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nothungry

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Latest Celiac Disease News & Research:

Everything posted by nothungry

  1. nothungry
    You guys should head to Soul Dog in Poughkeepsie for some gluten free hot dogs, pizza (amazing!!!!!) macaroni and cheese, fries and desserts, it is wonderful!! The bread and desserts are fastastic!!!!!!!!!
  2. nothungry
    I'm in upstate NY too, where is Pizza Plant?
  3. nothungry
    I would recommend it! I have been 3 times since I have been gluten free, it just feels so good to know that each meal we eat is not an issue ( - and there are of course, many, many great things to do at Disney World!). Also, I did have the brownies, they were very yummy! I regret that I didn't try the gluten free rice krispy treat. I saw them at the...
  4. nothungry
    What were those zebra domes? People in our party were eating them, chef TJ didn't tell us that they were gluten free, he just made us another dessert. I'd like to try them next time.
  5. nothungry
    We are going back in February and Boma is our first stop! People also came to our table and asked us how we got all of this food that was not on the buffet! It was so amazing! Disney really knows how to make you feel like royalty!
  6. nothungry
    We just got back from Disney World too, it was amazing. I stayed at Pop Century for part of our trip and the food was great. My daughter and I had gluten-free waffles, pizza, pasta, macaroni and cheese there, we were offered plenty of options there but that is what we decided on. We stayed for 8 days on the Disney Dining Plan and had amazing meals at all...
  7. nothungry
    Thanks for the info...I don't really want to travel too far off of 95, fast food things would be the best. I am going to look into what fast food places are available on the road that have gluten-free menu's.
  8. nothungry
    We are taking a long road trip from NY to Florida along I-95. Does anybody have tips as to what kids of stops I will have along the way and what gluten-free options will be available? Thanks a bunch!
  9. nothungry
  10. nothungry
    Blizzard Beach is celiac friendly. I think I had gluten free pizza there last August. Call the Disney Dining number and they will put you in touch with someone who can send or email you a list of gluten free counter service options for all of the parks, even the water parks. They encouraged me to call a food service manager a day or two ahead just to make...
  11. nothungry
    I just came back from the Bethany Beach (very close to Ocean City). There is an ice cream shop in Bethany called Berry Good Treats (right near the boardwalk on Garfield Parkway). They have gluten free Edy's ice cream, gluten free ice cream cones, gluten-free hot dogs and gluten-free buns are coming soon. They are celiacs and do not cross contaminate....
  12. nothungry
    Thanks for the information...we will definitely eat before we go, but it will be my child's first gluten free trip to Yankee stadium...I want her to feel like there is something fun for her to eat there!
  13. nothungry
    Does anybody have any information about eating gluten free at Yankee Stadium? Is the soft serve ice cream (I think it is carvel) safe to eat? What about the fries or popcorn? Thanks!
  14. nothungry
    I am a vegetarian celiac and Disney World has always been amazing with the food - plenty of pasta, pizza, rice, tofu (I know that kids don't usually like tofu) and just about anything vegetarian that I cook at home is available there. I think your daughter will be well fed!
  15. nothungry
    Just to clarify - she was sick due to a virus - but I was not going to give her gluten while she was sick. I do believe that the doctor wants to do the biopsy because that is what he does. I don't think she really needs it...but I like to hear opinions from other people in my situation. Thanks for all of the input.
  16. nothungry
    When my child initially found out about her positive test, she would not eat gluten at all. Her Gastroenterologist appt. was three weeks later. He said put her on two crackers per day of gluten, that will be enough for the biopsy. Well, we did that for a week, she was sick for a week - so I could not make her eat gluten, and now the biopsy is in a few...
  17. nothungry
    I haven't been on a Disney Cruise but I have been to WDW a few times while gluten free. There is so much food to choose from ! They have everything from gluten-free rolls, cakes, brownies, pancakes, waffles,pastas, rice dishes, quinoa dishes, salads, meats - - - truly wonderful! When you want to have a table service meal, make a reservation and have it...
  18. nothungry
    Would you have had your DS biopsied if you were a biopsy confirmed celiac ?(as I am one, so are other family members of mine). I believe that with our family history and a tTG of 26 she is positively a celiac. Would you agree?
  19. nothungry
    No, my child is not on the small side at all. I have her tested yearly, the past two years were negative, this year it was positive. She does seem to have symptoms, which confirms to me that she is has celiac too.
  20. nothungry
    The doctor said that the only way to get a confirmed diagnosis is with a biopsy. I believe my child does have celiac because of strong family history. The doctor said that if a prescription should become available insurance would not cover it unless my child was confirmed by biopsy. I am concerned that a biopsy may not be necessary, it is a difficult...
  21. nothungry
    My ten year old is scheduled for biopsy this week...because of a positive EMA and TTG. The doctor gave me a choice - outpatient biopsy in the endoscopy unit, or in the surgery unit with general anastetic (spelling?). I chose outpatient. Did I make the safest choice for my child? Any input or experience with the procedure on a child would be helpful...
  22. nothungry
    Thanks for the info! Time to get shopping!
  23. nothungry
    I am working on my first gluten-free Easter for my child this year...any ideas on items for the basket? Easter bread recipes? Thanks for any input!
  24. nothungry
    I used the foldable pizza crust recipe for a calzone.....YUMMY!
  25. nothungry
    Disney has always been excellent for me. At Epcot, Gluten free pizza is available at the counter service restaurant in USA (Amy's). The counter service place in France has an excellent cheese and fruit platter. Akershus and Garden Grill were great for table service. The rissotto at Garden Grill is out of this world. At Animal Kingdom, the breakfast buffet...
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