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MitziG

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Everything posted by MitziG

  1. MitziG
    For some reason, I thought they were gluten-free. My kids and I happily ate them from the beginning of dx, and none of us ever had a reaction. A few months ago, while munching on them, I was reading their menu and saw it listed the fries as having wheat in them! What?! So we gave them up. But it bugged me...cuz I always know if there is gluten- within...
  2. MitziG
    A lot of variance from person to person. For me, it was several months before I started having a noticeable reaction to gluten- and probably 6 mos before that reaction became sudden and violent! For my DD, within 2-3 wks of going gluten-free, she would react to even tiny amounts of cc with vomiting. For my son, who was the one with the noticeable stomach...
  3. MitziG
    I will say this for him- he had a sense of humor. After telling him how she got celiac from me, but skin issues from dad, who has palmar psoriasis and alopecia areata and keratosis pilaris, my daughter quipped that she really hit "the genetic jackpot." I thought he was going to wet himself laughing. I always tell her that at least we gave her "pretty...
  4. MitziG
    Just confirms that feeling that if the average layperson could run their own lab work and write their own RX, we could save awhole l9ot of time, suffering and $! Most of us here only need doctors for the legal legwork- we do a much better job of diagnosing and treating ourselves!
  5. MitziG
    I know! It was a total waste of time. I mean, I would think a man who should be familiar with DH would at least know the basics of celiac. I feel sorry for his DH patients who are probably being treated for who knows what else. Sadly, I had already used Dr Google and knew as much about my daughters condition, solar uticaria with co-existing polymorphic...
  6. MitziG
    Took my DD to a dermatologist yesterday as she has now developed a true sun allergy (hives) in response to sunlight. Got on the celiac topic and he tried to explain to me how celiac is a "gluten allergy." So I explained to him that actually it is an autoimmune disorder. He gave me his gracious condescending "I went to medical school" face and said "No, there...
  7. MitziG
    What an arrogant jerk. So tired of doctors who forget why they have a job. Definitely get a letter from the GI with the specific tests and demand he run them. If not, take your business elsewhere.
  8. MitziG
    Bingo. Same as me. I always assumed I had a "touchy stomach" but my occasional cramping and diarrhea were always short lived and didn't cause me too much of an issue, so I never mentioned it to a doc. But the fatigue...my gosh...I begged them to find out why I was so freakin exhausted, I knew there HAD to be a reason...and they just kept giving me antidepressants...
  9. MitziG
    Well, if the doc isn't up to date on what tests should be done, he isn't going to be up to date on treating a celiac either. Perhaps pointing that out to your husband will be enough to motivate him to switch docs.
  10. MitziG
    Naked nuggets? Now I am just getting excited....
  11. MitziG
    Really? Aw, wish I had known that. I just assumed that anything with that much breading would have gluten on everything. Going back to dr on Monday so I will remember that!
  12. MitziG
    Fatigue and ADD were my major complaints for 30 some years. It took 60 mg of Adderall, twice a day, just so I could barely function. I slept 16 hours a day and staggered through the rest of the day with my eyes half shut. Everything tested fine, but celiac. Going gluten free changed my whole life, but slowly. It took many months for the fatigue to lift...
  13. MitziG
    Took the kids to the fabulous Coral Ridge Mall yesterday. This is a big deal because in Podunk, Iowa, where we live, our mall consists of a Sears and a bunch of empty stores. Argh...the food court! They had Subway, Arby's, Bennigans, a gyro place...a CHICK FIL A! I have never eaten at Chick Fil A...but it looked so good. And we ended up eating a...
  14. MitziG
    Your doctors are not up to speed, clearly. Gliadin tests are specific for GLIADIN. Your son is making antibodies to gluten. He has celiac. Ttg tests are frequently negative. Even ONE positive test out of the whole panel warrants follow up. Since they aren't going to dx him based on MY opinion (go figure) request a biopsy be done. I would also ask for an...
  15. MitziG
    I think your dx was accurate. You were fortunate that it was caught very early in the disease, before villous damage occurred. Basically, the anitbodies were there, the lymphocytes were built up, the battle was about to begin.... Because you didn't have damage to your villi yet, your numbers dropped quickly, which is good. I think once the body is in full...
  16. MitziG
    I don't know that I will ever feel "completely healed." But at 1 year I really felt like I was mostly there- that was a big turning point for me. When you have had celiacs your whole life, it is hard to measure what feeling 'normal' is! I know a year and half of being gluten-free has made me feel pretty darn good most days though!
  17. MitziG
    Dairy is possibly the biggest culprit. That you noticed decreased facial swelling in two weeks is significant. I would go another 2 -4 weeks and see where the bloating stands before eliminating another food group though. It can take up to 6 weeks to clear casein protein from your body I have read, and I know for me that was the case.
  18. MitziG
    It is actually uncommon for celiac damage to be visible- only the most severe cases are. The delayed gastric emptying is a big clue that celiac may be the culprit. However, if you have been on PPI's for a long time, they can also cause it.
  19. MitziG
    They don't get it. And they neverIt IS hard- no doubt about it. And I hear you with the whole thing of people saying how many options there are. Cuz yes, I can now buy ridiculously over-priced dried out gluten-free baked goods. Woo hoo. They don't get it. And they never will. But you will learn to tune them out and to find so much comfort in being able to...
  20. MitziG
    Wanted to add: what WOULD be worthwhile is to get a nutrient panel done- vitamins A, D, E, K, Iron, Ferritin, Calcium, Zinc and Mangnesium. Find out where you are sitting now and begin addressing any deficiencies. Eliminate all sources of gluten, then re-check those levels in 6 months. Also, you should be taking a good probiotic to restore normal gut flora...
  21. MitziG
    I am going to provide you the opportunitty to save a lot of time, pain and frustration. You are not likely to test positive on any celiac test. It isn't impossible, but it isn't likely. You either have celiac or gluten intolerance. Your gi will suggest you do a gluten challenge, probably eating a full load of gluten for several months, at which point...
  22. MitziG
    Also wanted to add, most of the name brand ssris are gluten free. Generics are very iffy tho, and vary by manufacturing facility. Your pharmacist will likely need to call the facility directly to get accurate info.
  23. MitziG
    Yep, second the above. Unless you are suicidally depressed, I would hold off a bit. Depression and celiac go hand in hand and MANY people find that they no longer need meds after awhile on the diet. Once you start meds, it can be a vicious cycle...you don't just stop them and have things bounce back to the way they are. They have their place, I am not...
  24. MitziG
    I am going to be brutally honest because I sense you are looking for a way out- and you aren't going to find it. You have celiac. No, your doctor didn't follow protocol in testing, but the blood tests are very accurate and your positive response to the diet confirms 100% that you are celiac. No ifs, ands or buts hon. Sadly, celiac is a whole ball of...
  25. MitziG
    I agree. As someone who was told I had a "wheat allergy" by my mom 30 years ago, and that I "outgrew it" only to be dx with celiac at age 37...definitely find out what tests were done specifically and what your dx was. Don't take your lack of reaction as a sign that it is gone. Celiac often goes "dormant" during teen years- no obvious symptoms but it is...
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