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Latest Celiac Disease News & Research:
Everything posted by Lynayah
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Excellent point, Archie_P. Whenever I watch the Food Network, I always wonder which celebrity chef will be the first to be diagnosed with it . . . or if maybe one or two already have been diagnosed but are living in denial or aren't talking about it. Whoever steps up first will be my hero--Food Network or otherwise (although a celebrity chef would be...
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Especially considering that man was made to eat a gluten-free diet. Thank you for posting this, psawyer.
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ARCHIVED Disability ?
Lynayah replied to beksmom's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you for posting this -- I hope your question will receive many replies. I'll be watching! I have an interest in this from an HR perspective. -
ARCHIVED Should I Get More Strict?
Lynayah replied to Roda's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I so get it. What a crazy life we lead, yes? I cling to the belief that everything happens for a reason. I must believe that my going through this is for the best, even if I do not understand all the reasons why right now. Every night, I send hope that others will learn from my mistakes. Somehow, that makes it all okay -- at least a little... -
ARCHIVED New And Questioning Decision
Lynayah replied to shepgs's topic in Coping with Celiac Disease
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ARCHIVED Should I Get More Strict?
Lynayah replied to Roda's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It can be hell, no two ways about it. I'm still going through it. Last weekend, hubby and I cooked together, and I couldn't believe how many times I had to remind him how not to cross contaminate things. He doesn't mean to do things wrong--he really cares! Yet, years of doing things the "other way" make it difficult for him to get it. Example:... -
ARCHIVED New And Questioning Decision
Lynayah replied to shepgs's topic in Coping with Celiac Disease
I can't wait to try it! -
ARCHIVED Friend Says She's In Remission?
Lynayah replied to KSLMom's topic in Parents, Friends and Loved Ones of Celiacs
Excellent post, Squirrelflight. Thank you -- I hope your post will help many others, which means your lesson has a reason. I am sorry you had to find out the hard way that you needed to stay gluten-free. Medical science has soooooo much to learn where we're concerned. How wonderful it would have been if someone knew how to counsel you appropriately... -
ARCHIVED New And Questioning Decision
Lynayah replied to shepgs's topic in Coping with Celiac Disease
Like you, I still can't believe how much better I feel now. I was sinking and in horrible, HORRIBLE pain to the point of barely being able to walk, plus countless neurological issues. I have little doubt that if I hadn't finally received a correct diagnosis, I might have been told I had MS. No one could figure out what the heck was the matter with me. -
ARCHIVED Should I Get More Strict?
Lynayah replied to Roda's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Roda, you ROCK! Keep up the good work! Please keep keeping us advised. Many others here are going to learn from all you post. Everything you are going through will not be in vain. You are a blessing. -
ARCHIVED How Should I Handle This In The Future?
Lynayah replied to BigDogz's topic in Coping with Celiac Disease
Guinness: I know how you feel! I've only had it a couple times in my life, but I miss it so much. -
ARCHIVED Having Good Luck With Real Foods Corn Thins
Lynayah replied to Lynayah's topic in Gluten-Free Foods, Products, Shopping & Medications
Wow, great info! Thanks, Mr.! -
ARCHIVED New And Questioning Decision
Lynayah replied to shepgs's topic in Coping with Celiac Disease
Hi, Jamie: A lot of folks think that gluten-intolerance is just a little thing compared to celiac, or they may think that celiac is something separate from gluten-intolerance, but it is not. Celiac disease is a form of gluten-intolerance. Celiac IS gluten-intolerance (but gluten-intolerance isn't always celiac disease). As stated in the book Healthier... -
ARCHIVED Finding Celiac Really Hard To Live With
Lynayah replied to EllieR's topic in Coping with Celiac Disease
a possible resource: Open Original Shared Link disease=2&hl=en&ct=clnk&gl=us Someone posted a card that speaks of needing gluten-free food, written in Arabic. If you click on it, it comes up larger and you can print it. -
ARCHIVED Finding Celiac Really Hard To Live With
Lynayah replied to EllieR's topic in Coping with Celiac Disease
I agree that whole foods are the easiest and cheapest way to go. Plus, I never have to worry about finding somewhere to pick up fast food . . . the produce department of any grocery store is the most convenient fast food in the world! That said, switching to whole foods can be a challenge to those who are used to eating processed foods most of the time... -
ARCHIVED Collagenous Sprue Update - Celiac.com
Lynayah replied to Scott Adams's topic in Publications & Publicity
Open Original Shared Link Open Original Shared Link -
ARCHIVED New And Questioning Decision
Lynayah replied to shepgs's topic in Coping with Celiac Disease
Jamie, Gluten-intolerance can become just as damaging as full-blown Celiac in many ways. Also, many highly-sensitive gluten-intolerant folks experience stronger symptoms than some with Celiac, so please know that the problems you are facing are just as strong and just as real. I have highly sensitive gluten-intolerance, so I know from personal experience... -
These are old links so I don't know if they all work, but I found this online under Gluten Intolerance Group New Mexico. You might want to give them a call to see if they can help you: New Mexico Contacts Group: Albuquerque Gluten Intolerance Group City: Albuquerque Contacts: Marvin Daniel 10029 Barrinson NE Albuquerque, NM 8711...
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colonoscopy - 2 polyps despite being free of them last year. Both were the kind that can lead to cancer if not removed. I have a very "twisted" colon and my former doctor may have missed them in the folds -- not sure. Anyway, they're now removed. I will need to have another colonoscopy next year as a safety measure. Everything else okay, including...
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ARCHIVED How Should I Handle This In The Future?
Lynayah replied to BigDogz's topic in Coping with Celiac Disease
How about just ordering a glass of wine? -
ARCHIVED Should I Get More Strict?
Lynayah replied to Roda's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
For my family, it was easier for me to make a dedicated gluten free area on my kitchen counter. I put newspaper down to mark the area, and when I'd use the area, I'd put fresh newspaper down. I also use dedicated chopping boards which I've Sharpee-marked marked with GLUTEN FREE (tons of things in this house are Sharpee marked MOM or GLUTEN-FREE). I feel... -
ARCHIVED Should I Get More Strict?
Lynayah replied to Roda's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
PS: Even my toothpaste had gluten in it! It took weeks before I found out. I was also using hand lotion with gluten . . . not too much of a problem as long as I didn't have a cut on my hand . . . but whoops! I'd eat something with my hands and touching the food before it went into my mouth cross contaminate me. Gluten in shampoo or conditioner... -
ARCHIVED Should I Get More Strict?
Lynayah replied to Roda's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Be careful with the meds and over the counter stuff. I was "pretty sure" too, and it turned out some had gluten, including vitamins and digestive enzymes. Call the company, always. After much trial and error, I now use stainless steel cookware only, and I've asked my family to use our other cookware (including Calphalon) for gluten containing foods.... -
ARCHIVED Having Good Luck With Real Foods Corn Thins
Lynayah replied to Lynayah's topic in Gluten-Free Foods, Products, Shopping & Medications
Good with tuna salad, too. I like to use Vegenaise for mayo -- egg free, dairy free. -
ARCHIVED Having Good Luck With Real Foods Corn Thins
Lynayah replied to Lynayah's topic in Gluten-Free Foods, Products, Shopping & Medications
I bought mine locally at a store that has an extensive gluten-free section (not a chain). I checked online here to see if they might be available at the Gluten-Free Mall, but I did not see them -- maybe in the future? If you Google Corn Thins Real Foods you'll get their site as well as places where you can order online. I hope you enjoy them!