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MitziG

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Everything posted by MitziG

  1. MitziG
    Gluten drama? What a loser. Yeah it must have really sucked for him that food made you suck. Sorry...But I AM vengeful, and there are actually quite a few people I would wish celiac on. Hope your new relationship works out. Just please stick to your guns. If you know something makes you feel bad, DON'T EAT IT!
  2. MitziG
    The aching joints seems familiar. For me, and a lot of us here, casein (protein in milk) will cause a reaction. It is similar in structure to gliadin and for a lot of us, our body can't tell the difference. I had to ditch casein too to really kick the fatigue in the butt. And one of the first things that I notice when I get any, is aching joints. Mmy son...
  3. MitziG
    I would not consider her chance of celiac small at all. She has the genes. She has symptomms. She has a positive response to a gluten-free diet. She is a celiac. Blood tests in young children are not great at catching celiac disease (even worse when they don't run a full panel!) It is probably the rice cakes- guessing they were cc with oats, which would...
  4. MitziG
    You sound a lot like a celiac, and yes, you should be tested. The signs of celiac can be so varied and unpredicatble that the medical establishment would do well to test EVERYONE, before making another diagnosis and writing a rx. Celiac just messes with your body in a m8llion, often vague and unspecific, ways.
  5. MitziG
    My kids stay over all the time, they know the drill. They take a cooler full of snacks (I include extra for the other kid) and I usually make something kid friendly that can be microwaved- mac and cheese, pancakes, spaghetti..etc) I send a loaf of bread, some PB&J, gluten-free cereal and a bunch of fruit. Make sure to send the hot food in a micro safe...
  6. MitziG
    Your bloodwoork was positive. Your endoscopy still showed some flattened villi even after 6 mos gluten free. You can't get much more positive than that. Your GI is a dope however. You can not eat any gluten. None nada zilch. Ok?
  7. MitziG
    Your doctor is incorrect. In order to be tested you need to be eating gluten regularly, for several months. The blood tests look for IGA and IGG antibodies being made in response to gluten. If you aren't eating gluten, your body does not make antibodies. Many doctors are not very knowledgeable about how to properly test for celiac. If you really need...
  8. MitziG
    Some times you gotta risk offending. I just make it clear that because we are extremely sensitive we had to have all new cookware or otherwise my OWN cooking was making me sick. They get the idea. Thank them profusely for their efforts, say how delicious the cookies look and that you wish you could eat them, but you just can't take the chance. You need to...
  9. MitziG
    Nope, not normal. You need to get to a GI and have them find what else besides celiacs is going on.
  10. MitziG
    Very few of us started out with having a problem with gluten. We all loved bread and pasta, with a few exceptions. But when something is killing you, you stop doing it. You apparently have a gluten intolerance. The only test for that is the one your body does for you. When you eat it, you get sick. Perios. There are thousands of delicious foods available...
  11. MitziG
    In the beginning, yes. 3 times, because like you, I didn't have a noticeable reaction. First time, about 3 mos in, was a Twix bar. Felt bad because I had never stuck to a diet 100% for 3 mos before. 2nd time, about 3 weeks later, Hardees crispy chicken sandwich. It wasn't even that good. Didn't get sick exactly, but had some "urgency". Felt like a total...
  12. MitziG
    Your parents need to be educated. It isn't even just about celiac. If the auto-immune response is allowed to continue, you are likely to develop additional auto immune diseases, which they may understand are serious. Rheumatoid Arthritis, Lupus, Type 1 Diabetes, Multiple Sclerosis, Sjorens, Hashimotos, just to name a few. Auto immune diseases tend to cluster...
  13. MitziG
    It is very common in the beginning to have no noticeable reaction to eating gluten. It is also common to begin reacting violently to it once you have been gluten-free for a few months. Until then, you just need to be very vigilant. Utensils should be fine as long as they are thoroughly washed. You need your own toaster, cutting board and colander. Plastic...
  14. MitziG
    Yes, I think there is a good possibility she is celiac. I have tried to get her tested as well, to no avail. She is horribly fatigued, depressed, always sick to her stomach, has asthma and I suspect thyroid issues. So frustrating when you know something so simple might fix all of that!
  15. MitziG
    No, she doesn't work. And she has a lovely stove that works fine. And she does cook dinner every night. But they eat out for lunch almost every day, fast food. And they buy donuts for breakfast and order pizza a lot...and she bakes cakes and pies all week long. Hubs loves his junk food. She will try to make a healthy meal and he will order pizza, or...
  16. MitziG
    Definitely! I was un diagnosed at the time, but had celiac since childhood. With my first baby, she would scream after every nursing, I finally narrowed it down to my eating dairy. When I avoided it, she was fine. She is 13 now, also celiac, and reacts to casein with eczema, edema, fatigue and ADHD/OCD behaviors. My son also reacted to dairy as a baby, was...
  17. MitziG
    Couldn't agree more. Once a celiac, always a celiac. Blood tests only catch it some of the time. Diagnose yourself, and feel better!
  18. MitziG
    Yes, you can call yourself celiac, because you are. And you do not need to offer an explanation to friends and family to justify it. Just say "I have celiac." If the biopsy is negative, no need to disclose that. People will just second guess your decision and constantly try to talk you into eating gluten. Spare yourself that scenario. You ARE celiac. Biopsies...
  19. MitziG
    Ravenwood- Yes, I did try to have her test them, and she agreed. She called the clinic, requested a celiac test, and took the girls in. And while there, the doctor told her that there weren't any blood tests for Celiac but he would run a thorough workup and if something were wrong it would show up. Argh...you know the rest of the story. They are on a low...
  20. MitziG
    Oh I'm a bit of a crank tonight. Sorry. I really have made an effort to be more laidback with her. The issue is that she comes to me and ASKS for advice, crying and frustrated...but if that advice involves real effort- well forget it. The whole family is morbidly obese, and she has been trying so hard to lose weight with exercise and cutting calories...and...
  21. MitziG
    When gluten and casein have been clearly shown to be responsible for the very medical issues these children have, then it would seem logical to me to see if a dietary change might provide relief, BEFORE resorting to powerful, dangerous drugs that can have permanent side effects. But hey, to each his own, right?
  22. MitziG
    They may. For a lot of people it gets better. It can take awhile for the immune system to calm down and go off "high alert." My dd is dealing with the same type of issues and the GI suggested digestive enzymes. Only been a few days but she has been doing better. Might want to try them if you haven't already.
  23. MitziG
    Please keep us updated.
  24. MitziG
    And if you don't know "what cutting dairy out will do"...well I have to ask,"what rock have you been hiding under?!" Gluten and casein are the two most inflammatory foods there are, and are responsible for a myriad of health issues, for more people than just celiacs!
  25. MitziG
    But wouldn't you think it would be worth a TRY? Before giving a 10 yr old antidepressants that will PERMANENTLY alter her brain chemistry?
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