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lcmcafee2

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by lcmcafee2

  1. lcmcafee2

    Happy birthday and may God bless you today!

  2. lcmcafee2
    Laura, Actually it is only half over. The Endoscope is Monday. I am hoping it goes as easy as the MRI! I will post and let you know when we get the results from that. Thanks for the words of encoragement, means a lot, and I appreciate hearing them. I hope you get answers for you and your daughter. Didn't I read that you were thinking of checking...
  3. lcmcafee2
    Well Julie had the MRI yesterday and the nurses were great. They put the cream on the back of her hands, so when it came time for the IV she didn't even react. (It took five of us to get the hand bone x-ray done last year... she went crazy) After the first two medications they put in she drifted out ..... She was a real trooper! Once we got home she wanted...
  4. lcmcafee2
    She has the MRI first and I believe they are doing a contrast so that will be another needle. They have said the sedation willl be the kind that I can be there with her almost the whole time. Then the next week is the scope and the sleep medication. I believe they plan to put the IV in to put her to sleep with. We have to be there a half hour earlier...
  5. lcmcafee2
    Oh JEEZ, I have been pushing for the biopsy for our little one now for a year. Last year I was told I was unreasonable to expect them to order the test just because I had Celiac and she had what I thought were symptoms. (Vomits freq. weight is at 29 pounds, below the 5% in height, headaches and she is only 5 years old, mouth sores, windy, says she has ...
  6. lcmcafee2

    ARCHIVED Ohio Doc

    lcmcafee2 replied to whitelacegal's topic in Doctors

    Yes, Dr. Sheets is an DO. I checked into their requirements for medical training and found them acceptable for me. My GI MD referred me to him when he was confused about some of my test results. During the appointment (once there I did not have to wait but a few minutes to see him, they keep things right on schedule) he asked alot of questions like...
  7. lcmcafee2
    Sex: Female Age: 47 Date started gluten free diet: "sorta" Nov. 2004 "for real" March 2005 Suffer from the following on a regular basis since starting treatment: Constipation No Diarrhoea Yes (*) Abdominal pain No Indigestion No Acid reflux No Other related problems nausea, fatigue, depression, headaches, low iron (always deferred...
  8. lcmcafee2

    ARCHIVED Ohio Doc

    lcmcafee2 replied to whitelacegal's topic in Doctors

    I went to Dr. Sheets. He is in the Ohio Gastroenterology Group, Inc. They have three offices I went to the one on Olentangy River Road 614-457-1213. He took his time with me, listened to me and asked a lot of questions. Good luck!
  9. lcmcafee2
    We have 3 & 4 year olds that are possibly celiac disease. They see the pediactric GI tomorrow. Could you send me the play-dough recipe? They just love to play with that stuff. Thanks Laura lcmcafee2@verizon.net
  10. lcmcafee2
    celiac3270, Please send me both lists as well. (Unzipped if you will, I don't know much about computers and wouldn't know how to open it zipped) Appreciate you! lcmcafee2@verizon.net Thanks
  11. lcmcafee2
    Monica, The doctor has no idea yet that I feel our 3 year old granddaughter had celiac disease. We are just now getting a concept of how broad the brush is with Celiac Disease! It has only been 5 months since we even heard of it and I am in the process of documenting her symptoms. She sees a nutritionist on the 14th of this month and I am going to start...
  12. lcmcafee2
    Here is another thought about the 504. It seems like all of the folks that are on this site and post are good parents/educators that are willing to take the time to educate themselves, their children and others about the disease their child has. What about parents that do not have the mental ability to do that? Our son was diagnosed as Developmentally...
  13. lcmcafee2
    You will need the vanilla for the Vanilla Wafers! That was what I enjoyed about them I use real vanilla not the other. I think gluten-free flours or flour mixes can be ucky and the vanilla covers that taste. There is also a recipe for chocolate wafers adding cocoa, that I will be soon trying! Enjoy! Laura
  14. lcmcafee2
    Karen, I read the concern about taking Prednisone and wanted to share with you my experience with it. Taking the Prednisone wasn't too bad for me, maybe you'll be OK with it as well. I first took 10 mg for a week and did notice mood changes , but no let up on the symptoms. Then a couple of months later the doctor put me on it again at 10mg...
  15. lcmcafee2
    Vanilla Wafers 1/4 Cup Margarine at room temp. 2 TBS. Honey 1/2 Cup Packed Light Brown Sugar 2 tsp. Vanilla Extract 1 & 1/2 Cups flour blend (gluten-free) 1/2 tsp. Xanthan Gum 1/2 tsp. Salt 3/4 tsp. Baking Soda 1 tsp. Cider Vinegar 2 TBS. water, if needed In a food processor, combine all the ingred. and process until the mixture forms...
  16. lcmcafee2
    Not sure if this is the place to ask the questions or not. My questions seem to fall into this catagory. I had Tissue Transglutam AB IGA #54, then Gliadin AB IGG #74 and Gliadin AB IGA #29. Both colonscopy and endoscopy did not verify Celiac Small Bowel GI did not verify Chron's (only test done while gluten-free) Colonscopy 5 years ago verified...
  17. lcmcafee2

    ARCHIVED Cd & Exercise

    lcmcafee2 replied to rmmadden's topic in Sports and Fitness

    There is no way in the world that I could jog at this time. OHHH even thnking about it makes me feel ill. (I am going to take Kati's advice and have the doctor check thyroid issues.) There is a cool web site about running and it has an agenda "From couch potato to 5 K in -------- I forgot how long" I tried it when I wasn't symptomatic and did ok....
  18. lcmcafee2

    ARCHIVED Cd & Exercise

    lcmcafee2 replied to rmmadden's topic in Sports and Fitness

    Maggie, I could have written your post ... your symptoms sound so similar to mine. Low energy, rapid heart rate, and that funny feeling (almost like an awareness of it beating in a empty drum?) I have never been able to get energy from exercising, it usually makes me feel sick. I am taking the words of advice from the experienced celiac disease folks...
  19. lcmcafee2
    It is good to read others feel, out of the box, or question normal. I thought I was doing pretty good with my family and explaining to them what I can/cannot eat. Then my son brings over a pice of Birthday Cake and is put out because I told him I could not eat any of it ....even a taste. My other son is planning a wedding and wants me to do the rehersal...
  20. lcmcafee2

    ARCHIVED Finally!

    lcmcafee2 replied to Niteyx13's topic in Doctors

    If/when your blood work comes back and you still feel that your son should be tested or on a special diet perhaps Children Services could intervene for you? I am on the Community Board locally and know they would help if the situation were in this area. They might be able to help educate the father about how improtant the diet is. Maybe hearing from an...
  21. lcmcafee2
    I was never "officially" diagnosed with DH. For years, prior to the doctors even thinking I had Celiac Disease, I would have itchy blisters on my elbows and knees. One doctor thought it might be an allergic reaction to the carpet we have. We are raising our two grandchildren ages 3&4 and spend a lot of time on the floor. No one doctor actually examined...
  22. lcmcafee2
    The doctor that I am going to seems to be aware of Celiac Disease and has a willingness to work to help me. He is Dr. Sheets OD in Columbus. He is part of the Ohio Gastronterology Group, Inc. 614-457-1213. There are probably 15 doctor's in this group. He did the testing at Riverside which is just down the road from the office. My GI doctor referred...
  23. lcmcafee2

    ARCHIVED Survey

    lcmcafee2 replied to flagbabyds's topic in Related Issues & Disorders

    Yes No Female Idea.... post total results ? Would be interesting.. My Dad Yes probably (deceasd now but all the symptoms) No Male My Children Daughter; Being tested for celiac disease No to Diabetis Female Sons; two No celiac disease two No Diabetis two Males
  24. lcmcafee2
    I am new to all this and it is so good to read that there are others! I am 5'8" and am just now getting up to 114 pounds. Most of my teen/adult life I have had to struggle to maintain 100 pounds (I am 46) In the last few years I would add weight then lose it, so at any given time I would weigh either 140 pounds or less. When I would lose it, it would...
  25. lcmcafee2
    FYI In the book WHEAT-FREE RECIPES & MENUS by Carol Fenster, Ph.D. it states on page 244 "Citric Acid" This is always a suspicious ingredient since citric acid can be fermented from corn, beets, molasses, or wheat. While corn is the only source used by manufactures in the U.S., about 25% of the citric acid used in food and drink in the U.S. is imported...
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