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zus888

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Everything posted by zus888

  1. zus888
    How can your doc say that the tests were normal when the gliadin antibody is high??? That doesn't make any sense. To me, that screams "GLUTEN INTOLERANT!" The positive gliadin antibodies are telling you that your immune system is reacting to the protein in gluten (i.e. gliadin). If you didn't have an immune system response to it, then the labs wouldn...
  2. zus888
    Celiac is an autoimmune disease, so even minor amounts will trigger an automimmune response (think about how small viruses are and how they trigger a response). As long as you are eating even the smallest amount, your body is putting an attack on your small intestine. It's an all or none disease.
  3. zus888
    I just googled "strawberry cake gluten" (without the quotes), and got a couple of recipes. I cannot attest to their taste or texture. Some call for a gluten-free all purpose flour and another lists a variety of flours. I don't know my flours well enough to stray from a recipe. This would be my first attempt at baking gluten free and I don't have all...
  4. zus888
    Yeah, I'm only at the beginning of my diet and am not sure when I'll start noticing if I've been glutened. I have heard of people who seem to not have symptoms to suddenly start having them after being on the diet, but I'm not sure how far along in the diet they were before they started being able to tell.
  5. zus888
    I was going to take the advice and make the bread, but they've canceled the Olive Garden trip and are now having a party (dinner and dessert) at home. Great! I think I'm MORE afraid of getting glutened at someone's house than I am at a restaurant. So, now I have traded sadness with paranoia. I can't freakin' win. I think I'll have to fill myself...
  6. zus888
    I'm just wondering. How long did it take (after starting the diet) for you to start noticing when you were glutened? Also did you have symptoms prior to going on the diet? I'm asymptomatic (though I'm always fatigued and people do make comments regularly about my inability to remember anything), and am wondering if there will be a point where I start...
  7. zus888
    Yes, you are definitely right about that, Cara. I think this whole diet would be easier if I had any symptoms of celiac that were remedied by the diet. But, I have no outward symptoms, and I'm not feeling any better (like, more energy or better brain function). I'm sure it's probably too early to notice any changes, but it's still disappointing.
  8. zus888
    I just started the diet on Wednesday and I'm pretty much required to attend the birthday party of my FIL who is turning 70. They have decided to go to Olive Garden, I'm assuming because they know they have gluten-free meals for me to choose from. I can handle watching everyone eat pasta while I have another dish, but it'll be the salad and breadsticks that...
  9. zus888
    Actually, villous blunting and the other biopsy results that are representative of celiac aren't NECESSARILY due to celiac. The physiological changes to the small intestine could also be due to soy or milk intolerance, Crohns, intestinal carcinoma, lymphoma, and some others that I cannot remember. Yes, the chances of it being celiac is much greater than...
  10. zus888
    I've been thinking the same thing too, but can't decide on what it is that I want. I got my first tatt last year for my 40th birthday and LOVE it. I've been itching to get another, but I know I want it to be meaningful. I can't just get one to get one. I chose a white ink tatt above my wrist. I love its subtlety and that I can see it whenever I want...
  11. zus888
    Yes, but my Gi doc had a the complete opposite recommendation. I also got a 2nd opinion with the same recommendation as my Gi doc, which was to go on a strict gluten-free diet and get re-scoped in about a year. That's really the only way to rule out or confirm celiac. (Villous blunting was found in endoscopic biopsy, but blood tests were mostly negative...
  12. zus888
    I did have very bad diarrhea. I'm probably having another test after about 12 months gluten-free because there is a possibility that my villous blunting is not due to celiac. My blood tests were normal (save for the gliadin IgG, which was a weak positive). The only way for me to know for sure at this point is by going on the diet and getting another...
  13. zus888
    I was once diagnosed with ulcerative colitis, but, apparently it was actually crohns (or maybe after many years, turned into crohns). I am on asacol and it makes a tremendous difference. I seem to react very positively to steroids and asacol (steriods being a whole separate issue here). Anyway, I was so bad that I needed the steroids initially to help...
  14. zus888
    I get allergy shots and have gotten them most of my adult life. They have made a HUGE difference in my ability to function as a normal human being during allergy season. Also, I'm now able to have a dog without any allergic reaction! I did take a hiatus because I thought I had to go off of them while trying to conceive - stupid idea. I didn't get back...
  15. zus888

    Thanks for the friendship! It's nice to know I have a buddy near by! :)

  16. zus888
    Yeah, I would agree that celiac is just one end result of gluten intolerance. I believe that all gluten intolerance is an immune system response, it's just that celiac also has the autoimmune component where the body attacks itself.
  17. zus888
    If you have silent celiac, then how do you get diagnosed? Did you ever have any symptoms?
  18. zus888
    There was a recent symposium in San Diego (I think) and they discussed this very issue. I think the average for side effects is 50 mg of gluten, but one person was affected by 10mg. I can't remember if this was looking specifically at villi damage or at just outward symptoms, like nausea, cramping, etc. I would expect that if it's an immune system response...
  19. zus888
    LOL!! Mark Dinga? Small world!
  20. zus888
    I had an endoscopy and colonoscopy as a routine follow-up for Crohns Disease. The endoscopy showed villous blunting and the doc wanted to diagnose me right then and there with celiac. I insisted on the blood tests because I wasn't convinced. The transglutaminase was normal and only one of the gliadin antibodies was a weak positive. If any other doc had...
  21. zus888
    I agree. I was just telling my friend today that I hope I'm the kind of person that reacts when glutened so that I KNOW if I'm being affected. If there's no reaction, I could be constantly glutened and not even know it and consequently be unable to remove the source.
  22. zus888
    Been there, done that. I haven't started the diet yet, but I will be in the next few days. But I've been BITTER. Very bitter. I'm mostly over it now. I had to basically go through a grieving process in order to move forward.
  23. zus888
    Just wondering if there is anyone out there that can't tell when they've been glutened? My dietitian says he has no symptoms and that there are many people who have no reaction to gluten when they eat it while on the gluten-free diet. But he also stressed that even though you may not "feel" it, there's still an autoimmune component going on that is a risk...
  24. zus888
    Ravenwoodglass, I was under the impression that celiac disease was a gluten intolerance that also causes the body to attack the duodenal villi - that basically it's just one outcome of gluten intolerance. Positive transglutaminase antibody indicates that antibodies are directed against the enzyme in the intestines called tissue transglutaminase (tTG...
  25. zus888
    Sorry to hijack the thread, but does a positive gliadin antibody result point to gluten intolerance? Seems to me that anyone with a positive gliadin result would be considered gluten intolerant. And I'm willing to bet that there are a lot more false negatives (translating to more undiagnosed ppl) on that test as well.
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