pixiegirl

Cape Cod, MA

Susan

Oh thank you so much for that info... I'm trying so hard to keep gluten free, its not so easy. I have been almost gluten free for 3 weeks, I was out shopping with my daughter at our local mall and needed food, so we went to McDonalds and I got a salad with grilled chicken, the dressing was Newman's Own and I knew that was gluten free. So I ate it, within an hour my stomach was rumbling and I felt terrible. I went to the McDonalds web site and sure enough, even though the salad doesn't have crutons it says it contains wheat... in a salad! So I'm getting the message just after 3 weeks how hard it is to eat outside your home.

The cruise really has me worried, we have notified the cruise line and I'm hoping it goes well. This is my 4th cruise (I just found out I was gluten sensitive so I didn't have this issue with the other cruises) and when I took my first cruise it was a big family thing and I "knew" it was the sort of vacation I'd never take again, I was not the cruising type. Like I said that was a few cruises ago! Its not my favorite vacation but its a great way to unwind and relax. this one is on a far smaller boat then last year. 3000 people vs 250. Should be fun!

Thanks again, susan

I just wanted to say hi. I'm sure you all have stories to tell in getting diagnosed and here is mine. I've had stomach problems and diarrhea for 8 years. I've seen my doctor a few times for them and first it was a lactose intolerance (which I'm not sure I have) and then he finally decided I have ibs. Two weeks ago he ran some blood tests for celiac and they came back "normal" and he said I don't have it. However..... when he mentioned that we were testing for celiac disease I went on the internet and read about it and immediately went gluten-free.

By the time the tests came back all my symptoms were gone, no diarrhea, no noisy stomach, and I'm eating milk products with no symptoms (which is why I don't think I'm lactose intolerant). When I told my doctor this he said, go back on gluten products it has nothing to do with it. Well, two days ago I mistakenly ate a little bit of gluten and my belly was all upset again (along with other symptoms).

I'm going to get some further testing at that Entrolab in Tx. and see what they can tell me but for now this is where I stand, my Dr. won't even give me a referral to another doctor (i'm in an HMO and can't see anyone with his referral) as he said based on this one blood test, that I'm fine and that its in my head. (wrong end!)

Its frustrating but I know that the gluten is not working for me.

I'm a single mom on Cape Cod (not a lot of doctors) and I just thought I'd say hi and that I look forward to learning a lot more about this.

Susan

Hi I just wanted to say that I do the carb. Addict's diet too. I've been on it for 2 weeks and have lost 5 pounds. I went on it because a friend of mine lost 35 pounds on it and has been on it for the better part of 3 years. He doesn't crave carbs at all now.

And for me the same thing has happened, I do eat carbs at my reward meal but I don't crave them all day long. So far I really like it.

Susan

I'm taking a cruise at Christmas, has anyone done this and what sort of changes, if any, did the cruise line make for you.

I'm going on Windstar and it says on their web site that they will accomodate special diets if notified 30 days ahead of time (which we have done) I was curious if anyone has done this and what sort of changes they made.

thanks, susan

Hi I'm new here to (I'll introduce myself soon) and I'm not even officially diagnosed as celiac disease but I'm certainly really gluten sensitive. Anyhow, this is all new to me but... I wouldn't ask my boyfriend to be gluten-free, if he decided to go that way fine but I can't imagine why he would.

I personally need his emotional support and he gives me that in spades but I don't need him to do what I do. Just like if I was diabetic he wouldn't be taking insulin because I do. We both love to eat and breads were a favorite of ours I'd never want him to give them up. I have a disease and he doesn't need to pretend to have it too, it's no fun having it. Again I'm not saying anything about those of you that have spouses that also gave up gluten, that was there choice. I'm really big on running my own life and not running the lives of others.

My daughter has a life threatening peanut nut and tree nut allergy and I still eat peanut butter (but only on toast when she is at school, but its in the house). She is 13 and I can't stress how careful we are. When she was 1 she had her initial reaction to peanuts and since then we have never had a single reaction when she was with me or my ex husband, not one, so again we are careful. She has had them at school (a whole nother issue all together!) but that seems behind us now as well.

I guess each person and each family does what works best for them.

Best, susan