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kate1

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kate1

  1. kate1
    Mine didnt drop out till over a year gluten free . It was shedding like mad for 9months ...... I was frantic when i realised how much was coming out! It was when I had a vit d test done and it came back quite low that I started to worry about my hair, i had also been very fatigued and quite depressed through that 9months. I think the lack of vit d contributed...
  2. kate1
    Mines just starting to ease off with some of the shedding after a year! I felt everything you wrote in that opening post. I think calcium, vit d ,protein all played a part in mine. Make sure you get enough calcium if you are dairy free i didn't ........but do now. I eat eggs mpre now for the protein and the biotin. .i think the calcium has really helped...
  3. kate1
    Get your thyroid checked too. Lots of those symptoms there too! I have both.
  4. kate1
    I used to associate the lower back ache just to the coeliac but I have been gluten free two years and still get that same awful aching etc when I have had dairy of any kind. I went dairy free too and keep trying to reintroduce in the hope that I am healed and it was temporary but never feel well after the dairy. My symptoms for dairy dont really fit the...
  5. kate1
    I would be interested too if anyone has any info to read up on. Now that I am I think, doing all the right stuff and eating gluten free when ever I try dairy I have symptoms, that back then I used to attribute to the gluten, the body aches etc.....maybe some of those were dairy symptoms.
  6. kate1
    Thanks so much for all the replies. I think maybe like mushroom says I need to give it longer and then maybe try again. I do believe the dietician is maybe wrong as some of you say and I will find out more. I know its something to do with the proteins in Dairy (as in cows milk) that we react to same as the protein in gluten. I have reacted to egg white...
  7. kate1
    I was pretty mad too when I found out been drinking it for weeks but still having issues , and thought I was being really careful. I drink coconut milk now mainly, sometimes almond milk but it is expensive here in england. There are other brands of rice milk that say on gluten free
  8. kate1
    Since going gluten free 4 months ago I cut out dairy too as I felt it was bothering me. I have tried reintroducing it several times but seem to feel ill after a couple of days of eating any. I am at the moment not eating any. When I saw the dietitian in January she seemed surprised that i was having problems and said it may be the lactose.....but I have...
  9. kate1
    You may have an issue with dairy....theres a lot of milk in a latte from starbucks. Some other coffees in other coffee shops I avoid as the the machine mixes with the whitener can have gluten. i have tea no milk to be safe. Sounds like you are really careful at home i would look for cc out of the house, I rarely eat out for that reason.
  10. kate1
    You will need to give it time. I developed the itching and it went on for 2 to 3 months but I have always had a problem too because of my thyroid or I believe it to be that. When I went |Gluten free last November I itched like mad everywhere, I suspected dairy as one reason. Its calmed down quite a lot now but some topical things like face cream or cleanser...
  11. kate1
    my mum has diebetes, underactive thyroid and I suspect coeliac too although with the coeliac she has never been aware of it.Its only since my diagnosis that i believe she has it with the pain in her side and the bowels although I suspect she would be in denial lol. She is 90 in June!!!!!!
  12. kate1
    I found out by accident that rice dream had possible gluten from barley when I couldnt get hold of any for over a week and bought a different one. When it was in stock again I bought some and was not well all day and was confused, everything I had eaten was Gluten free....so I googled Rice dream and looked on here too!!!!! I have not bought it since......
  13. kate1
    Theres a really good forbidden list on the home page on here and a safe list and also some possibles that possibly maybe derived from wheat. I had a similar experience with some gluten free gravy mix and just could not work out what it was that made me so ill. Mine also had caramel in but caramel powder and only going from memory but thought I read it can...
  14. kate1
    Oh its true alright......I had the worst pain ever they tried to tell me it was the osteoporosis, then I went gluten free and wonder of wonders most of the pain went.I am 11 weeks now gluten free not as fast as you but getting there. my pain was in my neck, shoulders and lower back and buttocks, really bad pain and was walking like a 90 yr old.i think i...
  15. kate1

    ARCHIVED Ups And Downs

    kate1 replied to kate1's topic in Coping with Celiac Disease

    Great to meet you all,you forget sometimes just how many symptoms you had or what you never associated with this thing till you read on here and then you think oh yes .....the itchy ears I had those!!! The anxiety was awful ,I am really layed back now compared to last year, I got upset at the silliest things and really anxious. Thats how I know now when...
  16. kate1
  17. kate1

    ARCHIVED Ups And Downs

    kate1 posted a topic in Coping with Celiac Disease

    Hello all, New to posting not to reading. I was finally diagnosed verbally the week before christmas with coeliac. my problems started way back last march with bone pain, fever , weight loss and the big D on and off but my doc didnt seem to know what was wrong. She sent me for dexa scan as I was underweight and they found osteoporosis. I kept being in...
  18. kate1

    ARCHIVED Fosamax

    kate1 replied to BoydBT's topic in Coping with Celiac Disease

    Fosamax in England is called Alendronic Acid just a generic of same drug. This drug I took for 6 weeks made me severely ill and I stopped it myself. my osteporosis was the first find by my doc and she put me straight on it . Coeliac was found few months later by another doctor. I tried to do some research on fosamax, looked on ....askapatient.com and...
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