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Mom of a Celiac toddler

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Mom of a Celiac toddler

  1. Mom of a Celiac toddler
    My son was diagnosed at 18 months. Pre diagnosis and during any accidents we had to hold him all the time. His favorite positions when glutenend are swinging or behind held upside down. He will sometimes allow me to put him down with a pillow under his back so that he is arched so I can use the restroom! Good Luck! People don't realize how exhausting...
  2. Mom of a Celiac toddler
    Help! The link didn't work for me. It only took me to her blog about her goats. Maybe I'm doing something wrong. Thanks.
  3. Mom of a Celiac toddler
    My pediatic dr. said that the house brands of Tylenol or Motrin are safe.
  4. Mom of a Celiac toddler
    I know this is an older post, but I was wondering about the Benecalorie. Has anyone had any luck with it for weight gain, or with PediaSure? My son is 9 months post diagnosis and not gaining as the dr, and I would like! Thanks!
  5. Mom of a Celiac toddler
    You are not being overly cautious! There is no such thing in this game! I am fortunate enough to also be able to afford to buy a classroom supply for my kid. I bought Model Magic. The teacher had never used it and really liked it. I also supplied her with ziplocks because if it gets put back into a container or ziplock it can be reused over and over...
  6. Mom of a Celiac toddler
    We recently had a festival in town that came with elephant ears. My 6 year old son has had these before, and can no longer. Anybody have any idea as to how I would go about making these gluten-free or something similiar? Thanks!
  7. Mom of a Celiac toddler
    You could be singing my song, but he doesn't sleep quite as long as yours. He sleeps for about 2-2 1/2 hours, and 12 hours at night. My son was 18 months, and had dropped from the 95th to 3rd percentile, when we tried to get the diagnosis. We had already been gluten free for a few weeks when we did the biopsy so he was negative, but proceeded as if he was...
  8. Mom of a Celiac toddler
    We just got life insurance through American Fidelity Assurance two months ago. No problem with the Celiac's! Good luck!
  9. Mom of a Celiac toddler
    Thank you so much! I will not take the risk.
  10. Mom of a Celiac toddler
    My son was just diagnosed in August so I am still new at this! I was wondering about Honeycomb cereal. We have stayed completely away from oats just in case, but Honeycomb cereal has oat flour. I was just wondering about oats. I know some can handle it and some can't. But please let me know if you or your child has had Honeycomb and what the reaction...
  11. Mom of a Celiac toddler
    I was in Fred Meyer looking for probiotics, when I stumbled across something that claimed to accelerate the digestion of gluten. The main ingredient was Glutanese Powder. Has anyone heard of this or tried it in the case of an accidental glutening? I am just wondering because my guy is almost 2 and we are extremely vigilant, but he goes to daycare and while...
  12. Mom of a Celiac toddler
    I was in Fred Meyer the other day looking for some probiotics, when I came across a product that said it helps aid the digestion of gluten. The main ingredient was glutanese powder. We are very diligent about our two year old not getting gluten, but he does go to daycare three days a week and accidents happen! My doctor just has so little experience with...
  13. Mom of a Celiac toddler
    I too live in a small town making it difficult to get support locally! You have found the right place! From what I hear a month isn't that long to see results after so many years of damage. Have you started keeping a food log? You could then begin to eliminate one product at a time for several days to see how she does. It may also be psychological (unconsciously...
  14. Mom of a Celiac toddler
    We do pizza at our house quite often. I don't see it as expensive and my family loves the Chebe pizza crust. Maybe the night before the event you could make a pizza and keep a leftover piece for the next day's events. Another option may be to make him a special pizza with corn tortilla or slice of gluten-free bread. I agree that it would be very difficult...
  15. Mom of a Celiac toddler
    These two sample letters were posted in 2007. You may want to do some verifying or tweaking to make sure it is accurate and useful for your child. I'm sure someone out there has something more current, but this worked for me with some tweaking. My daycare provider takes $5 off each day because I send him with all his own food. Although, she is great, and...
  16. Mom of a Celiac toddler
    First of all: I am so sorry you had to watch your little boy suffer so! The hardest part of my life was watching my son pre-diagnosis, because I knew he was not "normal." He is now a very happy 22 month old that can not be slowed down!! Glutino sandwich cookies are just like Oreo's for a special treat. Chebe pizza crust is better than any glutened pizza...
  17. Mom of a Celiac toddler
    My son just had his biopsy done in August. He was only 18 months so he could not articulate how he was feeling like your daughter will be able to. But, he was so thirsty afterwards and we had a long drive from the hospital to home. If this is the case for you I suggest some juice and crackers (gluten-free of course). He wanted to eat about 30 minutes...
  18. Mom of a Celiac toddler
    My son has been gluten free for four months now. He is 20 months old. After six weeks he began to say more syllables, but he has been pretty stagnant on the talking front. I really feel there is a direct link between his speech and the celiacs. Have other people experienced this, and if so how long until they started talking? I know someday soon when...
  19. Mom of a Celiac toddler
    Thanks for all the comments! In response to who has the gene, we don't know. I have been tested for Celiac via a blood panel and came out negative, but my husband has yet to be tested. He doesn't want to hear the results (huge gluten fan)! We will bring his own food, they don't charge for him and he is going through this bad "I want what you have phase...
  20. Mom of a Celiac toddler
    I am new at this gluten-free thing, my almost 2 year old was diagnosed in August. We always go on vacation for Thanksgiving and this year we will be eating at a buffet. I am wondering if there are any items that I could for sure go for for him instead of having to bring all his own food. Here are some of the items they have listed for their buffet:...
  21. Mom of a Celiac toddler
    We use Lit Critter's also, and my 18 month old cries because he can't have more than a half of one a day! Guess that means he loves them!!
  22. Mom of a Celiac toddler
    My little guy had it on the back of his neck and shoulders, down to the middle of his back. He was constantly itching also. We have been gluten free for 5 weeks and his rash is almost completely gone and he doesn't itch it anymore!
  23. Mom of a Celiac toddler
    I am so sorry for your experience! I too am a teacher, and that is deplorable! I have had my fair share of various run-ins with our school nurse for other health issues. However, we have not had one kid in our school with diagnosed celiacs in my 10 years there. If we don't have another until my son gets there in 3 years he will be the first. I did find...
  24. Mom of a Celiac toddler
    I am curious about this dairy induced auto immune disorder you mentioned. If you think of it please post about it.
  25. Mom of a Celiac toddler
    Has anyone ever had their little ones testing for growth hormone deficiencies? I read somewhere that they are linking celiacs with growth hormone deficiencies.
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