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rachel-gf

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by rachel-gf

  1. rachel-gf
    It is hard at first. And then it gets better. My experience is that after a few months gluten-free, you look at gluten food, and it doesn't really look like a food anymore. This is hard to explain. But it's kind of like looking at a food you don't like (chicken feet?) and thinking, "Gee, I see other people eating this, but it just doesn't really look like...
  2. rachel-gf
    I guess I'm coming at it from a different perspective -- not a picky eater. I would really recommend developing your love for Mexican, Greek, Thai and Indian food. (Do you like those?) These cuisines have a lot of naturally gluten-free food. Do try some pastas and find one gluten-free pasta you love. Try risotto. It's sooo good and creamy. Enjoy your...
  3. rachel-gf
    I found that changing the proportions of what I was eating was helpful. Do try increasing vegetables, protein (meats), reducing starchy stuff (chips, bread). You may also want to try removing dairy for a while - it can cause bloating. Also be sure you don't have vitamin deficiencies. That could be wreaking havoc on your body as well. Now that your body is...
  4. rachel-gf
    I would say commit to being strict for 6 months. For that time, pretend that your celiac tests came back positive. :-) If you can, keep a food log of what you're eating. If your problem isn't gluten, you'll want to know what it is. Dairy? Corn? Totally unrelated to food? Something else? In your food log, you can also make notes on anything strange...
  5. rachel-gf
    Yes, it's normal to feel better after only a few gluten-free days, and it's also possible to go through a lot of ups and downs. I would say I felt a lot better after a few days or a week, then hit another improvement milestone maybe 2-3 months later, then felt a bit worse (too much dairy, I think), and now at exactly 4 months gluten free, am better than I...
  6. rachel-gf
    Do they have it every Tesco's? I tried a few and couldn't find it in London.
  7. rachel-gf
    I'm also a very cranky person if I go more than a few hours without eating, though this has improved as I removed gluten completely and reduced refined sugars. My favorite way to deal with the no-food problems is to keep a small baggie of nuts and raisins (about 30% unsweetened raisins, and 70% nuts). The raisins help bring up my blood sugar so I feel...
  8. rachel-gf
    If you want to try something a little bit different: Greek food is tasty, and has very little grain! Maybe try buying a Greek food cookbook or trying some Greek recipes online. They do a lot with meat, veggies, and dairy.
  9. rachel-gf
    I also gain weight when eating gluten. If I eat gluten for only a week, I swell up by 5 pounds, and then it takes about 6 weeks to fully go away. I've heard a few guesses about the mechanism: - eating gluten somehow encourages overeating for people who are sensitive - your body cannot get enough nutrition due to malabsorption, so you keep craving food...
  10. rachel-gf
    For me: mentally felt better within a week. Intestines felt better within 2-3 weeks. 2 months later: significantly improved. But my celiac tests are negative. I think it depends on what other issues you have and how severe your damage is. I tried to speed up my recovery by taking vitamin D, vitamin B complex, magnesium, and calcium.
  11. rachel-gf
    I'm trying to figure this out as well. From my understanding, most doctors will not diagnose celiac unless they see two things: (1) lots of intra-epithelial lymphocytes (IELs) and villus atrophy. (You can look these things up online for photos and explanations.) The other thing I would do if I were you is to find a good list of the symptoms of wheat allergy...
  12. rachel-gf
    I did have the same experience as the original poster. When eating gluten, I did experience nearly uncontrollable desires to eat certain foods, such as gluten-containing bread and cookies. The exact same foods gluten-free can somehow sit around in my kitchen and I don't feel an uncontrollable urge to eat them until they are gone. I mentioned it to someone...
  13. rachel-gf
    It's so sweet that you're trying to help your sister. Another thing you may want to look into is gluten-free food blogs. They're really fun to read and can make a gluten-free lifestyle seem a lot more fun. One that you or your sister may like is Gluten Free Easily glutenfreeeasily.com The author uses a lot of naturally gluten free foods rather than...
  14. rachel-gf
    Hi Silverdawn, Yes, it is up to you. But I would say if there's any chance you would ever want a definitive diagnosis of celiac, I would recommend getting a biopsy before you go gluten-free. Otherwise, you may never really know if you have it. I am now in this strange "is-it-celiac-or-isn't-it" state. From my perspective, if you're not ready to commit...
  15. rachel-gf
    Hi Nora Thank you very much for your reply. I really appreciate it. Thanks also for the thoughts on DQ2,2. I guess there are two ways to interpret my results: I have gluten sensitivity but not celiac, or I have celiac even though not all signs were present. I suppose it doesn't make a difference because it's quite clear gluten is not doing anything...
  16. rachel-gf
    Farmwife, welcome! Were you diagnosed with active gluten sensitivity through Enterolabs? Just for my own personal curiosity, I'd be curious to know whether a doctor took this as reason enough to make a diagnosis of gluten sensitivity. Hoping your health improves soon. I have gluten sensitivity as well! (I took the Enterolabs test -- positive for...
  17. rachel-gf
    For a neti pot, I'd recommend the blue plastic "teapot" looking contraption from NeilMed. It's lightweight, available from drugstores, or drugstore.com. It has enough capacity and therefore I find it easier to use than Sinucleanse.
  18. rachel-gf
    I received my biopsy results. The biopsy took 3 samples. The doctor who did the lab work on the biopsy said celiac disease was NOT indicated - no villous atrophy and no intra-epithelial lymphocytes. But the doctor did note some other things which I assume were noted because they are abnormal. Please note that I am living outside the US right now so I...
  19. rachel-gf
    Hm... I live in Europe and use the Neutrogena Norwegian Forumla lip balm. I don't think it is sold in the US. Does anyone know if it contains gluten? I have not been able to locate any information online. I use this lip balm often, so if it does use gluten, I would like to find out so I can stop using it! Thanks.
  20. rachel-gf
    I enjoy a variety of breakfast foods based on almond flour. It's low glycemic index, and almonds are generally pretty good to have in the diet anyway. You may want to check out Elana's Pantry. Open Original Shared Link
  21. rachel-gf
    Hello, there. Well, the good news about the Enterolabs test in the US is that the exchange rate of the pound vs. the dollar will help you. But no, it's not cheap if you pay yourself. You may also want to do genetic testing - I'm not sure what options there are in the UK - to see what your risk level is if it wasn't included in your There are a significant...
  22. rachel-gf
    Hi everyone, Thanks for your replies. I really appreciate the support and advice! I've been gluten-free for 2.5 weeks now and am feeling SO much better. I'm going to keep trying to get an appointment with this specialist doctor in my new city and see what he thinks. I'm also going to wait and see what my blood test says. In the meantime, I'm going...
  23. rachel-gf
    My question for all of you is: How long can I be on a gluten-free diet before it would affect my biopsy enough that celiac disease could no longer be detected? I am trying to get a biopsy but it is taken longer than I expected. History: Several years ago, I suspected I had a wheat or gluten sensitivity of some sort, and reduced (but did not eliminate...
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