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Meg123

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Everything posted by Meg123

  1. Following on from my last thread after seeing the Gi, on Wed, I said that Dr wanted me in for his next theatre day which is Wednesday week (was two weeks from my last appointment) but his schedule was booked and so I was going to have to wait 6 weeks since he was going on holiday. Well, the Gi Dr told them to reschedule, and told them to book me in...
  2. Thank you. The insulin resistance was diagnosed when I was gluten light, but not gluten free and not doing the challenge. they didnt' find it with blood sugar levels, it was found doing a fasting insulin level test. It seems over time my liver is doing a great job converting every thing to fat but my body is insulin resistant, so everything...
  3. Just still reading, researching trying to work out / rule out any other cause of my high ttg. Just wondering if a candida infection in my small intestine is commonly known to cause postive ttg in the bloods? A naturopath diagnosed me with systemic candida 2 years ago, and treated me for it. Back then my ttg was borderline, now it's positive. Cant...
  4. What a beautiful post Congratulations and well done on all your efforts and HUGE congratulations on your good health. You give me a bit of hope.
  5. Hi I'm not really diagnosed yet, I'm still waiting on the biopsy, but I've had positive bloods, and the Gi, say's if it's not celiac then I need to get off all gluten anyway as I'm obviously Gluten Intolerant. Anyway, my husband and I are thinking ahead to what I'm going to eat. He's asked me to put together some lists. There are a few things...
  6. That is such a great idea . I think I might do that too if mine comes back negative . I wonder why Gi's and GP's don't do that themselves, it seems so obvious.
  7. Good Idea, I'll look into it. This Dr only does his procedures / goes in to surgery once per fortnight at this hospital. I think he must travel around. He wanted to book me in for today fortnight, which is is very next time in surgery, but his secretary said he's already fully booked, and that HE IS ON HOLIDAY FOR FOUR WEEKS AFTER THAT!!!!...
  8. Thank you Neroli Yes it seems like one big expensive, painful, and sickening gamble really If it comes back negative, I guess I'll have to be asking why I have the positie ttg then? Perhaps it's another autoimmune disorder.... I dont' have any of the other conditions which are recognised as producing a postive ttg. The next thing I'll have...
  9. thats so frusterating. It's annoying enough when DH does that , but when you are paying someone a LOT of money to care and listen to what you say regarding your health, which was why you were there,
  10. Thank you Shauna, I know what you are saying re the biopsy. I thought long and hard about it, and I do plan on going gluten free, but I would always wonder what the biopsy would show. I guess it is important to me. For a few reasons really. I want to (ideally, it I don't get a false negative) know for sure either way, since I have children. I also think...
  11. Hi Again The good news is that he basically took one look at my blood results and said I definately need the biopsy, so I didn't have to fight for it . He spent time and looked at all my past history of tests etc. He did say that whatever happens after the biopsy that I obviously need to get off the gluten. He told me not to just go...
  12. Thanks. So what did it look when when it first started?
  13. Hello I was just wondering how DH starts. I've been looking at pics of it on the web, but I think all the pics look pretty developed. Does it start like that, like bam, one day, there it is in full monster form like that, or does it start with itchy skin, maybe with tiny small bumps? This is what my young daughter and I have, on our...
  14. Hello Again I've been spending a lot of time in here over the past couple of months, I've become a bit fixated trying to work out whether or not to expect to see a positive biopsy or not. Too much googling, read too many study's etc on the chance of false positive ttg in the bloods vs the negative gene test. I'm reading a lot of varying results. Sending...
  15. so does this mean that the ttg test IS unreliable? Thanks
  16. There will be other's a long soon who know more about celiac disease than me, but what your describing sounds like a classic case of what a lot of Drs diagnose as 'Irritable Bowel Syndrome' the whole big D in the morning, followed by the big C in the evening. However, just from my recent research, so many Celiac's are so typically falsely diagnosed with...
  17. If you find gluten is not your problem, and your thyroid is ok, you could be Insulin Resistant. All of your symptoms sound like a lot of mine (but I've also got others too) and I am severely Insulin Resistant. a simple blood sugar test, even a fasting one or even a glucose tolerance test is not nec enough to find it. You will need to make sure you...
  18. I have also been having short bouts of a low grade fever on and off for about 2.5 years (since the birth of my last baby). Usually i get that 'coming down with something' feeling. aches and pains etc and even a sore throat, but it never turns in to anything. I havne't yet had the biopsy, but have had postive blood test for celiac. I didnt know...
  19. I have had ongoing, permanent bad breath (my little children always tell me) since going gluten light,(after a period of gluten free) and have noticed it's been getting worse, but much much worse since doing this challenge. I am also aware it's a sign of candida infection. I was just wondering if any one else noticed that they had bad breath when on...
  20. For the past three years I have had repeated out of range high inflamatory markers in my blood tests. I think it was called the ESR...? Dr usually asks if I have a virus or infection etc. (and again most recently) I was just wondering if undiagnosed (full gluten) celiac's would have this, or if it would be realted in any real, likely sort of way...
  21. I'm in the process of waiting for my biopsy after a low positive on the, bloods and admit I'm fixating a bit. Because I tested negative on the gene test, I'm just having trouble with the likelyhood that I really do have it at this stage (even though I am symptomatic), so need to see what the biopsy shows. Chatting with my Mum today I mentioned how...
  22. I hear you, I really do . I'm so sick of waiting too . For results or appointments, or challenges etc etc for symptoms. Good luck to us all. I hope you get your results soon. I was waiting waiting for my recent results, phoning the centre twice a day, and they were saying 'no not yet' but when I phoned after three days over due AGAIN...
  23. I really don't know anything about the vaccine, so really should not comment, but it's hard to believe it could be that simple as a vaccine.
  24. Do I need to really go in hard on the gluten intake? Like a serious serve with each meal? The thought of it makes me sad more than anything. Sad for my three young children who aren't going to have much of a mum for a while longer. I just want to be well, but I also know I need to see what comes of the biopsy if anything. Definately scared at the...
  25. Hello Again I just wanted to add an extra thank you for everyone for all the help and information and support etc. I think we're all lucky to have this meeting place. Also to the long term informed members here and moderators etc, I think you are amazing to come in time and time again and answer the same questions from new people who are lost in their...
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