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Meg123

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Latest Celiac Disease News & Research:

Everything posted by Meg123

  1. Meg123
    Thanks everyone for all your reply's. Thanks for the pics too. Poppi, you've had a terrible time of it. Your rash, looks a lot like me daughters 'eczma' does on her legs and arms sometimes when it really flares up. Both my daughters only started getting eczma like rashes at 18 months of age, which was a few months after introducing wheat to their...
  2. Meg123
    what is homolysis? My tTG has been tested four times in total. 1st time was about 20 months ago and it was borderline then then two months ago it was raised at 25 then three weeks later on a higher gluten containing diet went up to 26 then last week after about 8 weeks of tonnes of gluten it went down to 7!!! I feel really stupid...
  3. Meg123
    just another question regarding the similarity to eczma: is it possible that if someone had DH and it was being treated as eczma, that constant use of a steroid cream would help it? I'm thinking of my daughter who suffers from 'eczma', but will never forget a couple of years ago, whe broke out all over her hands and feet with what looked like school sores...
  4. Meg123
    Thanks for posting this though. At least it's not just me. I don't know what to think though .
  5. Meg123
    my bold,I was negative for everything else they tested, but I don't think any of my tests have included endomysial antibody. I've had antigliadin though and always comes back fine. I'm taking note of how I feel, and so far I just feel clearer and brighter, and less bloated. Still have sore joints and fatigue though, will see if being gluten free effects...
  6. Meg123
    Has anyone ever had their levels go down while eating gluten? I recently had a biopsy which was negative. I was eating increased gluten during the 8 weeks leading up to my biopsy, but I just got the results back from the final 'base blood test' I requested. I wasnted one final blood test before going gluten free, so I could compare it in 8 months...
  7. Meg123
    Thanks Ravenwoodglass, for all your help and advice over the past months. I always look forward to your posts
  8. Meg123
    Thanks Hawthorn Yeah it is hard, and is especially distressing when you have young children who need and deserve a lot more of me than I have given them / have been able to give them... No, I'm not going to pursue anything else just yet. Over the years, I've spent a fortune on this, that and everything else. I've had so many tests, scans etc...
  9. Meg123
    Well it came back negative I'm upset with myself for spending so much money on something I knew had a significant chance of coming back negative even if it was positive.... I don't have any of the other conditions that cause the raised tTG, and it's going up slowly, so I'm taking it as celiac disease, like you've all been telling me over the past...
  10. Meg123
    thank you so much for taking the time to post all that. That is really very interesting to me, that you went gluten free, but would have still been having all the traces of it that I would have, and although so much better, still not quite right, that's just what I was like. I was ok, as long as I didn't try and do any physical activity etc, but still not...
  11. Meg123
    Hey Lisa Looking forward to hearing your news from 28th, in the meantime, have a lovely holiday. Have you gone gluten free yet?
  12. Meg123
    Thank you for the lovely welcome See everything else on my panel was negative, and my ttg wasn't overly high, but definately positive. It was borderline 18 months ago, and is obviously increasing. I just have to be patient a teeny bit longer looking forward to seeing the results on this poll.....
  13. Meg123
    Your reasons are the same as me, I have three children, and would pursue testing for them etc. I also am around your age and feel like a pensioner. In fact some pensioners are doing a lot better than me. I'm 38 years old. I also have a history of episodes of depression and anxiety, but with me, it's hard to know if some of it is gluten related...
  14. Meg123
    I can't tell you what to do regarding going to a diagnosis, since you probably already know about all the chances of the false negatives etc. It's a gamble isnt it.... only you know how important it is for you. It was important to me to try. I know I'd always have wondered. Sorry I'm not much help to you, but I just wanted you to know that reading your...
  15. Meg123
    As per usual, I'm going crazy waiting for my results. this time the results are for the biopsy. I might get them next week. I should have put this poll on here 8 weeks ago, but it didn't occur to me then. I've been reading other research etc, but this would have been a great place to start. Ok, so I'm trying to establish the likelyhood of getting...
  16. Meg123
    I just had my biopsy taken (ie a few hours ago) and will get my results back next week, but he gave me a copy of the report. It said that everything looked normal except that the 'Z line was abnormal at 40cms' and this was 'possibly from reflux'. Does anyone know what a 'Z line' is? He took the 6 biopsys but all looked normal. Anyway...
  17. Meg123
    how frustrating. Why is it so dam hard to get an accurate diagnosis either way of this this If it's not one annoying thing it's another. I hope you get it sorted soon. It's just so annoying than no one knows anything about it, and in fact by being on here WE have to educate them, to make sure we get the most accurate diagnosis as possible...
  18. Meg123
    Thinking of you Lisa, all the best, I'm sure it'll be ok. Can't wait to hear your results. Count down to my big day, next Wed 15th
  19. Meg123
    Ok, trying to resist the urge to apologize for the whole TMI thing, it's not easy, to not give a warning, and I guess I'll get used to it. I noticed there is no 'blush' emoticon in here (ie don't be embarrassed!!) Q 1 Anyway, what I am wondering is what would ones stool be like if they were malabsorbing? I had to give a stool sample today and...
  20. Meg123
    Thanks Neroli, me too. I just hope it's accurate, either a true negative or positive. Lisa, mine is costing us $1300 Australian , just thinking of it is enough to make me sick.....
  21. Meg123
    All the best Lisa, I hope you do get those answers, let us know My turn a week tomorrow
  22. Meg123
    Old topic, but I've just been trying to find if there was a link, was googling and this came up. Reading another thread about children got me thinking about my children. My son had pyloric stenosis which was surgically treated when he was 5 weeks old. I tested positive on the celiac blood test, and am awaiting confirmation by biopsy, but my...
  23. Meg123
    I just wanted to say congratulations on your new found health after being so sick for so long, and well done for fidning the answer yourself and finally listening to your good and clever friend. Good luck in staying gluten free.
  24. Meg123
    Thanks for that. Wow it really looks like eczma doesn't it, no wonder you were misdiagnosed. It's just what my daughters eczma looks like too, and I always notice it flair up after biscuits or something....hhhhhmmmm. Will start with me, then move on to the children.
  25. Meg123
    I have a childhood history of allergies and am asthmatic. I tested positive on the blood test for celiac disease. I've seen other threads in here where many celiacs having breathing difficulties / are asthmatic, and their symtoms resolved going gluten free.
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