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CMWeaver

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by CMWeaver

  1. CMWeaver
    I have two daughters who were approaching age 4 when we were introduced to the entire gluten-free terminology. One of them WAS very sick. Her bloodwork was clearly positive and she did have the biopsy. Simply because the bloodwork was SO high they intended to find a lymphoma in her instestines. The other, who was not showing symptoms had the blood testing...
  2. CMWeaver
    Testing for Celiac, waiting for the results, Daughter 10, new with questions, 1- Yellow poops, sometimes frothy, sometimes diarrhea, firmer after with enzymes, but still yellow to tan, never normal (brown and firm). Been like this forever, I thought this was a toddler thing years ago, (yes, I know....) We had pale sand colored poops with one...
  3. CMWeaver
    I have twin daughters who were diagnosed 13 months ago. Only one was showing symptoms and had the biopsies. In all honesty, it was hard at first. Those first weeks especially. I thought things were improving and then she'd have diarrhea again. I don't think that part of the disease improved until she was 4 months gluten free. I will say that those first...
  4. CMWeaver
    My 4 year old daughters were diagnosed last December (9 months ago now). Long story short, we were gluten-free right away but with one of them, it took a good 4 months for the poop to be "regular". I knew she wasn't getting gluten. I kept food diaries, etc. However, nothing was showing a reaction to something else such as dairy etc. I didn't know...
  5. CMWeaver
    celiac3270, I sent an email to you but must have my head in the clouds and didn't include the address. It is: Christineweaver@comcast.net Thanks SO much! These lists will be great!
  6. CMWeaver
    When we had my girls tested, they did it in two rounds. The first was the testing that was ordered for you. Their ped. had no idea what could be the problem. The only thing that came up positive at first for them was IgG which I didn't see. The second round run by a GI was Anti-tissue Transglutaminase Antibody (tTG), Anti-Endomysial Antibodies (EMA...
  7. CMWeaver
    We're newer to this board. Eventhough I have celiac twins, I can confidentally say that even they....like many others......do not cheat or try to sneak anything past anyone. I have been amazed at how they seem to "like MOST" of their gluten-free foods and snacks. This was a good question celiac3270.
  8. CMWeaver
    Doug, This situation is identical to what we experienced with one of our girls. Ironically, she was the larger twin, almost 7 1/2 lbs. She grew at a somewhat consistent rate (nothing causing concern) until about 2 1/2. She weighed 27.5 lbs for over 1 year! We went to the doctors a few times. Initially, we were told to increase her intake......then...
  9. CMWeaver
    Yes, just before Thanksgiving.....I went in for the same type of pains you describe. It kind of felt like a "twisting" on the upper right side. This was coming not too long after me having mono so they thought it may be connected (the inflamed spleen putting pressure on other organs). Before they figured out it was the gallbladder, I took everything from...
  10. CMWeaver
    We had a situation about 2 weeks ago where one of my daugthers spiked a fever of 105.6. Diarrhea as well. We finally ended up in the ER and they "claimed" that both ears were infected. Apparently infected enough to cause vertigo type symptoms (although she never complained of being dizzy). She did get antibiotics and the diarrhea subsided but not until...
  11. CMWeaver
    I agree with the others about finding another doctor. We have Cigna and they are covering ALL testing. I called them the other day and inquired if they would cover gene testing (since our two daughters have celiac) and they would if the doctor orders it and we have the testing performed through a covered lab. I would call your insurance company and ask...
  12. CMWeaver
    Ya know.....ironically, I asked the same question here about a week ago. I'm still undergoing testing but my daughters are celiac. My incredibly strong willed husband and father in law admitted to me yesterday that if given the need......they would have a nearly impossible time making the adjustment to celiac. So, you are definitely not alone in how you...
  13. CMWeaver
    I just called and spoke with Roseanne, a rep with Malt-O-Meal cereals. The four cereals they have currently being gluten-free (Corn Bursts, Puffed Rice, Fruity Dyno Bites, and Cocoa Dyno Bites) will have a recipe revision come summer of 05. They will be adding wheat starch as a last ingredient. She couldn't confirm that exact month the change will take...
  14. CMWeaver
    With my girls being 4, I too was very concerned with what to feed them when we began the gluten-free diet. The EnviroKids cereals are a favorite of theirs. The Gorilla Munch resembles the mainstream product Kix. There is also a PB Gorilla Munch as well as a Frosted Flakes that are gluten-free. You may also come across information about Malt-O-Meal...
  15. CMWeaver
    I'm currently taking Zoloft 50mg. My GI doctor suggested I take Zoloft also since the serotonin is not only utilized by the brain but the GI tract as well. I never heard of that before but hey.....I'm not a doctor (although I feel like I'm studying to be one sometimes!)
  16. CMWeaver

    ARCHIVED Dary Queen

    CMWeaver replied to sdore's topic in Gluten-Free Restaurants

    I've checked the site too. However, I'd be careful about getting some gluten-free ice cream and having it topped with your favorite gluten-free topping. I remember going there before the girls were diagnosed and the spoon that scoops the oreos is sometimes the spoon that goes into the butterfinger toppings.
  17. CMWeaver
    I agree that the Gluten Free Pantry's Favorite Sandwich Bread is great. The mix is pricey (a bit over $5 here in FL) though but it is really good. It is the first one my girls would actually eat (they are sooooooo critical). Alot of locals in our gluten-free support group have awesome success with breadmakers (we haven't gone down that road yet so I can...
  18. CMWeaver
    It would be a good idea to check the hand soap and toothpaste they use if they have the children brushing after meals (we have this at our school). Our teacher has given me a list of the birthdays in the classroom. Since parents typically send in cupcakes or such on their child's birthday, I know ahead of time which day I send in a gluten-free item...
  19. CMWeaver
    It is SO ironic that you post this. I recently heard about this as well. Here is what I was able to obtain from the web. If anyone can shed some light, please do. We're only 4 months into the gluten-free diet with 4 year olds. Joe C. suffered from a digestive condition called Celiac disease, a genetic disorder which was to blame for his...
  20. CMWeaver
    I have twins who are 4 now. One of them was showing traditional symptoms (no weight gain, dark circles under her eyes, no energy and more neurological symptoms). The other wasn't failing to thrive but the same little girl who had quadrupled her weight in the first year was gaining hardly at all. Initially, it was blamed on her high activity levels. ...
  21. CMWeaver

    ARCHIVED Pre-diagnosis

    CMWeaver replied to a topic in Related Issues & Disorders

    I had a partial hysterectomy just over a year ago at the ripe of of 29. My children are celiac and my testing so far is negative.......dx of IBS but we're pursuing enterolabs. Christine
  22. CMWeaver
    Hi there, I'm posting this here since for me....it is more of a coping issue. My daughters are 4 (fraternal twins). One had no symptoms but positive labs, the other had the classic symptoms which led us to a GI. Long story short, her pathology report in December said total and complete destruction of the intestinal villi. I admit, I knew there were...
  23. CMWeaver
    I called Yoplait about two weeks ago and they confirmed that all of their refrigerated yogurts (hmmm.....I don't know any that aren't) are gluten-free. I had to confirm since I also called Dannon and most of theirs isn't. With regards to healing, I just called our daughter's GI yesterday and asked for the specific wording of the pathology report....
  24. CMWeaver
    Hi there..... For those I haven't yet posted with, I have twin girls who turned 4 in December. Just before their birthday, they were diagnosed with celiac disease. Although I mimic their symptoms....I'm negative on all antibodies testing, endoscopy, and colonoscopy testing. DH...no symptoms so in his mind.....no testing. The thing is, besides celiac...
  25. CMWeaver
    I have twin daughters who are 4. In November, we presented the same old information to the ped as before. Failure to gain weight despite a full diet, dark circles, frequent bowel movements, etc. Her bone age x-ray showed that of a 2y6m and she was days short of her 4th birthday. Biopsy showed celiac and we've been gluten-free ever since 12/04. Since...
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