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macocha

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Latest Celiac Disease News & Research:

Everything posted by macocha

  1. macocha
    My son is still pretty tired and was diagnosed 2 months ago. I imagine that it will still take some time, but the dietician wanted his thyroid checked and asked that his PCP order it. (this for mood swings too) The PCP stated that his levels were normal in Jan (pre-diagnosis) and didn't need new tests. I am wondering if his thyroid test could be...
  2. macocha
    I am with Kater. Especially given your child's age, they need to be referred to a pediatric gi. a four year olds blood tests are not reliable for this disease. Open Original Shared Link and on that link it has this: In children younger than three, with symptoms, antibody testing may not always be accurate. However, young children with symptoms...
  3. macocha
    that typically and normally one would either have a wheat allergy or celiac disease. They can have both - but it is not common... I posed a question to my daughter's allergist because she tested negative for wheat allergy. I asked if that means she most likely would not have celiac then, and he said that it is not common to have both - normally it...
  4. macocha
    kettle came out with a new flavor... loaded baked potato! YUM! with the other chips, lays, ruffles, you have to worry a bout cross contamination and your sensitivity. those aren't on a dedicated gluten-free line. the staxx are though. isn't cool ranch doritos gluten-free? I believe that was one flavor that was okay.
  5. macocha
    ooooooh that sounds good too! will try those next!
  6. macocha
    I found this! woot woot! 3 cups Corn Chex
  7. macocha
    when you say gluten-free flour...is that Rice flour or what? any of the gluten-free flours?
  8. macocha
    good to know - thanks!
  9. macocha
    anyone done this or have a good recipe?
  10. macocha
    I normally make cupcakes too, but if I have little time, I do a cake and this one w/ the pumpkin comes out great wonder how well these cupackes would freeze and then thaw? w/o frosting of course.
  11. macocha
    hey, my little one's 5th b-day...good day check out that univ website I put in my response - it really is informative. I know how frustrating it can be. I hope your son feels better soon!
  12. macocha
    adding that you should keep a notebook of what you give him right now - maybe that will help - and his reactions. I also would take photos of the rash so if he has an appt and it is gone - you don't have a thing to show the GI doctor. I will say that if I hadn't of pushed with my kids - they would not be diagnosed now. I would put him back on gluten...
  13. macocha
    from your son's age I would go right to a GI specialist - that blood test is not conclusive for a son your age! here is a list of symptoms: Open Original Shared Link specifically this blurb: "In children younger than three, with symptoms, antibody testing may not always be accurate. However, young children with symptoms (especially failure to...
  14. macocha
    here is the recipe I was speaking about... 1 box of yellow cake mix (gluten free) 1 cup pumpkin (not the pumpkin pie mix) 1/2 cup water 1/3 cup veggie oil 4 eggs 1 1/2 tsp pumpkin pie spice 1 container of betty croker cream cheese frosting (I am sure any brand will do) 1. heat oven to 350 (325 for dark or nonstick pan). place paper cups in...
  15. macocha
    Soooo....want to post that irish cream recipe? that sounds yum!
  16. macocha
    heard it isn't all that good - even from the reviews. that is the betty crocker yellow cake mix.
  17. macocha
    editing to say that fruit is just a small portion of what she has to avoid, but she can still eat some fruit - just not a lot of it. she also has to avoid other foods. just clarifying. tired today. blah.
  18. macocha
    hmmm...okay. my daughter has fructose intolerance and it mimics celiac in a lot of ways. and that is what caused her gut infection. not being able to process the fruit. she can eat some fruits - just not all of them.
  19. macocha
    do you mean hydrogen breath test - fructose? and if you meant that one, that is the test that is done to test for infection in the gut/lower intestine due to fermentation of fructose not being able to transfer out into the blood stream (or something like that). it is also the test for fructose intolerance. it is a 4 hour breath test.
  20. macocha
    thanks! corn noodles? hmmm.... he does not like the tinkiyada or Quincoa(sp?) noodles.
  21. macocha
    I use cream of celery/mushroom/chicken for a lot of my cooking. Not so much anymore as Campbells is not gluten free - from what I have read
  22. macocha
    (((Hugs))) first off! 2nd - I believe I would switch docs at this point. also, have you had allergy testing? Could you maybe have fructose malabsorption? That can also give you the distended stomach and problems you are listing... they test that with a hydrogen breath test. I hope you get some answers. First thing though - I would switch docs...
  23. macocha
    Interesting topic. Started spazzing a bit, and then kept reading, but then realized that my son does fine. Although, I do get my beef and pork from organic grass-fed, no antibiotic given, animals from my father in law's farm (we are in WA state - anyone interested...lolol) Eggs, I get from my parents when their chickens start laying them. And...
  24. macocha
    ooooooooooooooh ping pong. the boys would LOVE that! my hubby loved it growing up and played it too with his twin bro and his twin sisters (scary huh? lol)! I am seriously considering the punching bag and hanging it in the garage for them. maybe we should set a ping pong table up too I think those are spendy so will have to look at sales or craigslist...
  25. macocha
    tarnal - no I have not written each word I stated to him as you imagined so I just generalized my statement. but the gist is that we talk about ways he can express himself safely and w/o being disrespectful. he knows I understand. we both also have a medical condition no one else has in our fam, so we have talked forever about things - we are very close...
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