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Mother of a Celiac

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    Baltimore, MD

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About Me

I am a mother who has been on a 'quest' to find out what has been wrong with my daughter for the past 2 years. We had been to multiple pediatricians, nutritionists, allergists, and holistic doctors before she was diagnosed with Celiac. I have spent most of those past two years on the computer nightly researching what could be causing her symptoms without the help of most of these professionals - some of whom suggested that it was 'all in her head', that she was stressed out, that she had separation anxiety, that she was being sexually abused, or that I was a hypochondriac. None of which were true. We have found through out the past 2 years that our daughter has chemical sensitivities, as well, and have removed all dyes, preservatives, and processed foods from her diet, as well as, gluten and dairy now. This quest has consumed our lives and I am so thankful that we are now getting answers to her symptoms and I'm looking forward and hopeful for a full recovery.

  1. Mother of a Celiac
    My daughter who was diagnosed a year and a half ago w/Celiac, seemed to do great for exactly a year gluten-free, then she started getting bad stomachaches again and headaches. I started her on the SCD diet and also removed dairy. All of her symptoms went away. We now follow the Paleo diet pretty much, which is grain free and dairy free. It is just very...
  2. Mother of a Celiac
    Thank you so much for this post. I just finished messaging another advanced member about my daughter's recent symptoms. She is 7 yrs old and was diagnosed a year and a half ago w/Celiac. She was doing great on the gluten-free diet for almost exactly a year to the date and then she started getting horrible stomach pains and bad headaches. Her GI suggested...
  3. Mother of a Celiac
    I am halfway thru the Paleo Solution book by Robb Wolf. It is one of the most eye opening books I've ever read. I started reading it because my daughter has Celiac and her symptoms have returned after being gluten free and symptom free for a year. Our whole family is now going Paleo. It is hard and is taking some time to get used to, but I'm hoping it...
  4. Mother of a Celiac
    My daughter, with Celiac, who is now gluten, grain and corn, dairy, and chocolate free, gets headaches when she has something that she has an intolerance to. They usually last as long as that food is in her system. Most of the time they are also accompanied by stomachaches too, if not then sometimes they are caused by an on coming sickness. She has been...
  5. Mother of a Celiac
    I agree. My daughter is now gluten, corn, grain, dairy, and chocolate free. People ask what we eat, all I say is thank God for almond flour! She/we live off of the almond muffin of the day, protein, veggies, and fruit. Although, I tried to reintroduce rice 3 days ago and now she is sick again. So yesterday we went back to grain free. Hoping that that...
  6. Mother of a Celiac
    Thanks for your post. I just tried reintroducing rice in my daughter's diet and she now has stomachaches and headaches again. It is reassuring to know that this is probably the cause and not some other "mystery" issue. So hard to narrow down all the different intolerances. We thought we had it all figured out a year ago when she was diagnosed with Celiacs...
  7. Mother of a Celiac
    Hi, I'm a mom of a 7 yr old with Celiac disease. She was diagnosed in Jan. of 2010. Almost 1 yr to the date, this past January, her symptoms seemed to return after being gluten-free for 1 yr. We know that she was not getting any gluten because her blood tests were coming back normal and we are very careful. After 3 weeks of bad stomachaches and headaches...
  8. Mother of a Celiac
    We are leaving on vacation Friday and I am trying to compile a list of places that we can go with our daughter who is Celiac. Any recommendations besides Outback Steakhouse??
  9. Mother of a Celiac
    I'm looking for a pediatrician that is familiar with Celiacs in the Baltimore area. Can anyone make a recommendation or know of a resource? Thanks!
  10. Mother of a Celiac
    Thanks everyone for all the responses. Her stomach aches have gotten better, however, she is constipated a lot now. She never had this problem before going gluten-free. Any suggestions for this and/or has anyone else had this problem? We have taken her off dairy too, for the meantime. Do most use Probiotics? I have some that we used to give her in the...
  11. Mother of a Celiac
    Our daughter had a positive blood test and we debated heavily about going thru with the endoscopy. My thoughts were very similar, but she also had symptoms. Having had the test done, I am glad that everything was reconfirmed, especially since most doctors seem to not fully diagnosis until you have the biopsy done. My deciding factor was that she could...
  12. Mother of a Celiac
    Our daughter was just diagnosed 3 weeks ago and we have 'made the leap' into the gluten-free world. I have decided that our house has to be pretty much gluten-free because it is just too hard to deal with the cross-contamination. My husband and I still have wheat crackers that we eat VERY carefully and clean up very well after we eat them. I also keep...
  13. Mother of a Celiac
    Hi Sherri, It just dawned on me, and I know that your original post was definitely awhile ago, but I noticed the photo of your dog and was wondering if your dog food is gluten free?? I ask because we have two dogs (Amstaf and pitbull/boxer mix, both of which are the sweetest dogs I know) and I am switching to gluten-free food for them because of our daughter...
  14. Mother of a Celiac
    We just had the biopsy done last Friday that came back as a definite positive. She has never had any rash or any lesions associated with the itching, it just seems to be an all over type of itch that seems worse on her arms, behind her legs on her stomach, and her back. We ran blood tests while she was having the endoscopy to check her liver and kidney...
  15. Mother of a Celiac
    It is very possible that she is coming into contact with it at school. Any recommendations on how to handle this diplomatically? It seems like a futile effort almost and I would appreciate any advice on what others have done. Thanks!!
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