Chopper

Well thought out words, well seasoned with salt. Thank you very much! The presentation of the posters here to portray me as simply being wrong or reacting psychosomatically did NOT sit well with me. I emailed my question to six celiac centers and/or physicians. The response I'm receiving does NOT agree with how the posters here have presented the...

Thank you. Well stated!

Taking into consideration every angle I can think of over the last few months, this is quite difficult to reconcile.

A typical reaction to gluten, I think, is shared by most celiacs. In short: flu-like sickness followed by complete emptying of GI tract followed by lethargy. Do the posters here believe that extreme reaction can be caused "psychosomatically"? I can assuredly vouch that my level of being gluten free is extreme. I do not share utensils, cooking equipment...

I appreciate that. I'm just having a hard time accepting that I'm psycho.

I would like to suggest that posters and readers alike consider the difference between vapors from boiling grains versus distillation. In a complete distillation process gluten proteins are completely removed as I'm sure most are well aware. However, when grains are boiling in water, gluten particles do rise with vapor. When my husband is boiling grains...

Interesting how all of your strong opinions label my reactions as psychological. Actually, it's quite insulting. This brings back memories when some friends and family thought if I simply ate more gluten my body would get used to it because there's no such thing as celiac.

Thank you all for your replies. I truly did not anticipate being sick from those incidents - I actually anticipated nothing at all - so it was not psychosomatic. It was several times of truly not being able to figure out why I had gotten ill that lead me to the proper conclusion. For those of you not aware, the syrup used in beer making is highly condensed...

My husband took up a new hobby, brewing beer. After he made it two different times, the next day I got sick. (I'm always sick the next day when I'm glutened.) He didn't believe me when I blamed it on the boiling brew. I volunteered to help at the fire department for their chicken bbq, and I was working in the kitchen with the boiling macaroni. Sure enough...

Thanks for your reply. What you said makes sense. I've done so much reading online and I can't believe this is one thing that I haven't read about. I think it should be discussed more because the doctor and I were wondering if I had refractory celiac. I now have the peace of mind that my villi have healed and the GI trouble I'm having is probably from...

I thought it might be helpful to share with others how after I went gluten free 1 1/2 years ago, my 'stomach' symptoms worsened. I felt full so quickly, would get painful attacks that would lead to vomiting, and I couldn't handle foods with much fat nor fibrous foods. 1 year ago I was diagnosed with gastroparesis. 10 months ago I was diagnosed with Hashimoto...

That's me too! Either the celiac or the Hashimoto's has given me gastroparesis which is also unpleasant, but can be managed with diet and such. I bake every week. Here's my all purpose flour: 1 cup tapioca flour/starch 3/4 cup sweet rice flour (or more potato/tapioca) 1 1/2 cup sorghum 1 cup millet 1/2 c brown rice flour (or more sorghum/millet...

Diane, only once did I intentionally eat a small pretzel to see what would happen and that was after my biopsy came back that my villi were healed. I wanted to know what to expect when I was accidentally glutened. My sister in law accidentally glutened me 2 weeks ago and I'm still feeling the effects. Marilyn, thank you for the illustration, it makes...

Your post made me laugh. I went through a lot in 2011 with 3 different auto-immune diseases and I felt like I could diagnose anyone! Especially after watching every single episode of Mystery Diagnosis! LOL! Chopper

Was that your complete test? If so, from my understanding, milk contains both lactose and casein, so a more accurate test is to consume something with only casein and no lactose, such as hard cheeses like swiss and cheddar. If a cheese nutrition label says "zero" sugars, that means there are no lactose sugars. I wondered the same thing, and still do...