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Newbee

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Everything posted by Newbee

  1. Newbee
    About a year after I got diagnosed with celiac disease I was diagnosed with hashimoto's. They tested my thyroid at the same time they gave me the celiac test and my thyroid was fine. A year later all my thyroid tests were severly bad. I think this is no coincidence. In fact I've read there are proteins in your thyroid that are very similar to gluten....
  2. Newbee
    For some people, being gluten free is not enough. Unfortunately I am one of those people and have needed to eliminate grains and a lot of other foods to feel better. I've been following the specific carbohydrate diet (SCD) which helped me start an elimination diet which helped me figure out what other foods are bothering me. I would recommend trying this...
  3. Newbee
    I went to this education session on inflammation by a chiropractor's office and they recommended for people with autoimmune diseases, cancer, and bunch of other problems to do the cellular healing diet. I had not heard of this before and learned it is very similar to the specific carbohydrate diet, paleo, and GAPS (grain free and sugar free). I've been...
  4. Newbee
    The doctors did find that I had hashimoto's disease this time (really high antibodies for this), so perhaps as suggested this is why I'm still showing a positive result with the TTG IGA. Blah, hope I don't get anymore autoimmune conditions.
  5. Newbee
    Yep, checked with the manufacturer on the thyroid medication before I bought it. I've found that I have a lot of food intolerances so now I mostly follow the SCD diet which is completely grain free. That has helped with symptoms quite a bit but the few foods I don't react to give me a very limited diet. I saw my GI doc today and he told me to keep doing...
  6. Newbee
    Interesting to hear how long it took you to heal. I've heard it can take a long time if you've had the disease a long time. I was pretty patient the first 6 months and got antsy after the GI said I should be better by then. I've read it can take as long as 1 year for blood tests to normalize. But I'm past that. I know it is close to normal. Just wish...
  7. Newbee
    I'm not really upset, just a little frustrated and curious if others have taken longer than a year to get a negative score. My GI had mentioned after my 2nd test that some people never test negative but he still wants to keep testing me. And I'm still having issues. But just found out I developed thyroid disease in the past year so that might explain issues...
  8. Newbee
    Just got back my latest TTG IGA results. I've been gluten free for almost 15 months now and was really hoping this test would be negative. It was close, but still positive. They say anything less than 20 is negative. My score was 20. My first TTG IGA was 125 followed by a score of 33 7 months later. Now 7 months later it only dropped 13 points. I know...
  9. Newbee
    What do they 6 - 8 weeks to be completely gluten free? If you've had the disease a long time it can potentially take a long time for all this stuff to really get out of your system even if you are not consuming it. I may be an extreme example as I think I've had this disease since I was a small child and I'm 38 now. I've been gluten free for almost 15...
  10. Newbee
    Great idea! Thanks.
  11. Newbee
    Good to know. My GP is clueless about treating anything beyond a cold. I'm trying to get into see someone who I've heard is good but can't get an appointment until March. What medicine are you on Pricklypear1971 that you like?
  12. Newbee
    Thanks Pricklypear1971. I'm not sure which all of my vague symptoms are related to thyroid. My main complaint was thinning hair and heavy periods. Other things I'm not sure if they are unresolved celiac or something else. After trying the initial dose the GP gave me, when should I go back (GP didn't mention going back).
  13. Newbee
    A little over a year of being gluten free and found out my thyroid has now gone bad (hashimoto's disease). I asked for more than just the TSH they wanted to give me. All tests turned out significantly messed up so probably didn't need all of them but I thought it was interesting that thyroid peroxidase antibody came out really high (493 where normal would...
  14. Newbee
    I'm almost 15 months gluten free. I'm still having a lot of problems. I think I've had this disease undiagnosed for 38 years so that probably explains the slow recovery. I also just went in for a check-up and just found out that my thyroid is all messed up (it was fine a year ago). Kind of makes me wonder if my body is attacking my thyroid since I took...
  15. Newbee
    My first TTG IGA was 125. So your score is also quite high. I have seen people on this forum posting they had scores of 300 or higher. So it definitely could be worse. I haven't had any food tests but I've found through elimination diets that I have problems with a bunch of other foods too.
  16. Newbee
    IrishHeart - Thanks for the link and extra information! It sounds amazing. I'm sooo trying this!!!
  17. Newbee
    Very interesting. Glad you found something to help!
  18. Newbee
    I don't know about the level, but celiac disease can cause anemia and low ferritin levels. It is difficult to tell if you have celiac disease until you get tested. I really didn't think I had the disease but some things aligned with stuff I'd heard about celiac. Once I got fully tested I found out I was at the end stages of the disease. I've heard others...
  19. Newbee
    I also was able to get my copy of the book from the library. Thanks for pointing out the different units, I obviously didn't catch that. Your score still seems pretty low based on the info I read in the book. I hope B12 supplementation helps you. I actually just went in yesterday to get my B12 tested. I asked for all the tests they recommended in...
  20. Newbee
    I see the forum didn't like my link, so I'll spell out the info. The book is called Could it be B12: An Epidemic of Misdiagnoses by Sally M. Pacholok and Jeffrey J. Stuart.
  21. Newbee
    I've been reading a book about B12 and checked the number you mentioned and according to this book they say that score actually falls in the "gray zone" which they say is anything between 200 - 450. In the book they suggest the "normal" threshold should be raise to at least 450 as deficiencies can begin to appear in the cerebral spinal fluid below 550. ...
  22. Newbee
    I'm celiac and over 14 months gluten-free and still having a lot of issues. I've found I can't eat a lot of food either and only eat a few things. Like GottaSki said, try the cooked veggies. I've found I can eat easily digestible cooked veggies ok but raw ones give me a lot of problems. Also, you may want to check out the specific carbohydrate diet (SCD...
  23. Newbee

    ARCHIVED Can You Just Ask To Be Tested?

    Newbee replied to smpalesh's topic in Doctors

    My doc also ordered ttg IGA for me. Luckily it uncovered the problem. Your doctor sounds awful. At the very least they should be willing to test you for things you ask for.
  24. Newbee

    ARCHIVED Can You Just Ask To Be Tested?

    Newbee replied to smpalesh's topic in Doctors

    Yep, just ask. That's how I got diagnosed. I'm quite sure no one would have suggested the test EVER if I hadn't asked for it. Both me and my brother were diagnosed quite easily, although I understand that is not the case for everyone. Good luck!
  25. Newbee
    It is frustrating. I'm dealing with the same thing. You might want to check out the SCD diet. I wish I had more words of wisdom Hang in there.
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