Jump to content

beefree11

Advanced Members
  • Posts

    52
  • Joined

  • Last visited

Profile Information

  • Gender
    Female

Recent Profile Visitors

6,475 profile views
  • Victoria1234

    Victoria1234

beefree11's Achievements

About Me

Mom to daughter who is gluten intolerant

  1. What other illnesses/diseases/etc have you also been tested for? Where would a doctor even begin? How long has the inflammation been going on? The malabsorption of vital nutrients? Could there be something else along with the Celiac not yet tested for symptoms are similar? How much time, money - blood can you spare? A non gluten diet is by...
  2. The good in all that is that your doctor has tested you and is treating you. Your diet will be the main issue. Then your support in the way of nutrients, supplements, vitamins and medications. I was never tested for gluten/celiac. I was found to have gallstones, ulcers, migraines and IBS. Oh, almost forgot reflux. As soon as the xrays were read...
  3. My daughter has two blood tests that will only claim a "sensitivity." Her doctor let her decide if she wanted the more invasive procedure to determine damage/inflammation. She declined the biopsy. He said either way she MUST eliminate all gluten. We have. It's family members that scoff. Even with the two separate blood tests showing positive results...
  4. Hello! Congratulations on the wedding coming up!! (My daughter is much like you: reaction to corn, soy, gluten, casein, egg whites) She has Hashimoto's and hypothyroid. Then came the mono/Epstein Barr virus. The gluten sensitivity. Then we found poly-cystic ovarian syndrome. Isn't mono and Epstein Barr and chronic fatigue pretty much the same...
  5. We don't eat any food unless it is prepared by us. Health risk isn't worth it. Even though you "feel" fine, there is no way of knowing if there is destruction/inflammation occurring while going to the restaurant, the party, etc. Know what I mean? We call the banquet halls about special diet restrictions *I know of a couple wedding venues that allowed...
  6. UPDATE -- She graduated *with honors. Actually was chosen to represent school in a sales competition in another state and she truly enjoyed it. Had to hire a cab to get to a store to buy some gluten-free foods since the school did zilch - but they reimbursed her the cab fare and food bills so all is ok. I am just upset there is still NO change as far...
  7. Hi. Not sure if anyone mentioned personal products that contain gluten. My daughter (college senior) decided to remove ALL personal care items that contained gluten and/or its forms since she also had issues/sensitivities to OTHER ingredients. But it might be something to consider. Then those pesky additives that don't actually list GLUTEN, but are: ...
  8. Not 100%, but I found this: Open Original Shared Link Actually, this is "Erin's link" Not mine I am just copy/pasting for you!! This company---True Protein---Open Original Shared Link
  9. Well, could it be similar to cross contamination? I think so. I know my daughter won't use items containing gluten. She does get symptoms: rash, itchiness, etc. But there could also be damage underway once it gets into your bloodstream, via skin. I would not take the chance.
  10. welcome Jill This is THE place for help and suggestions. Right now Im gonna hit the recipes. I understand how you must stop yourself and it will take some time. I must dedicate half of my cooking time - first, for my daughter's gluten-free meals then prepare my husbands meals. He is slowly coming around to becoming gluten-free to help our daughter...
  11. My daughter had her right lobe removed in 2005 after nodules were found. There was no cancer. Her blood tests revealed Hashimoto's and thyroiditis, so she was placed on T4 only-Synthroid. Her doses were changed constantly with each new blood test. Until 2009, when her new doctor placed her on Cytomel too. She has been doing very well. He also found...
  12. I like this! A great way to sum it up, I feel. I recently replied to a woman who claimed that her husband and young son are celiac, but if they happen to eat "just a little" they don't have any problems with it. So she feels they have a minor case of celiac. She truly believes since they are not symptomatic, there is no reason to be careful, especially...
  13. When my daughter went gluten free she removed it as much as humanely possible for months, but in a weak moment took a chance on eating teeny tiny bite of gluteny pizza. Disaster! Learned never to do that ever again. Thru her own experimentation, she just cannot have any. She limits gluten free breads/cookies/etc, just in case. A friend of hers who...
  14. The FermPlus and Olive Leaf extract sound vedddy interesting! thanks Skylark.
  15. I had symptoms of hunger after eating when I was dxd with a peptic ulcer. I am not celiac/gluten intol at all. Are you on supplemental vitamins? As for the skin - there is a thread here : https://www.celiac.com/forums/forum/26-dermatitis-herpetiformis/ that could answer some questions for you! Hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.