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BlessedMommy

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Latest Celiac Disease News & Research:

Everything posted by BlessedMommy

  1. BlessedMommy
    It's hard, very hard, when you have multiple issues going on at the same time. In addition to gluten intolerance, I can't tolerate dairy either and use very little sweeteners or sugar, due to a weak immune system. It sounds like you've done a really great job of stepping up to the challenge though and making the best of it! That must be incredibly difficult...
  2. BlessedMommy
    I just looked at the Glutenfreeda brand instant gluten-free oatmeal that I bought there--only 75 cents. LOL! Pretty sure that I couldn't even buy regular instant oatmeal for that price at the grocery store.
  3. BlessedMommy
    I love going to bent and dent stores! We have a couple of good Amish run ones in my area and the finds there are amazing! Just for example, today, I found certified gluten-free instant oatmeal, gluten free granola for 89 cents a bag, etc. It's pretty easy to feed gluten-free stuff to my non gluten-free eaters and thus keep a gluten-free house, when the...
  4. BlessedMommy
    How do they know what percentage are undiagnosed if they never get diagnosed?
  5. BlessedMommy
    I love those fruit platters!
  6. BlessedMommy
    Yeah, my kids think that it's fine. On the last kids birthday before this, I made a pan of fruit up (cut up pineapple, blueberries, watermelon, etc.), stuck candles in the fruit and put a truck and train in the middle and my kids were perfectly happy. For them, stuff like fresh blueberries, raspberries, watermelon at this time of year is a treat. The...
  7. BlessedMommy
    Yum! Oven roasted asparagus with egg salad sandwiches for lunch for the kids and I. I really, really hope that enough people buy the Canyon Bakehouse bread at my local store to keep it around.
  8. BlessedMommy
    Exactly! Some people don't realize that getting diagnosed with celiac is no small feat in today's world if you don't have classical symptoms and if you traced your symptoms to gluten and cut it out before you knew that you were supposed to keep eating it.
  9. BlessedMommy
    Be very, very careful with doing your gluten challenge! My chronic severe headaches while doing my gluten challenge progressed to neurological complications such as difficulty speaking and numbness on my right side. When I got to the hospital, they diagnosed it as a TIA. I quit gluten and have never had another one since. Just be careful and take...
  10. BlessedMommy
    I understand your situation! What I would say, is if you ever do try to do a challenge, be sure to have doctor supervision. I wound up in the hospital 10 days into my gluten challenge with neurological complications from severe headaches. We decided that that was my answer and I went gluten-free for good.
  11. BlessedMommy
    Yup! When pregnant with my now 7 year old, I got a serious systemic skin rash, that I eventually traced down to gluten.
  12. BlessedMommy
    I hesitate to say I'm actually celiac, what I usually revert to saying is that I'm severely intolerant to gluten and wound up in the hospital after just 10 days of trying to eat it to get a celiac DX. I explain about my neurological complications and TIA that I had. And many people remember the severe systemic skin rash I had during my first pregnancy that...
  13. BlessedMommy
    I'm glad that you're getting some answers! It seems that very little with celiac testing is black and white/foolproof, so I'm glad that your doctor realizes that it's possible to miss the damage when doing a biopsy.
  14. BlessedMommy
    Wow, that is pretty crazy to find a corn kernel in the peas!
  15. BlessedMommy
    We had a pretty late lunch today for my kid's birthday party. We had haystacks (build your own plate taco salad) with corn & bean chips, olives, lettuce, tomatoes, salsa, cooked jasmine rice, daiya cheese, and a big pot of pinto beans. For a "cake" I put candles in a watermelon. I try to avoid sugar as much as I can and my MIL is battling cancer,...
  16. BlessedMommy
    I hear your frustration on not being able to get a diagnosis! I have a similar story, my pregnancy brought the gluten issues to the forefront through a serious systemic skin rash. Through an elimination diet, I figured out that when I avoided wheat, the rash was much better, but when I added wheat back in,within 3-4 days the rash was coming back in the same...
  17. BlessedMommy
    I found this bread at my local Meijer's and oh wow, yum, yum, yum! I'd pretty much given up on having bread, but I think that I finally found one that I feel good about paying $5 a loaf for! I'm feeding it to my non gluten-free husband (I'm transitioning my house to a gluten-free only house) and he likes it as well. Open Original Shared Link
  18. BlessedMommy
    I'm actually planning on making my home entirely gluten free, but wanted to have something washable, just in case.
  19. BlessedMommy
    Right. I was hoping for something that wouldn't scratch the pans, though.
  20. BlessedMommy
    The main thing that scares me about deviled eggs is the fact that someone may have made them with a CC'ed jar of mayo. If you can verify that the mayo is gluten free and that the person making them didn't CC them, probably no reason to stay away.
  21. BlessedMommy
    Are there any good alternatives to wooden spoons that are easily washable? What about silicone? Can it be easily washed and cleaned if it comes into contact with gluten?
  22. BlessedMommy
    Yeah, knowing what I know now, I would've never dropped gluten before getting lab tests. Maybe someday they will come up with diagnostic methods that don't require gluten ingestion to work.
  23. BlessedMommy
    Just curious if anyone who tried gluten-free before testing actually made it through a gluten trial. I was hospitalized after just 10 days of gluten trial and I had to stop for sheer survival. (had a TIA which affected my speech and made my right side numb, I really didn't want to go on to have a full blown stroke!) It seems that my experience may not...
  24. BlessedMommy
    Can genetic testing rule out celiac?
  25. BlessedMommy
    If your one teen was unable to tolerate any gluten after elimination, then how did they get diagnosed? Did the doctor diagnose based on symptoms and genetic tests?
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