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gifree

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About Me

Diagnosed with Celiac disease - near complete villous atrophy - in June of 2010; still struggling a bit to figure out the best diet and lifestyle, as well as cognitive and mental health path. The diet is actually somewhat empowering...if only I felt better damnit!

  1. gifree
    Hi Joni- Thanks for the reply; sorry for the extremely tardy response. I found an integrative medicine doctor in collingswood that I'm scheduled to see in approximately a month; currently on Armour, but likely need to increase the dosage; also have read that while meds may help manage hashimotos, it's best to deal with the underlying immune response....
  2. gifree
    Thanks all for the feedback. I wish this wasn't all so confusing. Frankly, I felt a 1000% better before being diagnosed. It's as if switching to a gluten free diet started a downward cascade of autoimmune-associated conditions. My plan is to have a second food allergy panel and this time, follow it. I loosely followed the original results because my highly...
  3. gifree
    Hi There- So, It's been 3-years since I was diagnosed and unfortunately, It's been all downhill since. Symptoms seem to be multiplying, not abating. Most recently, I was diagnosed with the early stages of hashimotos and prescribed a low dose of tirosint, which has made me feel very spacey, non-functional. I'm wondering if the extreme fog is any indication...
  4. gifree
    Interesting. So, you are taking an iron supplement. I guess it doesn't upset your stomach? I can't decide which sucks more, the fatigue, the stomach aches, the brain fog or...I'll just go with D: All of the Above!
  5. gifree
    I appreciate the encouragement. I wish I didn't have to continually educate myself; love the stories about folks who go on a gluten-free diet and voila...instant health!! As for me, the gluten-free diet immediately produced some rather nasty withdrawal symptoms...which I guess was a precursor to the rest of the health issues that followed. Also, I found some...
  6. gifree
    Hi Gemini, Thanks for the response. My thyroid #s were not horrible. My TSH has typically been between the low 2s and mid 4s. I know that's within the American range, but have read that for some, even a slight move can be troublesome. What finally inspired my endocrine to put me on tirosint was the TPO level, which I believe was 100, with the high end...
  7. gifree
    Greetings All: I wish this were a feel-good post... I was diagnosed with classic celiac disease 3-years ago and have felt progressively worse ever since. My symptoms prior to diagnosis were mostly neuro-related. I was reasonably fatigued most days, found it exceptionally difficult to focus on anything that didn't interest me, had anxiety and a somewhat...
  8. gifree
    Yeah, it's definitely disturbing how unaware the medical establishment is of celiac disease...so asking a random practitioner about celiac/cognitive connections is a reach. I was at an event not too long ago hosted by a local GI practice and the presenting GI showed the audience brain images that contained celiac-attributed white matter. He spoke specifically...
  9. gifree
    Thanks for the feedback, Paul. Yes, at times, it does seem like there are no answers. Strictly following a gluten-free diet doesn't appear to be enough unfortunately. I'd just like to know what to do to stop the stomach stuff NOW. I did go to my primary care today. He's a truly exceptional Dr. -- and has been a great launch pad in the past for alternative...
  10. gifree
    Thanks so much for the reply. I'm encouraged by the outcome, discouraged by the length of time. I really hope to be able to make some progress sooner. Frankly, I'm a bit disappointed that I've allowed myself to go on like this for as long as I have. I had a food allergy panel conducted shortly after diagnosis and inquired with my GI about some of the issues...
  11. gifree
    So, as I'm writing this thread, I'm listening to my stomach churn and attempting to ignore the horrible stomach ache that I've had for the past few days. Unfortunately, even after being diagnosed with Celiac Disease nearly 2-years ago and gluten free (including supplements to the best of my knowledge) ever since, many of the pre-diagnosis symptoms remain...
  12. gifree

    Great game; played tournaments, etc when I was younger, but now mostly play (and teach) for fun. And you?

  13. gifree

    Hey , I see your a Tennis fan ? :D

  14. gifree
    So, so sorry to hear about your emotional and physical trauma. This community has been a wonderfully supportive and educational resource for me and hopefully for you too. Hey, look, now that you know how to manage your condition, you have a whole life ahead of you to live with gusto!
  15. gifree

    Great win for Djokovic and the gluten free diet!

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