RL2011

I have not slept consistently well any time throughout my life. I have learned to not let it bother me or slow m down. Probably the wrong way to handle my poor sleep habits but that is the way it is. I have found that most foods interfere with my getting to sleep so I try not to eat anything for 2 to 3 hours or longer before bedtime.

Not sure if my sleep issues are celiac disease related or if I am just wacky.

I have to say that those replies are excellent. I suggest anyone without celiac disease or gluten issues that shares a household with a celiac disease person read and understand how CC can affect a person with celiac disease.

Great responses last year!

Here's from Mayo clinic:

Open Original Shared Link

Common causes of rotator cuff injuries include:

Normal wear and tear. Increasingly after age 40, normal wear and tear on your rotator cuff can cause a breakdown of fibrous protein (collagen) in the cuff's tendons and muscles. This makes them more prone to degeneration and injury. With age, you may also develop calcium deposits within the cuff or arthritic bone spurs that can pinch or irritate your rotator cuff.

Poor posture. When you slouch your neck and shoulders forward, the space where the rotator cuff muscles reside can become smaller. This can allow a muscle or tendon to become pinched under your shoulder bones (including your collarbone), especially during overhead activities, such as throwing.

Falling. Using your arm to break a fall or falling on your arm can bruise or tear a rotator cuff tendon or muscle.

Lifting or pulling. Lifting an object that's too heavy or doing so improperly — especially overhead — can strain or tear your tendons or muscles. Likewise, pulling something, such as a high-poundage archery bow, may cause an injury.

Repetitive stress. Repetitive overhead movement of your arms can stress your rotator cuff muscles and tendons, causing inflammation and eventually tearing. This occurs often in athletes, especially baseball pitchers, swimmers and tennis players. It's also common among people in the building trades, such as painters and carpenters.

risk-factors

Risk factors

The following factors may increase your risk of having a rotator cuff injury:

Age. As you get older, your risk of a rotator cuff injury increases. Rotator cuff tears are most common in people older than 40.

Being an athlete. Athletes who regularly use repetitive motions, such as baseball pitchers, archers and tennis players, have a greater risk of having a rotator cuff injury.

Working in the construction trades. Carpenters and painters, who also use repetitive motions, have an increased risk of injury.

Having poor posture. A forward-shoulder posture can cause a muscle or tendon to become irritated and inflamed when you throw or perform overhead activities.

Having weak shoulder muscles. This risk factor can be decreased or eliminated with shoulder-strengthening exercises, especially for the less commonly strengthened muscles on the back of the shoulder and around the shoulder blades.

Great info!

I know three other people with celiac disease. Two of them have torn at least one rotator cuff. I've done this as well. Is it just a freakish coincidence, or is this a very common problem with celiac disease? Anyone else had this happen?

I would guess the answer is that rotator cuff injuries are common as we age and a person suffering from celiac disease might be less active compared to people without celiac disease... it is safe to conclude that maybe people that are less athletic and even more less active if you have celiac disease...resulting in people with celiac disease sustaining a higher incidence of rotator cuff tears as compared to the general population.

No idea! Could be. I suggest we all keep fit and strong.

FoodShouldTasteGood Tortilla Chips. I really like these chips and they are made from sweet potatoes.

For $100k you can film me eating a hundred Dunkin Donuts...

Great information!

Thank you.

And keep the shelf-life of foods in mind: Open Original Shared Link

Yes, I am very sensitive to caffeine. I can't drink regular coffee (boo hoo)- it makes me too agitated, but do drink decaf. If I have a headache and take an Excedrin, I feel all revved up from the caffeine. Tylenol just doesn't work for me.

What's odd is that I can eat chocolate. I don't eat a lot of it, but I have one piece of Dove chocolate almost every day without any side effects.

Coffee has caffeine in it and chocolate has no caffeine. real chocolate (cacao) contains theobromine which is has a similar chemical structure as caffeine but it is not the same.

I drink coffee and tea and I do not have a problem with caffeine. As a matter of fact I am a bit cranky in the morning before having a cup or two of coffee. Yes I might be addicted to caffeine...

Sorry to hear about your loss. A few months ago my god-mother and a cousin both passed. I made it to one wake and missed both funerals. At that time I realized I had to get this celiac/gluten stuff under control. The point I am making here is as time goes by remember this event and use it as a source of strength to stay vigilant in keeping yourself as healthy as you can so you don't miss future events.

Stay strong, stay healthy...

Aside from the food issues you will encounter, when you speak of your condition, turn your celiac disease into an asset of sorts. Speak in terms of it providing you with more passion for research even when the research you are doing may not directly impact you. Explain it as a source to boost your empathy when undertaking research in general as you can relate to people's problems.

Just a thought... Wish you the best of luck in your future!

Well said mushroom!

I am sorry this happened to you too. I will track the amount of time it takes for me to feel better and post my results when I feel better.

I ate out last night and I made it very clear that the food I get must not contain gluten. I went through an entire explanation and ordered a simple skirt steak with potatoes. Today i got real sick and it hit me while waiting for my car at a Toyota service center. Not a good feeling sitting there both in the waiting area with a number of long visits to the bathroom.

I paid for the meal yesterday for me and my date and as soon as it posts on my American Express account I will dispute 50% of the entire charge. This does not really equal things but it sends a message to the restaurant to better train their staff.

OMG! I can't even imagine how much you suffered! I went undiagnosed for 8 years with this damn itchy rash and stopped riding 6 years ago due to the misery I was going through on my motorcycle. I live in the desert southwest and the hotter I got the itchier I got! I was building up antibodies for so long that it is taking a long time for me to heal...can't wait to get back on my bike. Maybe in January....

Did you go gluten free? Now that you have healed are you able to ride in the heat comfortably?

I am gluten-free now and never stopped riding. I still get very small patches of rash outbreaks after being in the heat and sweating for an extended amount of time.

My DH started whileon a motorcycle trip last August for 3 weeks and about 8,000 miles. The rash was first noticed whn I was in the southwestern US and after beingoutside for 5 days in 115 degree plus heat. I developed the rash on my back, legsand arms. It was very itchy and was misdiagnosed by 3 different doctors. I continuedon a 3 week motorcycle trip with that itchy rash.

The rash lasted just short of 4 months and finally went away. Every so often Idevelop small red marks on my arms where the rash previously was but it comesand goes without any discernable pattern.

My thoughts about getting poor service:

Speak with the owner, the manager or the corporate office anytime you go to a store, restaurant, or coffee shop after getting bad service or being frustrated by improper or lack of labeling or unknown ingredients. To affect positive changes going forward we all have to voice what happens for a number of reasons beyond the obvious of getting a refund. Proper use of complaints will in the long run (hopefully) improve our lives as we interact with non-celiacs.

If all of us just boycott every place we get poor service from without being the voice for improvement by properly complaining to the right individual(s) we will end up having no places left to go to. So, state your mind and complain to the right person to affect positive change. Try to always lodge your complaint first with the onsite manager in a logical manner then afterwards to the owner of privately owned shops and the corporate office for chains.

In the event you are told by the owner or coporate office after you complain to stay out of their shop or don't buy their product then let us know who they are. Complaints should not be limited to just bad service but also to improper or lack of labeling or unknown ingredients.

Your voice is needed...

Enough ranting from a grumpy guy.

YES IT IS and i am already (secretly) planning a 4-wheeling trip into the mountains (shhhh!)

Good for you! Glad to see you have not let your dietary issues restrict your lifestyle.

I'm going to the Outback with my daughter tonight. I am so excited and nervous....I hope I don't get glutened!

Let me know if you need a food tester to go with you. Have fun!

lol! go rich! you and i are of the same mind - i will explain all day long to people who actually are interested. but to have to answer the same ignorant questions over and over makes me kind of get in their face a little: NOOOOOO. (direct stare) I'M. NOT. EATING. THAT. to the lesser importants: eeeew!! gross!!! get that stuff away from me!! i keep thinking that *maybee* someday these dorks will stop asking me questions, but everywhere you go, there they are...... :/

Notme! I'm glad someone gets my warped sense of humor. I am tough person to deal with when I choose to be and I also enjoy meeting people from all walks of life.

After reading about many other peoples stories here on this forum, I think you have to determine what kind of proof will satisfy you. About 7 years ago I had blood tests done after many years of dealing with gut issues. Those results were negative but the Dr said he is pretty sure I am gluten intolerant and should follow a gluten-free diet. He based this on me having relatives diagnosed with celiac disease. I partially followed his advice and cut down my gluten intake but still ate some foods with gluten and drank a lot of beer.

Over the past 2 years I had been miserable. Bad gut problems and constant diarrhea. Back in March after going through gut hell, I went to Dr (GI) and had new blood tests done the beginning of May that came back positive. The Dr suggested a biopsy and I thought about it for a while. I determined that if I had listened to the Dr 7 yrs ago I would have spared myself a lot of misery. I canceled the endoscope biopsy and made the decision to go gluten-free for life.

I know how I feel now compared to before and I am satisfied with my decision to go gluten-free without that final biopsy determination. If you want to take the guess work out of it and don't want to go back on a gluten diet to get proper future test results then get the genetic test done to see if you are genetically predisposed for celiac disease.

Good luck with your decision and that is a pretty picture as your avatar!

In addition to the great advice given, remember to eat to live and not live to eat. If you know you eating proper amounts to satisfy proper nutrients for yourself then learn to control (ignore) those cravings.

As previously stated, make sure to eat a healthy whole foods diet inclusive of proper fat intake.

JaniceS,

First of all don't get discouraged by other people. You will forever have to deal with ignorant people. Just be firm, straightforward and clearly state your thoughts. I determine who to speak with in a normal manner and I tend to go a little over board and intimidate ignorant people. This comes from managing large groups of employees both individually and as a group and trying to get others to do things my way.

My only advice to you is to learn the best way to get your point across about your dietary needs and learn how to modify the ignorant behavior and the stupid responses you will always get from others.

I said it before here on this forum, don't let any walk on you (verbally) or control your feeling by stupid stuff they say. You are the king/queen of your emotional hill and you alone control who you let knock you off your emotional hill.

Now go out there and kick some gluten in the a$...

Amy,

I am sorry for your loss. It is nice to hear you have good support from friends and family.

I wish there was something I could do to help. You are in my thoughts.

I too am new to being gluten-free (as of May 2011). In addition to eating whole foods, I have found that I have to force myself to drink plenty of water (50+ oz in addition to other liquids) and take vitamins.

For the first 3 weeks after going gluten-free I felt like crap. For the past 2 weeks it has been more mental than physical. I am trying to get myself back into an exercise routine and find that when I am active I feel better.

I am not a veteran with this but I do know that the mental aspects resulting from changing nutirents in the body along with depression must be overcome. Wake up every day telling yourself I will feel better today, damn it. Keep doing that for 30 days regardless of minor setbacks and it will start to becomea self fulfilling prophecy.

I wish you the best of luck!