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zus888

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Everything posted by zus888

  1. zus888
    I'm wondering if I should do this, and if I do, how do I go about doing it? I mean, should I just take a little bite of wheat bread and continue on with my gluten-free diet to challenge it? It would give me some idea as to my sensitivity if I only have a little bit. Or should I go whole hog and eat gads of gluten-filled foods? I don't want to choose foods...
  2. zus888
    Thanks! I really needed a cookbook recommendation! The Guten-Free Girl and the Chef is just not up our alley. I stick to easy-to-prepare family recipes. No one in this house is going to cook "fine" meals of leg of lamb, duck, or even any fish. I will go out and buy that!
  3. zus888
    I have some dishes that I'd hate to give up - things that call for flour as a thickener. What do you use for a replacement? I know there's a gluten-free "all purpose" flour out there, but wasn't sure if it was any good. I'm thinking I can just use potato flakes for my potato soup recipe? What do you all use for your scalloped potatoes, mac n cheese, stews...
  4. zus888
    I am also VERY lucky to have a dietitian that not only specializes in celiac diets, but has also been diagnosed with celiac himself. He's been gluten-free for years. I feel like I can trust his input, and he keeps assuring me that it isn't THAT bad! LOL! My MIL and DH will be there as well - he said that the appt will take a couple of hours. I'm glad...
  5. zus888
    Yes, I am very lucky to have a caring doc here in Pittsburgh. Don't worry. I'm going on the diet - the weekend of March 5th (I see the dietitian on the 3rd). It gives me a few weeks. Plus, I'm waiting on the kids' test results. Though, it's that weekend for me regardless of where the kids are with their testing. I'm currently going through all my recipes...
  6. zus888
    Thank you Frieze for the research. All I found was depressing news (i.e. gluten-free had no effect on PSC). I know it seems stupid, but I sort of grabbed on to this celiac diagnosis as the solution to all my problems. Although I didn't really WANT this diagnosis and questioned it, I was hoping that the sacrifices I would be making would give me hope of...
  7. zus888
    Can't you call the FDA or something to have the product recalled? I didn't think they could mis-label a product legally.
  8. zus888
    I'm annoyed with this, too. My friend just told me that she ran into someone else who said that they have celiac. Apparently, her whole family has it, and they are "careful" with gluten. She claimed to be gluten-free and "cheats." It's apparently not big deal. My friend told her how I was just diagnosed and how I'm planning to "disinfect" (not my...
  9. zus888
    Thanks for the links Frieze! I couldn't bring up the medscape one. Some depressing news from them: "In contrast to celiac hepatitis, autoimmune inflammatory liver injury do not seem to benefit from the institution of gluten-free diet by itself, but need a specific immunosuppressive therapy." And...Does anyone know what this means? "However in patients...
  10. zus888
    Oh yes, I didn't mean to imply that my other diseases are symptomless. I was quite miserable with crohns 20 years ago and took a 180 degree turn after being put on steroids for a few months. My latest biopsies look GREAT (in the colon, that is), but I know if I go off my meds (and I'm on the lowest dose), I will suffer the consequences. The doc wouldn...
  11. zus888
    I was diagnosed with crohns almost 20 years ago. It's not active, but they still require routine colonoscopies and endoscopies. This was sort of a fluke finding. I've had an endoscopy about 3 years ago and never heard anything about results suggesting celiac. I don't know if the celiac is a new development and independent of all my other autoimmune problems...
  12. zus888
    I feel like the odd man out on these boards. I see so many people who are suffering and can't get a diagnosis. So many wishing they could just get a positive result so that they can figure out what's been going on with them all these years. And...then here I am, diagnosed with celiac after a routine endoscopy for crohns. I insisted on a blood test which...
  13. zus888
    Thanks so much for sharing your knowledge and experiences! I will go gluten-free and give it a try. The older kids have been tested, and I'll be surprised if the younger of the two doesn't have it considering all her food issues, low weight gain, etc. I see the dietitian March 3rd and have some foods I want to "say goodbye" to in the meantime. March ...
  14. zus888
    Ugh. This is NOT the news I WANTED to hear!!! But I think that there is a lot to be said for anecdotal evidence, which is why I've turned to you all. You all have your own personal experiences as well as the experiences of others from this forum. As much as I don't WANT to have celiac or go gluten-free, having it gives me the hope for a better future...
  15. zus888
    1. No symptoms 2. Yes, one could say positive, but I have read that the results could also be due to Crohns, milk sensitivity, and soy sensitivity 3. Positive Gliadin IgG. NEGATIVE Gliadin IgA and Transglutaminase IgA [unfortunately, many normal individuals without CELIAC DISEASE will have an elevated antigliadin IgG, causing much confusion among physicians...
  16. zus888
    My analytical side just can't be satiated. I'm a numbers kind of gal, and I really hate the idea of "try it and see." It is most certainly daunting - and costly. I just want to have a REALLY good reason to do this diet and the numbers are not convincing to me. I wouldn't even call them borderline at this point. Of course, I'm not a doctor or celiac specialist...
  17. zus888
    I had an endoscopy done about a month ago as a routine test for my Crohns disease. Biopsies of the duodenum came back suggestive of celiac. Blunted villi, along with other stuff. Naturally, I googled the biopsy results and found that the findings could also be due to crohns, milk intolerance and soy intolerance. At this point, the doctor suggested I go...
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