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Latest Celiac Disease News & Research:
Everything posted by Lynayah
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ARCHIVED Any One Here Have Foot Pain When They Eat Gluten?
Lynayah posted a topic in Coping with Celiac Disease
Has anyone here suffered from foot pain that improved once going gluten free? What were your symptoms and how long did it take to improve? -
ARCHIVED What Are Your "glutened" Symptoms?
Lynayah replied to LauraZ's topic in Coping with Celiac Disease
Welcome to the forum, Ben. Before you know it, you'll be posting like crazy. Are you seeking further medical advice? Not sure, but it sounds as though you may need to talk to someone who knows enough about Celiac and gluten-intolorance to really help you. Also, it really helped me when I went to the library and read books about Celiac and... -
ARCHIVED What Are Your "glutened" Symptoms?
Lynayah replied to LauraZ's topic in Coping with Celiac Disease
Just wanted to say again: I am so glad you posted this! Now that my biopsy is over (still waiting for results), I'm eating gluten free again, and I am excited to see if it will help my sinus problems, too. -
ARCHIVED Gluten Challenge: Symptoms Improve?
Lynayah replied to Lynayah's topic in Coping with Celiac Disease
This is going to be a long one . . . Thank you for posting this. Yes, I do, too. I just posted in another reply that when I am gluten-free, even a little gluten throws me to the moom. However, when having to force myself to eat gluten for a prolonged period of time . . . at the very end of all those weeks of my gluten challenge ... -
ARCHIVED Gluten Challenge: Symptoms Improve?
Lynayah replied to Lynayah's topic in Coping with Celiac Disease
That happened to me. Before I realized I needed to be tested, I had a few true gluten-free weeks (where I finally learned about the hidden gluten in food) . . . but I still had a lot of learning to do, and I accidentally ingested gluten twice. Both times, my body exploded -- it was a much stronger reaction than I had had previously . . . and previously... -
ARCHIVED Gluten Challenge: Symptoms Improve?
Lynayah replied to Lynayah's topic in Coping with Celiac Disease
How did your test go? Thank you for asking about mine. I had my endoscopy and biopsy on Monday and am still waiting on the results. I went gluten-free THE MINUTE the test was over and am feeling better all ready, psychologically as well as physically. I've never been so happy to leave a food behind. Good riddance! -
ARCHIVED What Are Your "glutened" Symptoms?
Lynayah replied to LauraZ's topic in Coping with Celiac Disease
Jillian, thank you! I hope others with sinus infections will post their thoughs. I am so glad to know I am not alone. -
ARCHIVED What Are Your "glutened" Symptoms?
Lynayah replied to LauraZ's topic in Coping with Celiac Disease
Even if I eat a small amount of low calorie, low fat food, if there's gluten in it, I feel bloated and I get the same feeling I get when I overeat -- similar to that "uh-oh, I feel like I'm putting on weight" feeling that I get when I blow it on a weight loss diet. Stuffy, hot, cranky, tired. Sometimes my nose runs. I will feel a slight heavy pressure... -
Now that I've been on a gluten challenge for over six weeks (prep for my celiac test), my symptoms have started to improve what's with this? I seem to be able to eat more gluten without getting as strong of a reaction. Is this common for some?
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ARCHIVED Please Help Me Get Through This Weekend
Lynayah replied to Lynayah's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you, Jerseyangel! Here's a note for those reading this thread who may have to go through the same thing: Amazingly, the laxative has been fine -- no problems, and not really any changes (and they say I have a lot to clean out). Without the Immodium, it is knowing I need a bathroom close by if I eat gluten, but I haven't had any other... -
ARCHIVED Please Help Me Get Through This Weekend
Lynayah replied to Lynayah's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
As I found out this morning, it is, it is, it is! That's why I was so tanked up on Immodium! I couldn't do the gluten challenge with out it, well, unless I wanted to carry a wardrobe with me everywhere! Thanks for the words of support. -
ARCHIVED Great Gluten-free Info From Disney World
Lynayah posted a topic in Coping with Celiac Disease
Hi, Everyone: I'm sure this has been posted here before, but as an update I'd like to tell you about my experience with planning a gluten-free Disney World vacation. My husband and I go to Disney in October. (I am the one who needs gluten-free.) I called for dining reservations 90 days prior, as is recommended, and I let the reservation desk know... -
ARCHIVED Please Help Me Get Through This Weekend
Lynayah replied to Lynayah's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Luv ya, Happygirl! Thanks for the support. -
ARCHIVED Getting Tested - Negative, But Suffering!
Lynayah replied to ouchystomach's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
From what I've learned, you absolutely MUST eat gluten for at least six weeks to get a proper diagnosis. I totally understand how you feel about not wanting to eat gluten. I've had to do it for the last six weeks so I can test, and it's not easy . . . but it is what it is. No fun, but necessary. -
ARCHIVED Please Help Me Get Through This Weekend
Lynayah posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, Please help me get through the weekend? I go in for my endoscopy/biopsy on Monday. In the meantime, I am told my Deamidated Gliadin is high (86) but my antibody inflamation is low (less than 9). I spoke with the office to get the results, not the Doc., so I'm unsure how to interpret this. Might anyone offer some thoughts? In the meantime... -
ARCHIVED Deamidated Gliadin High But Antibody Inflamation Low?
Lynayah posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
reposted under "Please Help Me Get Through This Weekend" -
ARCHIVED Finally Got An Article Written About Awareness W/my Dd!
Lynayah replied to kbdy's topic in Publications & Publicity
You ROCK!!!!! -
Thank you so much for this post. I, too, didn't know about the flex spending option. I don't know if mine will cover it, but it's worth a check. This was an excellent article.
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ARCHIVED Joint Pain Five Months After Diagnosis
Lynayah replied to RoseL's topic in Parents, Friends and Loved Ones of Celiacs
The weight gain alone could be causing it. Adjusting to carrying around more weight can put stress on joints, back, etc. Vit. D deficiency -- he might want to ask to have this checked. I was seriously depleted of D and my joint pain was HORRIBLE. I also became very weak and tired. Note: Do not self-diagnose this one -- it is important to not take... -
ARCHIVED Feel Like A Yo-yo
Lynayah replied to KathiSharpe's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Tobasco, You might enjoy reading Jillian Michael's Master Your Metabolism: The 3 Diet Secrets to Naturally Balancing Your Hormones for a Hot and Healthy Body. It addresses some of the issues you mention. -
ARCHIVED Can't Get A Diagnosis! Frustrated!
Lynayah replied to nu-to-no-glu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ravenwoodglass: Wonderful words of wisdom, as always, from you. You -- and so many others here -- are such a blessing to this forum. It makes me think that all your years of suffering were not completely in vain -- not sure if that counts as a silver lining or not, but for those you've gone on to help from all you learned in your hardships, it certainly... -
ARCHIVED Can't Get A Diagnosis! Frustrated!
Lynayah replied to nu-to-no-glu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In my case, I have a horrible time losing weight when I eat gluten, and I have diarrhea as well as bowel incontenence. Just want to say thank you for all the posts here. I am going for my second opinion tests this week and I am actually living in fear of the tests coming back negative. I have horrible bowel incontenence and loose stools shortly after... -
ARCHIVED Bowel Incontinence
Lynayah replied to Lynayah's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've since talked with others who have the same problem. We're sooooooo not alone. Problem is, we never want to talk about it, so it goes hidden. I'm so glad for the responses to this post. Thanks again. -
ARCHIVED Gluten Free In Chicago
Lynayah replied to Lawspike's topic in Traveling with Celiac Disease
I found this: Open Original Shared Link You'll find a nice selection to get you started. Weber Grill is one of them -- it is indeed a wonderful restaurant. I haven't been there gluten-free yet, and I'm happy to see here that they're Celiac friendly. -
ARCHIVED Where On Forum Page Can I Find My Subscribed Threads?
Lynayah replied to Lynayah's topic in Board/Forum Technical Help
Thank you!