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ann72601

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ann72601

  1. I appreciate the replies. I know that DH, or gluten rash is common but I didn't think about how I was getting sick so frequently until I thought about the fact that it's as direct and entry into the system as the mouth. I think we're all on a learning curve, including the doctors. From now on I will be keeping gloves to handle anything in the bathroom...
  2. Just curious about this topic: I have DH on my hands and there are often open sores. Can gluten enter into the system that way?
  3. I'm needing to know if a single pill prescribed by a doctor can cause a reaction if it has gluten in it? I can't find any brand that is gluten-free and my doctor 'doesn't believe' compounding is needed. Thank you.
  4. It's not uncommon for celiac to come as a package deal. SCD diet is a good choice and so is GAPS. Both have online summaries that you can view. I had the same experience of the gluten-free not working after a time and other issues surfacing. Don't give up. www.gapsdiet.com and www.pecanbread.com or www.breakingtheviciouscycle.com. Take care
  5. No, it's actually severe constipation.
  6. My complete diet for the last weeks is listed on my original post. That's why I was stumped.
  7. I sound like everyone else here with a garden variety of illnesses on top of illnesses too depressing to put in print. I have been doing the GAPS diet for almost 3 months and very slowly starting to make a bit of progress. I was told to think in terms of years, not months and it's proving to be true. The diet addresses many illnesses and it's aim is to...
  8. Nasty subject.....sorry. Right now because of other digestive disorders on top of the celiac, I have been on GAPS diet for 11 weeks. I haven't been able to digest carbs other than carrot and garlic juices, but can eat chicken, lamb the broth and oils like nuts, cod liver oil, etc... Am on my first week of a little kraut juice, about 4 tsp. throughout...
  9. When I read all that you've written, it sounds amazingly like myself only you're 16 months ahead of me in the SCD experience. I am inspired to keep trying. Love to talk with you sometime. Ann
  10. Absolutely!! I'm on the SCD diet and found that I was not the only one. Quinoa is 60% starch and some of us can not break it down. It's all explained on the SCD pages. You might want to browse the online pages at www.scdiet.com or www.pecanbread.com and see if it sounds like you. It's work but do you have a choice? It takes a good attitude and determination...
  11. Thank you. Several people in the family have commonalities with my own health history, so at this point, it's a starting place for them. I don't think they want or even able to spend the kind of money that the full work-up costs. Plus getting someone to take them seriously is a problem. I've read on this forum in the past, that some people have been tested...
  12. I don't need it for myself. I have a diagnosis already.
  13. I have family members who would like to get tests done but aren't 'sick' yet. Does anyone know of any resources for getting tests done through online, reliable labs? I can't tell one from the other. Any help would be appreciated.
  14. You can go to www.GAPSdiet.com to review the basics. It also goes over the few supplements that are used and how to use them. I've started the cod liver oil and probiotics so far. It's been a last resort since the normal elimination of gluten and grains were not enough to make me feel better at all. I have developed many intestinal problems over the years...
  15. How long does it take to build back the B's if you're supplementing and dietary measures are taken? I'm on the GAPS diet now.........for about a week. Is it permanant if it's gone too long? I tingle, my ears ring, heart jumpes around and I get dizzy all at the same time. Sound like a vitamin shortage? I get so frustrated at trying to have a conversation...
  16. I was wondering if anyone else has/had problems with normal communication? If so, what do you do for it? I get so frustrated with myself because I have such a hard time just talking to people now. I talk too much, can't listen like I used to and don't understand the normal non-verbal cues anymore. Does this go with celiac? Does it go away eventually...
  17. I've recently found out that gluten alone may not resolve the issue. I'm having to eliminate all grains. I have many food allergies and sensitivities so I kept getting nuts. Yes, a moment of sanity reveals the insanity. My ND assures me that it's part of the celiac and problems associated with it and has put me on the GAPS diet. You can go to www.gapsdiet...
  18. I was reading about GAPS diet and it sounds like it makes sense to me, but I wanted to know if anyone here has had actual experience with it?
  19. Thank you so much for the ideas! I have no idea how to use coconut milk, but I ordered a cookbook today called The Super Allergy Girl Cookbook. I am allergic to eggs to, but I found an egg replacer that I'm dying to try. I can't handle spices yet, but Thai is my favorite food and I will find a way when I heal a bit more. I'm not able to handle rice either...
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