Jump to content

WinterSong

Advanced Members
 View Profile  See their activity

  • Posts

    548

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by WinterSong

  1. WinterSong
    Because I think the moral thing to do is inform the parents that quotes from their kids will be posted online. I include the option to message me because some parents prefer to not post about their children publicly. I’m pretty sure it doesn’t violate any self promotion since my blog’s name/my full name isn’t stated. Like if someone mentions they wo...
  2. WinterSong
    I'm not religious at all, but I was really upset when the pope totally rejected gluten free wafers. I love what is written above - God/Jesus would not want anyone to get sick. I hope more churches offer totally gluten free options for those who need it.
  3. WinterSong
    Hi! I want to make sure I don't break any self promotion rules. Is this an acceptable post since I do not mention my blog's name and do not include any links? I've been a member of this forum for years. "Hey parents - I'd like to put together a list of positive quotes from kids with Celiac. Quotes will be posted on my blog anonymously (I'm not including...
  4. WinterSong
    I don't think there is anything to stop an autoimmune reaction. However, I would try meditating. The stress of knowing when we are going to get sick does not help us.
  5. WinterSong
    What are your symptoms? Do you know your reaction time? Unfortunately, I don't think there is a way to immediately stop a gluten reaction. Drink lots of water, rest, and be kind to yourself. Sorry to hear that you got glutened!
  6. WinterSong
    Thank you so much for your advice! I'll try some of your suggestions. Unfortunately, I think I'll be skipping the dermatologist if I can manage. Super high deducible means i'd be paying out of pocket
  7. WinterSong
    This is the second time this has happened over the past 2 months. I've developed some very dry skin that starts at the base of one ear and wraps down/under/around my entire jawline. It's not my entire neck - it mostly wraps in a line around my face. My makeup/brushes never touch that area and I haven't changed facial products recently, so I'm totally puzzled...
  8. WinterSong
    I made an informative video for Celiac Awareness Month that demonstrates how small 20ppm is. Am I allowed to post a vimeo link? Thanks!
  9. WinterSong
    Open Original Shared Link This was on last Tuesday. So happy that a popular national news program is spreading good information!
  10. WinterSong
    I am so angry. I am all about universal screening for Celiac Disease. It is a tricky disease to diagnose. Your only symptoms may be joint pain, depression, or weak nails, which people will try to cure with medication or a good manicure. With roughly 80% of the Celiac population remaining undiagnosed, universal screening could save thousands of lives. This...
  11. WinterSong
    Well, that is just wheat. Their bars/squares might be wheat free, as well, but the culprit there is barley. Also I just got this reply: For legal reasons the information that has been provided is the only information we are authorized to provide you with. To reiterate, our products are not certified as being gluten free. FDA requires...
  12. WinterSong
    Hey guys, I emailed Ghirardelli to ask about their updated allergen information because I had heard that people stopped recommending most of their products. I was specifically asking about their chocolate chips because my understanding is that they are free of gluten and not made on the same lines as that one bar/square that contains barley. This is...
  13. WinterSong
    From Mom (she doesn't have a computer at the moment, so thank you for being patient as I post for her): Gemini, Do you take the chewable product as recommended. It appears to only have 300mg of calcium per day? That seems to be to little for someone with osteoporosis? I also saw a product they sell that is extra strength but not chewable which...
  14. WinterSong
    From the mom: Dear Gemini, thank you for your response. I have been to a bone specialist and he said I was loosing bone due to medication I was on. 2 years later with out the medication, following a strict diet, weight training and walking and taking supplements I lost more bone than with out the big push to stop the loss of bone. I would be...
  15. WinterSong
    And yes, she is very strictly gluten free
  16. WinterSong
    From my mom- Gemini thank you for your response. I seem to be in a similar situation except I broke a rib while leaning a weight bench. Even though I have been eating right And taking food based supplements I had a large loss of bone in my right hip. I am trying to come up with a new plan that will stop my bone loss. I am taking 200 k2, 15...
  17. WinterSong
    Thank you all for the comments. A note from my mom (the one who I am helping with research): I was diagnosed with osteoporosis 4 years ago. I was told my only option was to take one of the pharmaceutical drugs. I tried for 6 months and realized I could not do it after much research. I have been gluten free for 5 years and worked even harder at...
  18. WinterSong
    Thank you all for the posts! manasota- how much is your low dose of HRT and which type of doctor perscribed the medication? I would love to know any extra info you find out
  19. WinterSong
    A family member of mine is fairly young (mid 50s) and was diagnosed with osteoporosis most likely cause by a lifetime of undiagnosed Celiac. The medication her doctors have her on only prevents further damage, it doesn't rebuild bone. Also, they will only let her be on it for 5 years because the meds will cause her bones to become extremely brittle and may...
  20. WinterSong
    The holiday season is quickly approaching! What's on your gluten free/kitchen wish list?
  21. WinterSong
    I'm from New York, and I never eat in Times Square when I got to the theatre. It's more than worth it to travel a few minutes to an amazing restaurant. I recommend: Bistango Senza Gluten Colors Friendman's Lunch (near 34th St so not too far away) There is also another Bistango on 55th St I think, at the Kimberly Hotel. I've only been there for...
  22. WinterSong
    Thank you, everyone, for the advice. I may ask my vet for an alternative, but if she doesn't have one I'll just continue doing what I'm doing and work to decrease my anxiety about it. Thank you for sharing your experiences. And bartfull - very sorry for your loss. I'm sure that you had given her a wonderful home and that she lived a very happy life.
  23. WinterSong
    Thank you so much for the advice. I don't think I've gotten outwardly sick from handling my cat's food. My last blood test came back negative, but she lives at my boyfriend's apartment (we're planning on moving in together), and I wasn't seeing her on a daily basis. But emotionally it has been stressing me out a lot, and I'm worried about long term effects...
  24. WinterSong
    I've posted about this briefly in other topics, but I think I really need to make a switch and need help. My cat has been to the hospital twice for severe constipation. The vet put her on a special prescription food to help her go to the bathroom, and now she's healthy and very happy. But it has gluten in it. I'm struggling. My boyfriend mostly feeds her...
  25. WinterSong
    Hi everyone! Just a heads up that there are a bunch of bloggers doing great product giveaways to celebrate Celiac Awareness Month. If you search instagram/twitter/facebook for hashtags like #glutenfreegiveaways, ect you should find a bunch. Sharing the love!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.