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gifree

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Everything posted by gifree

  1. gifree
    Hi Joni- Thanks for the reply; sorry for the extremely tardy response. I found an integrative medicine doctor in collingswood that I'm scheduled to see in approximately a month; currently on Armour, but likely need to increase the dosage; also have read that while meds may help manage hashimotos, it's best to deal with the underlying immune response....
  2. gifree
    Thanks all for the feedback. I wish this wasn't all so confusing. Frankly, I felt a 1000% better before being diagnosed. It's as if switching to a gluten free diet started a downward cascade of autoimmune-associated conditions. My plan is to have a second food allergy panel and this time, follow it. I loosely followed the original results because my highly...
  3. gifree
    Hi There- So, It's been 3-years since I was diagnosed and unfortunately, It's been all downhill since. Symptoms seem to be multiplying, not abating. Most recently, I was diagnosed with the early stages of hashimotos and prescribed a low dose of tirosint, which has made me feel very spacey, non-functional. I'm wondering if the extreme fog is any indication...
  4. gifree
    Interesting. So, you are taking an iron supplement. I guess it doesn't upset your stomach? I can't decide which sucks more, the fatigue, the stomach aches, the brain fog or...I'll just go with D: All of the Above!
  5. gifree
    I appreciate the encouragement. I wish I didn't have to continually educate myself; love the stories about folks who go on a gluten-free diet and voila...instant health!! As for me, the gluten-free diet immediately produced some rather nasty withdrawal symptoms...which I guess was a precursor to the rest of the health issues that followed. Also, I found some...
  6. gifree
    Hi Gemini, Thanks for the response. My thyroid #s were not horrible. My TSH has typically been between the low 2s and mid 4s. I know that's within the American range, but have read that for some, even a slight move can be troublesome. What finally inspired my endocrine to put me on tirosint was the TPO level, which I believe was 100, with the high end...
  7. gifree
    Greetings All: I wish this were a feel-good post... I was diagnosed with classic celiac disease 3-years ago and have felt progressively worse ever since. My symptoms prior to diagnosis were mostly neuro-related. I was reasonably fatigued most days, found it exceptionally difficult to focus on anything that didn't interest me, had anxiety and a somewhat...
  8. gifree
    Yeah, it's definitely disturbing how unaware the medical establishment is of celiac disease...so asking a random practitioner about celiac/cognitive connections is a reach. I was at an event not too long ago hosted by a local GI practice and the presenting GI showed the audience brain images that contained celiac-attributed white matter. He spoke specifically...
  9. gifree
    Thanks for the feedback, Paul. Yes, at times, it does seem like there are no answers. Strictly following a gluten-free diet doesn't appear to be enough unfortunately. I'd just like to know what to do to stop the stomach stuff NOW. I did go to my primary care today. He's a truly exceptional Dr. -- and has been a great launch pad in the past for alternative...
  10. gifree
    Thanks so much for the reply. I'm encouraged by the outcome, discouraged by the length of time. I really hope to be able to make some progress sooner. Frankly, I'm a bit disappointed that I've allowed myself to go on like this for as long as I have. I had a food allergy panel conducted shortly after diagnosis and inquired with my GI about some of the issues...
  11. gifree
    So, as I'm writing this thread, I'm listening to my stomach churn and attempting to ignore the horrible stomach ache that I've had for the past few days. Unfortunately, even after being diagnosed with Celiac Disease nearly 2-years ago and gluten free (including supplements to the best of my knowledge) ever since, many of the pre-diagnosis symptoms remain...
  12. gifree

    Great game; played tournaments, etc when I was younger, but now mostly play (and teach) for fun. And you?

  13. gifree

    Hey , I see your a Tennis fan ? :D

  14. gifree
    So, so sorry to hear about your emotional and physical trauma. This community has been a wonderfully supportive and educational resource for me and hopefully for you too. Hey, look, now that you know how to manage your condition, you have a whole life ahead of you to live with gusto!
  15. gifree

    Great win for Djokovic and the gluten free diet!

  16. gifree
    I feel your collective pain. I'm now 39 and for years have been unable to pin-point why I always felt tired, anxious, and unable to focus. Sadly, it was only recently, with my Celiac diagnosis, that this has all crystallized. Although I'm well educated, I can hardly recall anything from undergrad and graduate school. Celiac has most definitely affected my...
  17. gifree
    Big, big congrats Ravenwood!! I know from personal experience how difficult it is to persevere academically when Celiac affect's one's cognition...so, a big hats off to you! Hang that diploma prominently and proudly!
  18. gifree
    I gather we all heal at different rates. There's just so much to consider...am I getting cross-contaminated, are there other physical concerns to consider...or, is this just a lengthy process?
  19. gifree

    ARCHIVED Poor Memory

    gifree posted a topic in Coping with Celiac Disease

    Hi There: As a follow-up to an earlier post, I'm curious what steps folks with Celiac have taken to either remedy or manage poor memory. I suspect my poor memory is mostly long-term, but may also be poor in the short-term and working department. I've done ample research, but am unsure what next steps to take? I have mentioned the poor memory concerns to...
  20. gifree
    I just want to make sure I'm not doing any additional damage. I can manage the current buffet of symptoms...but I'd much rather feel 'great'. I tested slightly positive (1 out of 3) to a myriad of foods, including corn, which is a toughie!
  21. gifree
    Yeah, I'd say I'm net neutral. My anxiety and headaches are less, but my stomach is more sensitive and the brain fog, fatigue and attention deficit remain. Some of the latter might not necessarily have to do with Celiac and/or may naturally resolve over time or with alternative measures. Regardless, this is definitely a journey, with much education along...
  22. gifree
    n/a
  23. gifree
    Interesting. I'll definitely look into that...along the list of potential cognitive impacts. As for next steps, I'm off to a psycho-pharmacologist on Monday...will let you know what she says. I'd really like some more conclusive testing conducted, to, at the very least, either corroborate the cognitive issues that I'm perceiving or dismiss, with evidence...
  24. gifree
    I gather everyone's body and diet are different. I was always in good to very shape, but over the past few years, started to put on a bit of weight -- married, work, kid, etc. I no longer had the energy nor drive to make it to the gym. Since my diagnosis, 6-months ago, I've actually lost a fair amount of weight. Admittedly, I also haven't felt that great...
  25. gifree
    Warms my heart to see everyone's comments. Have people gone beyond diet and had any testing conducted -- i.e. SPECT scans or neurofeedback, etc.? In my initial quest, I read a number of books by Daniel Amen @ ADHD and he uses somewhat controversial SPECT brain scans to diagnosis specific ADHD subtypes and then recommends a regiment of medication, supplements...
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