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Lesliean

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Lesliean

  1. Lesliean
    Chrissy, sorry I was unclear about minimal villi flattening and negative blood work. Many 'healthy' people are picked up by positve blood work but don't have a positive biopsy. In the past they would have been told to eat wheat. That they don't have celiac disease. But there are also people who have autoimmune diseases, little or no villi flattening,...
  2. Lesliean
    In a perfect world the test would be definitive for the disease but the blood tests for celiac disease are not 100% specific nor sensitive. Ema has a high sensitivity and specificity (according to the article posted at facs at this website) because it correlates to total villi atrophy. Anyone with a negative biopsy is considered negative for celiac disease...
  3. Lesliean
    I have an e-mail in to Cara. I'll post her response if I get one. Maybe she will know something. So many of us use more than one website and gravitate to one or the other for different things. I always refer to celiac.com for banned ingredient lists but use braintalk for recipes... The message board is just a personal preference. Thank God both are available...
  4. Lesliean
    I think of hastypastry.com or braintalk as the other website with a great message board. Similar to here with a huge research collection to peruse. Since they went down a month ago there has not been a single update on the status of their upgrades and repair. That is a bit disconcerning. Does anyone know the status of hastypastry.com? When they will be...
  5. Lesliean
    Does anyone know the status of hastypastry.com? Its been down now for a month tomorrow and there have been no updates. Leslie
  6. Lesliean
    I started with Bette Hagman's recipes but then made it a more fiber rich and complete protein by changing it a bit. I also like it much better than the bland potato starch/tapioca starch heavy processed breads I've tried. I use 1/3 each corn, garbonzo, and tapioca flour in everything from breads to cakes. and 2 cups of this mix with 2 cups of corn meal for...
  7. Lesliean
    I'm a month behind your post, celiac3270, but can I get a copy too? Please? jlanders@alaska.net
  8. Lesliean
    Yea! Thank you Laurie. I bought some Bob's Red Mill Buck wheat today.
  9. Lesliean
    Been pouring through the Mountain House ingredients and it doesn't look good for gluten-free camping. Anyone know of a freeze dried dinner and breakfast pack company? My husband is taking my diagnosed daughter on their third annual rafting trip in the ANWR preserve in Alaska and room is of the essense. I can pack gluten-free for the trips we take, but for...
  10. Lesliean
    I haven't been diagnosed but noticed severe eye dryness and vaginal dryness (as well as yeast infections) went away as if by magic when I went gluten-free. I hope you get relief soon.
  11. Lesliean
    My presenting symptom was reflux and after 2 years of Pepacid I diagnosed thru Enterolab and the reflux went away within weeks of being gluten and dairy free. Also a congestion in throat and nose and ears went away. Only then did I realize all the gastro problems had not been normal. As well as irregular periods, heart rate...
  12. Lesliean
    I'm hooked on the Spice Hunter's spices. Does anyone else use them and are they ok? I called them and they said they don't add gluten but don't keep a gluten free plant. Is Kraft bar b que sauce gluten free? I could never find out and you would make my recently diagnosed daughter very happy if you say yes.
  13. Lesliean
    Is buckwheat ok for us to eat in America? I see Bob's Red Mill buckwheat when I shop and have been tempted but not till you tell me it's ok.
  14. Lesliean
    I'm vegan in addition to gluten free. Here is a great link to great recipes: Open Original Shared Link And here is the link to all the recipes: Beverages - Awesome Ones for All Seasons Open Original Shared Link Bread, Muffin, Cracker, Crust & Crumble Recipes Open Original Shared Link Brunch and Breakfast Ideas Open Original Shared...
  15. Lesliean
    Kaiti, When people ask for what tests to be done I always wait for your answer. You put a great panel of tests up with clear guidance. The study link for my first post was on the post and here is the header to it that I did leave off: Rom J Gastroenterol. 2003 Jun;12(2):101-6. I brought this abstract in to show my specialist and he was very impressed by...
  16. Lesliean
    I hear what you are saying. But these aren't articles on the web. They are abstracts from medical peer reviewed studies. My vote is for several tests to be done at one time and to not rely on one or two tests.
  17. Lesliean
    tTga misses up to 70% of celiacs so the anti-gliadin tests are very important. I am a lot less concerned about the relatively low sensitivity (being positive when you don't have it) than I am with a low sensitivity (being told you don't have it when you do) of the individual tests. The problem, as I see it, is that untill you have an advanced case with moderate...
  18. Lesliean
    I found a great corn bread recipe in Joy of Cooking and just subbed Bob's Red Mill All Purpose Flour for the wheat flour in the recipe: Preheat to 425 3/4 cup gluten-free flour 2 1/2 tsp baking powder 2 tbsp sugar 3/4 tsp salt 1 1/4 cup cornmeal 1 egg 2 tsp oil 1 cup milk or soy milk Mix wet and dry separately and then mix together. Put in pan...
  19. Lesliean
    Thank you dperk for your complete discussion of nutritional yeast. I bet some people love it and some can't tolerate it. It's always great to hear your thoughts Marianne. I am trying to research soy. The website I linked to talked about different estrogen receptors and how the estorgen like substance in soy is different and beneficial compared to hormonal...
  20. Lesliean
    I don't think soy is a bad food for anyone (unless you are allergic) , at any age. Asian people eat up to 100 times as much soy as Americans and have fewer health problems across the board. The incidence of breast cancer in China and Japan is much lower because of the amount of soy they eat. See: Open Original Shared Link (I prefer the google.scholar professional...
  21. Lesliean
    Welcome to the boards and I am so sorry for what you are going through. You certainly sound like something is going on with food sensitivities that may include Celiac disease. Celiac disease has many symptoms but often includes problems with the gut like diarhea, constipation, gas, pain... Doctors can do blood tests for Celiac disease and with all the...
  22. Lesliean
    When a blood test, especially EMA or tTG comes back positive I think you can conclude the diagnosis is positive for Celiac disease. The biopsy is no longer always recommended as some doctors think it is like waiting for the heart attack to verify the EKG test that measured heart irregularities. The tTG test already shows a reaction to gluten. Here is a...
  23. Lesliean
    Glad the calcium helps with the cramps. Muscle cramps can also be caused by potassium deficiency. The villi tips that are damaged by celiac disease are where calcium is metabolized. 50 to 100 % of celiac disease patients have significant bone loss (which they regain, in part at least, quickly as they heal). I take Citracil because it can be metabolized on...
  24. Lesliean
    I love your answer Judy. You explain so clearly the difference between celiac and gluten sensitive and how we all need to be gluten free. Enterolab feels you well get an accurate testing up to 2 year gluten free as fecal samples are more sensitive to the tests. One year seems a long time and you might be negative and need to retest on gluten but at least...
  25. Lesliean
    Tori- Fatigue, irritability, mood swings, depression are certainly symptoms of Celiacs. I would imagine intense angry feelings can be too. Hope you root out the causes of your health problems. Mine certainly turned around for the better with a gluten free and lactose free diet. I too had problems with dairy all my life. Temporary damage to the intestines...
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