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Latest Celiac Disease News & Research:
Everything posted by Lynayah
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ARCHIVED Anyone Here Use Knitting To Help Cope With Celiac And Gluten Sensitivities?
Lynayah replied to Lynayah's topic in Coping with Celiac Disease
Because I took up knitting after being diagnosed, I can definitely say it helped me cope with going gluten free. Before being diagnosed, I could eat anything and everything (or so I thought). I had lost over 100 pounds (not easy, I'm not one of those skinny gluten free gals) and learned to keep it off. I'm super, super sensitive and found I... -
ARCHIVED Anyone Here Use Knitting To Help Cope With Celiac And Gluten Sensitivities?
Lynayah replied to Lynayah's topic in Coping with Celiac Disease
Oooooh, I'm envious! I want to learn to spin eventually. Do you use a wheel? Has spinning helped you cope with living a gluten-free lifestyle? -
Peter, I agree with your wisdom. Any time I have a prescription OR any time I buy over the counter meds, the pharmacist has been able to help me make sure it is gluten-free. There is also glutenfreedrugs.com, but I prefer checking with a pharmacist in addition to useing glutenfreedrugs -- that way, I'm making double sure I'm getting the most up to date...
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ARCHIVED Anyone Here Use Knitting To Help Cope With Celiac And Gluten Sensitivities?
Lynayah posted a topic in Coping with Celiac Disease
Do you knit to help cope with a gluten-free lifestyle? -
ARCHIVED Certified Gluten Free Dry Beans: Found!
Lynayah replied to Lynayah's topic in Gluten-Free Foods, Products, Shopping & Medications
Sorry everyone for my typo! The title line of this post should read DRY beans, not dru. Augh. I cannot figure out how to edit the title line. -- PS: Like magic, Peter saw this and fixed the title. Apparently, only a moderator can do it. Thank you, Peter! -
Sorry -- I am not sure what you mean about what gliadin test I had. As far as I know, there is only one that tests for the level of gliadin in the blood. For the information regarding IGA vs. IGG I would recommend you look at Dr. Stephan Wangen's book Healthier Without Wheat. Pay particular attention to page 111 (paperback version) that gives a chart...
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ARCHIVED Dry Beans
Lynayah replied to olygirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Whoo-hoo! Good to know. Thank you. -
ARCHIVED Certified Gluten Free Dry Beans: Found!
Lynayah posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Hi, Everyone: I posted this in an old, old thread that discusses dry beans. I am posting this under a new thread because those who tap into the old one might give up reading and miss this new info I discovered today, which may be important to those of you who, like me, are so highly sensitive to gluten that most store-bought dry beans cause a reaction... -
ARCHIVED Dry Beans
Lynayah replied to olygirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Everyone: Here is another source of gluten free dry beans -- just found it today. Their website shows the beans as being CERTIFIED gluten free, too. It is a website called NutsOnline. Open Original Shared Link The above link takes you to the beans that are certified gluten free -- be careful, they sell other varities of beans, which may not... -
ARCHIVED Dry Beans
Lynayah replied to olygirl's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't tried the Rio Zapes -- I'll have to order some next time! Thanks. -
ARCHIVED Dry Beans
Lynayah replied to olygirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Update: I recently tried Rancho Gordo's flageolet beans, and they are excellent. They are a creamy, buttery, whitish color bean -- I'm addicted to them. -
My latest gliadin test results are back. I'm happy to report that my gliadin has dropped from 88 to 78! Whoo-hoo! The goal is to get it under 20. I am told this can take time for someone over 50 like myself. I'm healing slowly but surely. All the dedication is paying off!
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Darn, I remember the doctor talking to me about the older -vs- newer test -- I believe I've had both, but I am not sure. I remember there was one she used because, if I'm remembering this correctly, one is better if taking a look at gluten intolerance as opposed to celiac only . . . but I'll have to check on this. I have to call U of C in September for...
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Update: I had another check-up last week. Vitamin levels are good. I'm still waiting on gliadin results and will post them when I know. I asked about my DQ, and I am a double DQ6. I remember reading somewhere that those with double DQ6 are perhaps more prone to neuropathy, which has certainly been true with me. I treat my gluten-intolerance as seriously...
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ARCHIVED Everyone Eats While I Watch: Your Honesty Needed, Please
Lynayah replied to Lynayah's topic in Coping with Celiac Disease
Thank you! Check out my post No. 27 for an update! : ) You may have missed it. -
ARCHIVED Something Really Scary Has Happened
Lynayah replied to masterjen's topic in Coping with Celiac Disease
Masterjen: I have been out of town and just found this thread. I just wanted to add that you are in my prayers and best thoughts. Thank you for posting all you are going through. I -- all of us -- look forward to hearing every update. Sending love. -
ARCHIVED Then Last Item With Gluten You Ate...
Lynayah replied to VegasCeliacBuckeye's topic in Introduce Yourself / Share Stuff
I wonder how many others have experienced similar situations: Healed . . . screw up . . . everhthing is fine . . . but when you try it again, WHAM! I would love to know. I agree: I wouldn't put gluten in my mouth for anything. Nothing tastes as good as being healthy feels. -
You are in my best thoughts, and I look forward to hearing how things are going for you. Hang in there. You have so much good to give the world . . . the better you feel, the more good you can give to others. : )
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WHAT A WONDERFUL POST!
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ARCHIVED Everyone Eats While I Watch: Your Honesty Needed, Please
Lynayah replied to Lynayah's topic in Coping with Celiac Disease
Wow -- all of the replies here have been so thoughtful AND helpful! I'll add a longer post later (just got back from vacation), but I wanted to thank all of you right away. Here's a short update: Hubby and daughter were VERY supportive -- more later. As it turned out, the restaurant in question (which is a road-side, Food Channel "Drive-In,... -
ARCHIVED Does Anyone Else Get Sick Of Foods Easily?
Lynayah replied to KevinG's topic in Coping with Celiac Disease
What a wonderful post! Thank you for reminding us all of the importance of being on "the other side." What foods do you eat? What works for you? -
ARCHIVED Everyone Eats While I Watch: Your Honesty Needed, Please
Lynayah posted a topic in Coping with Celiac Disease
I need everyone to be very honest with me. I need to know if the way I am feeling right now is selfish of me or not . . . My husband and I are going on vacation to be with our daughter. Today, hubby told me that he and our daughter might want to go to a very special restaurant where I can eat nothing safely. I told him that it would be wonderful if... -
ARCHIVED Traveling To Santa Fe, New Mexico
Lynayah replied to CaraLouise's topic in Traveling with Celiac Disease
Hi, I'm going to Sante Fe next week. Are there any other restaurants that have gluten free menus? I am particularly interested in finding gluten-friendly restaurants within walking distance of the old, historic shopping district. Thank you so much for any assistance!