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zus888

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Everything posted by zus888

  1. zus888
    Nope. He was sure of it based on looking at it and hearing my history. I did explain that I have celiac and have been eating gluten and that perhaps that the rash is DH. But he was adamant and completely confident that it is shingles. On another note, my thyroid is watched closely - every 6 weeks I am tested. I was hyPERthyroid for a little bit,...
  2. zus888
    Yes, the dermatologist said that he has no doubt whatsoever that it is NOT DH, but shingles. And, he would NOT give me medical clearance for any of my procedures. I'm to go back in 2 weeks to hopefully get clearance. New dates for my biopsy and surgery, which doesn't make me happy.
  3. zus888
    This is VERY interesting. I HAVE decided to get back on the diet, but just not yet. And I am probably going to try to focus on whole foods in general, as opposed to the processed foods. I figure, if I'm going to diet for my health, I might as well go all the way. Processed foods can be something I eat as a treat or on rare occasions, but not as a regular...
  4. zus888
    Well, I'll call. Y'all will enjoy this - Saturday's horoscope: No matter where you go, there you are. Accept your lot in life. It might not be as much fun to be a designated driver, but you still serve a valuable purpose. Gah! I'm working on it. It may take longer than most would like, but I'm working on it. And that's all I can promise...
  5. zus888
    I'll see if the dermatologist can fit me in tomorrow. How long does it take for the results? My D&C is scheduled for Thursday.
  6. zus888
    Oh, and I got an antiviral (even though it is a bit late in the game to take it, my doc thought it would still be in my best interest to do it anyway) and an antibiotic (because one of the areas looks like it's getting infected).
  7. zus888
    Ok. I've been off the prozac for at least a month now. It just wasn't providing any benefit and, in fact, made things worse. I feel SO MUCH better off of it. The hysterectomy (and this will be TMI) is due to several issues: heavy bleeding to the point of ruining clothes and sheets every month; cramps; uterine, colon, AND bladder prolapse; and the...
  8. zus888
    There was no biopsy taken, but these don't itch. They just aren't healing normally. They aren't oozing or anything, but if it were a normal scab, they'd be done and over with by now. Instead, they are still there. They hurt more than itch. And, it's not the skin that hurts. It's a deep hurt, like a bruise or something. Like someone hit me in the rib...
  9. zus888
    Does DH itch?
  10. zus888
    .....aaaaaand now, the doc says those painful "bites" along my bra line are not bites at all, but SHINGLES. WTF? I'm more stressed about all of this than I realized. It upsets me more that I'll probably have to put off the biopsy and also possibly the hysterectomy that I had scheduled for this month. Freakin' A.
  11. zus888
    Funny you mention this. Right after my diagnosis of celiac, I wrote hate mail to my body. On facebook. I won't write what I posted on here because there's a lot of "colorful" language. And, I feel terrible for airing my trials when I KNOW so many of you here have been through a much more nasty hell than I've ever experienced. But...it's my journey...
  12. zus888
    I have to admit that I'm surprised that many of the responses are not what I expected to hear. So, I have been proven wrong in assuming I knew what all of you would say. I've been given a lot of food for thought. Not just from you all, but also from friends. I'm just trying to make some sense of my feelings. I know, rationally, what the correct...
  13. zus888
    Mainly, the freedom. The freedom to just eat whatever is available. I have 3 young kids, so picnics, family gatherings, PTO meetings, etc are frequent. I stayed home all summer because I cannot mentally handle being around food I LOVE, but cannot HAVE. I have no desire to bring my own food in a bag while others are enjoying a buffet of food. I skipped...
  14. zus888
    I don't think I ever once mentioned how I think you feel on the diet. I only mentioned how I feel on the diet. I don't transfer my feelings onto any other people who face this disease. In fact, I find it unnerving that I seem to be the only one who felt and continues to feel this way. I cannot say why I am having these feelings. But it's not something...
  15. zus888
    Some of you probably remember me from my rantings of being on the God-forsaken gluten-free diet. You may also remember that I was having a lot of trouble coping. Well, I'm off the diet. Here's the story. First, I have a number of autoimmune diseases. The worst one is Primary Sclerosing Cholangitis, which, my doc tells me, will likely require me to...
  16. zus888
    Thanks!!!
  17. zus888

    ARCHIVED An Update

    zus888 replied to zus888's topic in Coping with Celiac Disease

    Well, I was diagnosed with crohns in 1994. They treated me with prednisone and I have been getting healthier since. In fact, there are no signs of crohns in my colon any more. Though the blunted villi could be a sign of that. I was diagnosed with celiac at a time in my life when I would consider myself probably the healthiest I've ever been. My biggest...
  18. zus888

    ARCHIVED An Update

    zus888 posted a topic in Coping with Celiac Disease

    I talked my doc into giving me another endoscopy. He wishes that I had some level of better health as a result of the diet, and thinks there's a possibility of it being refractory celiac sprue. We spent a lot of time discussing my mental and emotional issues pertaining to this lifestyle, and barring any overwhelming evidence to the contrary, I'm planning...
  19. zus888
    All I can offer you is hugs. I've been gluten free since March and still am angry and pissed and upset and grieving. The diet has upset my life in such a way that I've had to try Prozac in order to cope. But it made me dead inside, so I had to stop. I hope you have better luck than I. Most people on the board adjust well to the diet and actually see...
  20. zus888
    Doc put me on Prozac. I'm hopeful it will help me deal with this lifestyle. It's a very low dose since I have liver damage already, so it may take a while to have an effect. However, I'm feeling defeated. I hate that this diagnosis has broken me to the point of needing meds to enjoy life again. It's just so discouraging and upsetting. I really...
  21. zus888
    My blood tests were normal. Only the anti-gliadin was elevated, and that was only by a point or so.
  22. zus888
    I actually think this is why it's so difficult for me to accept. I WASN'T sick. I was having a routine endoscopy and colonoscopy to monitor my crohns (which is completely in remission). This was a completely unexpected diagnosis. My biggest problem at the time was fatigue and forgetfulness. But I'm a mom of 3 young kids, so I figured fatigue and bad...
  23. zus888
    Yeah, I'm ok on a normal day. Bitter, but ok. I do think of dinner rolls EVERY DAY. But, it's mainly because it's one thing I have not been able to aptly reproduce (not that I've tried). I figured if it had been done, it would be here somewhere in bold with blinking lights. From what I understand, it's very difficult to get the texture right with the...
  24. zus888
    I'm the only celiac in the house, but I'm also the cook/baker. So, there's NO flour in this house that isn't gluten free. We do have bread and some cereal for the rest of the family and they have their own separate places. Everything else is gluten-free. When I had to make something for my daughter's birthday at school, I bought regular brownie mix mainly...
  25. zus888
    IrishHeart, it is heartbreaking knowing the pain and suffering you've endured for years before coming to this lifesaving diagnosis. And I feel so horrible being so bitter about it when so many here are grateful for it. I'll post what I said on FB after getting feedback from my friends regarding my original post, which merely stated how giddy I am at...
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