joe's next time I go. Its really hard to be Celiac and no nuts...

As far as the Airedale... thats my dog Daisy and they are the very best dogs! Wonderful around kids and they can be real clowns!

thanks again, Susan (aka pixie)

Well that wouldn't be a huge issue for me... I never did eat junk (well on rare occasion) and thats what I still do, I've eaten healthy since I was young and that's how I like to eat so for me being able to be "cured" of Celiac would just allow me more freedom. I travel extensively and its very hard to get food on the run and in some of the areas I travel to that is gluten-free.

On friday I was stuck in Providence, RI airport for 7 hours... my flight was delayed due to weather and for some reason half the eating places were closed in the terminal (its a small airport) and there was nothing for me to eat there... I was lucky that I had a few health bars with me to munch on.

Life would just be easier to be non-Celiac. However I don't think if I could eat pizza or bread that I'd go out and eat them every day. I eat them now, very occasionaly, as a Celiac (gluten-free pizza and bread of course) and thats what I did before.

Susan

I like EnviroKids but my daughter can't have it, its processed in a plant with peanuts and tree nuts, as are most of the above cereals. Darn this is hard to have peanut and nut issues and try and go gluten-free.

Susan

The problem with the health food ones is that almost all of them contain nuts or were made in a factory that uses nuts. My daughter is deathly allergic.

susan

Are there any mainstream cereals that are gluten-free, like Kellogs or Post, how about rice krispies, or kix?

Thanks... Susan

What a disappointment. You can e-mail them about this right here:

Open Original Shared Link

I hope a lot of us do contact them and let them know what a bummer this is.

susan

I support stem cell research but totally understand that we all get to make our own choices about what is "right" and that there are people who don't think stem cell research is. However... I think a lot of people don't totally understand it or where it comes from (a variety of sources). My boyfriend was against it but hadn't really read much about it, just what he got from the mainstream media.

I asked him to look into it further... I didn't even send him links to read because I felt that would be weighing the issue in my favor, I just asked him please to do more research before he really decided. He did and he was shocked at how much different it is then he thought. He's now in favor of certain sorts of stem research. I really hope everyone does some serious homework before they decide about such an important and far reaching issue.

I too have a family member that could be helped perhaps by stem cell discoveries and I'd never be against something that could save his life. In our modern lives we play "god" every single day and its difficult to decide which god role is acceptable and which isn't. Many of the modern medical techniques that we use every single day in hospitals just 50 years ago would have been called playing god.

Personally, with issues like this (ones that could be considered "god" playing) I am almost always for them, because I don't have a direct line to god I truly don't really know what he wants, therefore, I feel its up to each individual to decide. Yes I'm sure I have my limits but they are pretty far reaching thats for sure... I may not choose to do every medical discovery or advancement we make, but I refuse to take that right away for you. You get to pick, I'm not putting my morality on anyone, its mine, you decide yours.

Just my opinion. Oh and to relate this to Celiac, personally if they came up with a stem cell cure for it, I'd be in line to get it.

Susan

Keep in mind that many rice pilaf's contain orzo which is a pasta shaped like rice, and they all have seasonings I'd be afraid of. I eat plain white rice and I ask if its cooked in chicken broth or water. If its cooked in chicken broth I have the baked potato.

susan

Manna by Anna bread mix is found here:

Open Original Shared Link

Susan

When I was new to gluten-free I posted on a few different boards... I wanted as much info as I could get.... and fast! On some of those boards I got some curt answers to my questions.. I had one person tell me to do research before coming on the board so I'd know what I was talking about! Here I thought thats what I was doing by posting!! (I'm not on that board any more).

I may have insulted people with my questions but I didn't know any better... example: I questioned if I really had to throw away my shampoo with wheat in it and wow did I get blasted for that. I wasn't trying to "diss" anyone or cause trouble, I was just trying to figure this all out. In some cases I honestly felt like I wasn't welcome until I was as "Celiac savvy" as they were. Well, that takes time.

And if some "trolls" come on the board just to cause trouble, it doesn't take long to figure that out (almost all message boards have one or two of them) and who they are... either way, I won't argue with them but I'd still answer their questions as nicely as possible...

As I said once before people make stupid and/or bad decisions all the time and there is nothing we can do about it, so if someone does decide to cheat on their gluten-free diet... thats their business, I'm not sure why someone else should feel insulted. We all make our own decisions and we all have to live with what we decide.

Best to everyone...

Susan

Right now I'm not testing her because she is mostly gluten-free at home and she has flatly told me that she is not going gluten-free right now... period. She has very few symptoms so there is no motivation for her to do so. I know people are going to say I should "make" her, she is only 13 I have the ability to "make" her but quite frankly I don't have that ability, she chooses her own food at lunch and at friends houses, t the movies, at the mall, and she says she eating what she wants to right now. At 13 its hard to explain to her how important it is.... because she has no symptoms. She says to me, you waited to go gluten-free until you were older and I will too.

I may ask her doctor to run some tests but I just don't feel at this point she will adhere to a gluten-free diet. It would be interesting to see if she came up Celiac because neither my mom or I did, our blood tests were all negative. I went gluten-free after my blood test and for the first time in 13 years I don't have the runs or digestive problems. I followed it up with testing from EntroLab which was positive and I have the DQ8 genes for Celiac.

My mom was the same way, blood tests all negative but after I had my DNA tested she went on a gluten-free diet and all of her life long digestive problems are magically gone.

Susan

I don't do well on Pamela's cookies either, I have bloating problems.... I'm not sure what it is in them..... but it doesn't agree with me so I just avoid them. The shortbread cookies were good too, however if I remember correctly the calorie content of them was outragous!

I have Celiac and we recently found out my mom does too and I'm sort of thinking my daughter is... however she has a life threatening allergy to peanuts and tree nuts and I've noticed that many gluten-free products are made in places with peanuts, most of the breads, cereals, power bars... everything has nuts or is made in a place with nuts... She is only 13 and hesitates to go gluten-free (she does eat mostly gluten-free at home because of me) there is so little prepared food she can eat. And she's a kid, she wants some prepared food. Oh well... my rant for today.

Susan

D every single day for 13 years often so bad I could not leave the house. Now... no D except when I'm accidently glutened... then I have D for a good 3 weeks.

Oh also I'm lean-ish but certainly of normal weight... not skinny or heavy.

Susan

I've used only Annie's salad dressings for a while now... however what bothers me about this thread is that Unilever is on the list of companies that report every thing in their products, supposedly we could trust their labels. It makes me wonder who else is on that list and can't be trusted.

Susan

the only gluten-free bread I will eat is Manna by Anna, you have to make it and I do it right in my old bread machine, my mom just uses a loaf pan in the oven. It looks and tastes like wheat bread, its fantastic.

susan

I have huge problems with chemical sunscreens on my face, I just can't use them, I break out in a huge red rash every single time, regardless of the brand, I can however use them on my body its above my shoulders that is really sensitive.

The only kind i can use on my face are physical blocks, zinc oxide and titanium oxide.. there are a few companies that make them with no chemical blocks... the only bad thing about physical blocks is the give your face a white sheen. Not quite like straight zinc oxide but slightly.

The one I'm using right now I love, I think I got it at Sephora... its DDF brand their Organic Sunblock spf 30. It doesn't make you too white, it works and I don't get the rash at all. Might be worth a try.

Susan

I would never cheat either, I just get too darn sick but I have glutened myself accidently a few times, its no fun!

I was new to this board sometime back last fall and I asked all the typical questions but so many answered me so nicely that I felt comfortable here. In truth when I first went gluten-free I thought that maybe once a year, I would break down and have a Sweet Tomatoes pizza.... well I've never done that nor would I consider it mostly because the kind people here have educated me so well and so patiently.

As far as the people who know the score and still cheat, we each have to make our own decisions in life... you know, people choose all the time to do the wrong thing... to do drugs, to drink too much, to eat to much, they don't exercise... I'm sorry they make those decisions but I can't change them. All I really can control is my feelings.... I don't like what they do but I'm not going to get in a twist about it. I make a conscious effort to lead a calm, stress free life.

As far as you needing to vent? This is a good place to do it, we are all in the same boat and I'm sure a lot of us understand your frustration.

Best, Susan

Manna by Anna bread... so good.

Susan