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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by torimuse
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I'm very new to this, as my signature suggests. With my move and everything, I just wanted to get food. I was thankful that the manager came up and warned me, but I was irritated that there was absolutely nothing in the entire place that I could eat. Not even fresh veggies or anything. I knew they had veggies because of salads and the celery that comes...
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ARCHIVED It's Official....i Am Crazy!
torimuse replied to kaki-clam's topic in Coping with Celiac Disease
I'm another person to suggest going on a stricter diet for a bit and see if that helps. 2 weeks after going gluten free, I discovered myself reacting still, and so I (very extremistly) cut out ANYTHING that might possibly be giving me a reaction. 2 weeks into the re-introduction period, and I'm SO glad I did. I found a hidden shellfish allergy that I hadn... -
So I moved to Omaha last Sunday, and my friends decided to take me out to Old Chicago, because they have steak and salad on the menu, and I LOVE steak. Anyways, we got there, and I started asking the waitress the litany of questions I have to ask, and it seemed like I'd be able to get a pretty good meal out of it. She goes back to the kitchen and out...
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ARCHIVED Want To Cry-So Frustrated!
torimuse replied to lvpriest's topic in Coping with Celiac Disease
Just as everyone here has said. You're not a fraud. It's not all in your head. I had very similar feelings myself when I stumbled across this board. I went gluten free too soon, and my doctor wasn't able to test me, even if she wanted to. (which she didn't) I have since decided that my body is a better diagnoser than anyone could even try to be. If... -
I'll have to go check that forum out when I have time. Thanks. I'm so happy to be back in Omaha. I hope to meet you when you get back, then.
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ARCHIVED Got The Diagnosis, Doc Thinks There Is More...
torimuse replied to vbecton's topic in Coping with Celiac Disease
Have you tried taking yourself off of nightshades, beans, or corn? Some people on here have problems with those. WARNING: Corn is in EVERYTHING. Baking soda, Iodized salt, etc. Someone here posted a link to a corn allergy site (I can't remember where that was) that can help find where corn is hiding. -
ARCHIVED Happiness!
torimuse posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
On Saturday I will be completely gluten free (with 2 cases of accidental glutening) for 3 full weeks. I was self-diagnosed after I graduated college this year, but stopped by to see some of my old professors who had to work over the summer. All of the people I saw remarked about how healthy I looked, even to my Band Director noting that my HAIR of all things... -
ARCHIVED Gluten-Free 2 Weeks And Counting
torimuse replied to Marz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Congrats on feeling better, Marz! I'm glad you're finding out what you can and can't eat. -
ARCHIVED Gluten Free Pulling A Bait And Switch
torimuse replied to kimann79's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This happened to me. I was gluten free for 2 weeks, was on the verge of feeling better, then BAM, back to what it was before. Granted, I also reacted to milk just after symptoms started coming back. Maybe you have a secondary intolerance for milk or soy? Everyone's different, but I went and stuck it out, chalking it up to Gluten Withdrawal and some... -
ARCHIVED Blood Test Negative But Diet Is Chaning Everything!
torimuse replied to IngridBeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hey, that sounds like me! I used to drink a TON of milk, but two weeks after going gluten free, I reacted to milk within 5 minutes of drinking some. I went to the extremes and cut EVERYTHING out of my diet that might have any chance whatsoever of giving me a reaction, and I'm going to start testing them here in a couple weeks. I can be an extremist at... -
ARCHIVED When Do You Know
torimuse replied to kcseb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It does sound like a gluten intolerance. The test probably showed up negative because you'd cut gluten out for so long before testing. I don't know much about any home tests, but I know the hospital tests that draw your blood require you to be on a high-gluten diet for at least 4-6 weeks before the results are anywhere near accurate. That being said... -
ARCHIVED Fatigue And Other Symptoms--Cause?
torimuse replied to pinktulip103's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm going to preface this by saying I am by no means an expert on anything. However, that being said, yes. Do go get yourself tested. I caught this after only a year and a half, but the fatigue was already devastating. I almost didn't graduate college because I started sleeping through class. Now I can't go to sleep. (just kidding, but it sure feels... -
ARCHIVED Mum Needs Help/advice
torimuse replied to Faery Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
ME!!! Granted, I'm still new to all of this myself. I haven't even been gluten free for a month yet, and I'm feeling LOADS better. Hell, me staying up 'till 3am and KNOWING that I can wake up tomorrow in the late morning is enough for me to stay gluten-free, not to mention all of the intestinal problems that have GREATLY lessened. My doctor refused... -
ARCHIVED Is It All In My Head?
torimuse replied to torimuse's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
::hugs mushroom:: Thanks for all your information. Now that I know that, I'll probably end up separating green beans and peas from the others if I end up with a reaction, just to be sure. I don't *think* I have a lectin intolerance, but it's one of those, "You never know until you try," kind of deals. I *did* react to pork and beans, but they *did* have... -
ARCHIVED Is This A Real Possibility For Me?
torimuse replied to brie1120's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, welcome to the misfits club. Most of us had doctors that refused to test us at one point or another, so props to your doc for testing you!! You're definitely not crazy. I never wanted this. Nor did any single person on this forum. Far as I can tell, though, we're every single one of us happier knowing what it is that causes us to be sick. We... -
Ummm....brand name Rice Krispies has Malt in it. It's not gluten-free.
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ARCHIVED Is It Possible To Eat gluten-free In A Household Of G-Eaters?
torimuse replied to kimann79's topic in Coping with Celiac Disease
Cooking gluten-free and not telling gluten eaters is the best game EVER, in my opinion. kimann, some things you REALLY need to watch out for in the mixed kitchen are the teflon coated pots and pans, and any cutting boards you use, especially wooden ones. If you've used your teflon pots and pans for gluten, either toss those, or buy new ones that are... -
First of all: Congratulations on not slipping up in your first week. Welcome to your second. >:-) Secondly: I'm going to ditto the above posts. I had CC issues at Denny's when they cooked my food separately, (or they said they did) but used a skillet that had in the past been used to cook french toast. I'm only on my 3rd week gluten-free, but my...
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ARCHIVED Sad About Communion Today
torimuse replied to sandsurfgirl's topic in Coping with Celiac Disease
My dad is an usher at his church, and one of the women in his small group is allergic to just about everything. There was a little baggy with a single wafer in it, labeled gluten, soy, dairy, and I don't know what else free, last time he went to give communion. They also have a separate tray with gluten free wafers in case people need them. I'd talk to... -
Congrats, K8!! That's amazing.
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ARCHIVED Is It All In My Head?
torimuse replied to torimuse's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks, Marz. I move in one week and six days...well, it's practically 5 now. (10pm my time) I think the time will seem to go faster once I get there and will be at the point where I have to consciously gage what I'm eating and what reaction I'm getting. Aka, the sheer nervousness of "Will I get a reaction from this?" I'm thinking of at least waiting... -
ARCHIVED Is It All In My Head?
torimuse replied to torimuse's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My only discouragement right now is that it could take as long as October or November to get final results from all of this. I've never been a very patient person, but now I really, really have to be, and it's driving me up the wall. -
ARCHIVED Gluten Withdrawal?
torimuse replied to carriecraig's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I went gluten free for a week, then challenged for a week before going entirely gluten free. That first week was amazing. Everything started feeling better for once. When I challenged for that week, I tried to keep my gluten intake to small amounts, maybe once a day. When I went back to being gluten free (almost 2 weeks ago, now!) I started noticing... -
ARCHIVED Is It All In My Head?
torimuse replied to torimuse's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It was somewhere on this board that I first read about it, and then within a couple days I ate a can of pork and beans and had a reaction. Granted, I could've been glutened by "natural flavors," (2am and a holiday, couldn't call the company) but it's one of those "better safe than sorry" moments for me right now. The only problem I'm having is trying to... -
I'm moving out to Omaha in 2.5 weeks, and I was wondering if there was anyone here from that area. Omaha, Lincoln, Des Moines, Sioux City...I'm not beyond traveling to other locations to meet cool people. And right now, I haven't met any uncool people on this form.