rmmadden

I went to CP last year for the first time since going gluten-free and brought all my own food. I really don't think you'll find much, if anything, to eat that's gluten-free. Maybe at some of the sit-down restaurants you can find something but my kids didn't want to take that amount of time away from the rides.

Enjoy......It's the best roller coaster park in the world!!!!!

Cleveland Bob

Wallpaper glue has wheat starch in it. I was cleaning my son's bedroom walls and scrubbing the residue off the walls after I had removed his border and was very sick afterward.

Cleveland Bob

Snoqualmmie Inn has a wonderful breakfast. They were very accomodating when I explained the gluten-free diet. I will eat there whenever I'm back in the area (which will be this summer). Can't speak for the hiking but the whole area is beautiful.

Cleveland Bob

Marisa,

I spent 6-days in the Big Easy for a convention not long after being diagnosed. Eating gluten-free in that town is a really tough task! Most everything is started with a roux or breaded....thus off limits. I ordered plain fish and steak and still ended-up getting glutened toward the end of my trip.

They do have a whole foods (or whole paycheck as we call it in our house) in town so you can do the bring-your-own thing. I realize this isn't too exciting in a town known for it's food but, it's probably the safest/smartest route to go.

Best of luck!

Cleveland Bob

On top of the brain-fog / slight dizzy feeling I get when fighting-off a gluten attacked, I also develop a low-grade fever and the occassional heart palpitation. Anyone else?

I've been to the Dr. twice to check the old ticker out and I'm happy to report it's fine. Just curious who else gets the palp's and slight fever?

Cleveland Bob

I went through a tired and a dizzy period and all I can say is that they eventually passed. For the tiredness I drank Ensure (Watch....Chocolate Malt Flavor has gluten) and tried to get as much sleep as possible. As for the dizzy I just had to fight through it.

Best of Luck

Cleveland Bob

My younger brother has Celiac, too. It was his diagnosis that got me to thinking and testing for my Celiac.

At least we don't have to worry about food issues when we are visiting one another. Also, this summer we are taking an Alaskan Cruise together and I am comforted in the knowledge that I don't have to worry about the whole food thing aboard the ship by myself.

Best of luck to All,

Cleveland Bob

Citrucel is Gluten Free.

Best of luck!

Cleveland Bob

Frozen Thin Mints and Tagalongs are but a distant memory now......sniffle, sniffle!!!!

Cleveland Bob

Gotta be classic rock.........

70's Springsteen

70's Genesis

The Who

The Stones

Led Zepplin

The Kinks

Cheap Trick

BTO

Styxx

Meat Loaf

Steely Dan

Areosmith

Rush

For a change of pace I also listen to.......

Jimmy Buffett

The Ohio University Marching 110 (Go Bobcats!)

Rock On,

Cleveland Bob

Found Redbridge @ Giant Eagle in Cleveland. It's good. It's also good to have some choices especially outside of the health food store route. Paid $7.90 for a six pack.

Cleveland Bob

Aside from double-checking to see that your supplements are in fact gluten-free.......Be careful with taking Iron. Some people don't excrete the excess Iron and it builds in the body's cells and can cause all kinds of bad things to the internal organs.

Best of Luck,

Cleveland Bob

Jerry,

Welcome to the wonderful world of Celiac!

Your description sounds very familiar especially during my first year post diagnosis. I had several bouts with anxiety and feeling shakey. It was only thru this forum that I didn't go crazy. People like Deb (and countless others) were there to share their similar stories and help me feel as if I wasn't alone in this disease.

Got a question? Ask away. Need to vent? Do it. I guarantee that there is somebody on the forum who has dealt with the same problems.

Best of luck!

Cleveland Bob

Christy,

Welcome aboard!

I don't know about a "great" doctor (Is there really such a thing?) but, I have been going to Dr. Michelle Inkster at the Cleveland Clinic - Independence office. She is a gastro specialist who diagnosed me via endoscopy & blood work and, has been receptive to my questions/concerns post-diagnosis during the past two-years. With that being said I think most Celiac people will tell you that you just have to listen to what your body is telling you. If you feel good then run with it. If you feel lousy then you need to make some changes until you find a happy medium.

Best of luck!

Cleveland Bob

The number is 812 (300 is considered high).

Cleveland Bob

Hey all........It's been about 6-months since I've been online as I started a new job. Everything is going well and I have been feeling better.

My recent check-up showed an abnormally high level of Ferritin in my blood. All my other blood work was normal and I had a recent bone scan which was also normal. I did some online research for high Ferritin and I don't like the possibilities......

Any ideas on lowing the Ferritin? Anybody else have high Ferritin?

Thanks,

Cleveland Bob

Genesis - Platinum Collection

The Rolling Stones - Flashpoint

Steve Miller Band - Greatest Hits

E.L.O. - Greatest Hits

Can You Tell I Grew Up In The 70's?????

MeatLoaf - Bat Out Of Hell

Steely Dan - A Decade Of Steely Dan

Queen - Greatest Hits

Eddie Money - Greatest Hits

Rock On!

Cleveland Bob

I've enjoyed them for about a year without any problems.........

Best of Luck!

Cleveland Bob

Jen,

Based on my experience I have come to understand that medicine is not the exact science I once thought it to be. Doctors are guessing based on any number of variables. Guess right and order the correct tests then you've got a good doctor. Guess wrong.....well, we've all been there.

Your best bet is to listen to what your body tells you. Going gluten-free for a while won't harm you any and if you feel better then you know you're on to something.

Best of luck!

Cleveland Bob

I've had the brain fog, tongue tied thing the past two weeks. It feels like someone has placed a rubber band around my head. Never experienced this before and I've been gluten-free for 17-months. It's hard to concentrate especially since I work on a computer all day.

Cleveland Bob

Don't panic....................It is very normal for celiac disease people who have intestinal damage to pass foods that are undigested. Corn and nuts are noticable as well as lettuce like you mentioned. Over time you will notice less and less of these items in the bowl as your intestines heal. Just be sure to try and chew your food as good as possible to help your digestive system and avoid the big offenders until you feel better.

Best of luck!

Cleveland Bob

Your husband is about the same age as I am. I drank High-Protein Boost for a few months to help w/ the fatigue. Any flavor except chocolate malt is gluten-free. Don't worry, the fatigue will pass eventually. Now I'm back to playing softball, golf, walking and bicycling.

Best of luck,

Cleveland Bob

Jen,

I knew you had good taste (How could you not w/ relations that come from Cleveland, right?). I usually just have it over ice and enjoy some smoooooth sippin'.

Hope all is well,

Cleveland Bob

Ain't nothing wrong with the old spuds & whiskey diet....................hiccuip!!!!!

Erin Go Braugh!

Cleveland Bob

Makers Mark is the finest bourbon I've ever had. They don't advertise much so you may not have heard of them but, trust me, it's some smoooooooooth stuff!

Cleveland Bob