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concernedmamma

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Everything posted by concernedmamma

  1. concernedmamma
    I am just less than a month gluten-free after positive BW and scope/biopsies. I am looking for a multivitamin that is for sure Gluten free and am having troubles finding one! I know brands are different between US and Canada, so just to let you know I am in Canada. I found one that said Wheat Free but not Gluten free, so I don't feel comfortable with that...
  2. concernedmamma
    It sure is frustrating! We were just talking about this this evening. Our son was diagnosed in March of 2010 via Blood work and endoscopy (at age 5)- After lifelong diarrhea, etc. His blood work was down to 'normal' within 6 months, but we kept seeing what we thought were 'reactions' and were so frustrated as we thought we were messing up!! Only in...
  3. concernedmamma
    Hugs to you! I am speaking from the other side, but I can empathize a bit- my son is Celiac. When he was diagnosed, everyone else was eating regular food. It will be a bit harder for you in some areas as you are preparing the food for the whole family, but pick and choose the things you are willing to change for everyone or not. We have a 'clean' area...
  4. concernedmamma
    I haven't read through all of the replies, but wanted to give you an alternate view. Both my boys have Celiac. One DX through positive blood work and a scope (because that is what we were told to do and I just wanted my 'baby' to feel better, so that is what we did). He had had many health concerns prior, honestly we are only now starting to see improvement...
  5. concernedmamma
    Hey there! Just wondering how many out there were NOT ill prior to diagnosis- and now that you are gluten-free, how have things changed? I got my BW done since my two boys were diagnosed with Celiac- about a year apart. I finally went, just so it would stop hanging over me as 'something I should do'. Feel fine, no obvious symptoms. My blood work came...
  6. concernedmamma
    Nice to read this! We have a strong family history of Celiac, so when my blood work came back strongly positive, I assumed I would skip the biopsy/scope. The GI strongly encouraged it though, and I realized that 'I' need the positive scope to prove to myself that Gluten is doing damage to my body. I have felt fine, but did the blood work since we have...
  7. concernedmamma
    When we told the boys (my boys are Celiac, so far girls are not) that it looks like Mommy is Celiac as well, the first question: "does this mean WE get the big toaster now??" So cute.
  8. concernedmamma
    I am trying to understand this, but perhaps a bit of my history would be helpful to you.......... Late 2009- Sister had odd GI symptoms, blood test positive for Celiac. Her dr discouraged biopsy. She had improvement with gluten-free diet March 2010- My son had positive blood test for Celiac. History of lifetime diarrhea, bloated belly, pale, and more...
  9. concernedmamma
    I suggest posting this in the parents of kids/children with Celiac Forum!!
  10. concernedmamma
    I am interested to hear more about this-Both my son's (6 yr old non-identical twins) have Celiac and with one of them, we are sure he is reacting to 'something' but can't figure out what it is. We were thinking his 'bathroom episodes' and complaints of tummy cramps were related to cross contamination (about 1-5X/month). Well, last month, accidentally, we...
  11. concernedmamma
    Well, just a quick update........ no GI reaction AT ALL. We didn't tell them that we had made a mistake. Didn't want to cause undue anxiety. Bathroom events have been 'normal', no complaints of headache or tummy ache. Yesterday Jacob was super tired and emotionally sensitive, but that was several days after the glutening episode, so hard to say if it...
  12. concernedmamma
    Okay. So tonite, we made a HUGE mistake and grabbed a bag of pizza crust from the freezer, made the boys their pizzas and watched them chow down........ then looked more closely and they were eating WHOLE WHEAT pizza crusts!!!!!!!! They were over half way done, we figured the damage was done and let them finish their pizzas.......... Now we are waiting for...
  13. concernedmamma
    It is so hard when our little one's are unwell- trying to figure it out can be such a challenge. I usually *hope* for a fever (sounds bad- but you know what I mean-fever=sick, not gluten-horray!). Other signs I look for- for my son, headache+stomach ache+diarrhea=gluten. One all on its own is a bit harder. Also, for us, he is unlikely to eat if his symptoms...
  14. concernedmamma
    My son had fairly low numbers (13 or 15, can't remember) and his biopsy was scored 3, on a scale of 1-4. The numbers DO NOT relate to damage or sensitivity. He is EXTREMELY sensitive as well. Kim
  15. concernedmamma
    One of my boys(Jacob) was diagnosed with Celiac in March of 2010....... positive bloodwork and biopsy. It has been a challenging year. He is EXTREMELY sensitive! School (kindergarten) resulted in many episodes of cross contamination, and many tummy aches, diarrhea and headaches for my boy. Today we found out his twin brother (Gabe) also has Celiac....
  16. concernedmamma
    Thanks Maggie- but no, soft drinks are not something that he drinks- perhaps at a birthday party, but that is it....
  17. concernedmamma
    Prior to diagnosis, we were concerned about diabetes since our son drank so much and peed so much! We have seen an improvement now that he is gluten free, but definitely see an increase in his urinary frequency when he has gotten severely glutened (meaning more than with traces, but taking a bite of something full of gluten)- like several times an HOUR...
  18. concernedmamma
    I hope it is ok that I have cross posted this from the Parent's of Kids with Celiac forum. Wondering if you have any more input? Thanks so much! Hi Everyone! I think that we are learning exactly HOW sensitive our son is to the smallest traces of Gluten...... seems whenever we eat outside our home (even at other houses) he has a reaction. I honestly think...
  19. concernedmamma
    Hi Everyone! I think that we are learning exactly HOW sensitive our son is to the smallest traces of Gluten...... seems whenever we eat outside our home (even at other houses) he has a reaction. I honestly think that now that we are over a year into this diet, he is MORE sensitive than ever before. I am fine with this, but am having a hard time figuring...
  20. concernedmamma
    I will start with an apology that I have not read through all of the posts..... However, I did want to say that my son (age 4 when diagnosed, symptomatic since about 6 months) took nearly a full YEAR to show improvement. We saw mild improvement after 3-4 months, then plateaued. At the one year mark it was almost amazing. We were able to see clear indicators...
  21. concernedmamma
    I would ask your GI or Pediatrician to write you a letter stating that she has celiac/severe dietary restrictions/allergies and there fore you will need to bring exra/special food for her. Also contact the airlines as some of them are able to accomodate special dietary needs. Some airlines are definitely more accommodating than others!
  22. concernedmamma
    Wow, that is tough. I just pulled out a mix that I really like and am checking the label. I really, really like the Namaste Foods mixes. They come out just like 'regular' cake. The mix I have is for a spice cake, but here are the ingredients...... Evaporated Cane juice, sweet brown rice flour, brown sugar, tapioca flour, arrowroot flour, rice milk...
  23. concernedmamma
    Can you please explain to me what it feels like when you get 'glutened'. My son is 5.5, was diagnosed through blood work and positive biopsy almost a year ago. Just recently are we starting to see some clarity to his symptoms, with a bit of a pattern. He got 'something' in the last day or so, came home from school yesterday with a sore tummy, didn't want...
  24. concernedmamma
    Smarties are not gluten free. M&M's are. At least in Canada Smarties have wheat clearly declared in the ingredients. I have no idea about everything else. Hugs. It hurts to see our kiddos in pain. I just followed the link above for Smarties. Totally different from what I know is smarties. I was thinking of the 'other' candy coated chocolate...
  25. concernedmamma
    Definitely tell your pharmacist. Last time I asked, the Tylenol Chewables/Liquid were Gluten free. I would also recommend calling the manufacturer. They will be able to give you the best info. I cut and keep the labels of the ones I know are gluten-free. Since they don't get used daily like food does, I don't always remember which ones I have checked...
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