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Ollie's Mom

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Everything posted by Ollie's Mom

  1. Ollie's Mom
    Just wanted to say that if you suspect you may have a problem with gluten as well (or even if you don't!) You should request a full celiac blood panel for yourself asap. Celiac is hereditary. If you go gluten-free for nursing, then realize some of your "symptoms" go away, it would be awful if you couldn't consume gluten for a challenge at a later time. Just...
  2. Ollie's Mom
    I'm sorry you had a poor experience with the dietician. I've never seen one, but my mother has and she was not impressed. I guess like everything, there are good ones and bad ones. (Plus I'd love to know how one gets "tested" for IBS since it's a diagnosis of exclusion. They don't know what's causing your bloating and cramps, it gets labelled IBS... just...
  3. Ollie's Mom
    Deficient? In what possible way? A proper gluten free diet, based on whole foods, not processed gluten-free crap, is probably one of the healthiest diets one can follow. Wheat products in and of themselves are naturally nutrient deficient, which is why they tend to be enriched/fortified. There's no harm in adding a multi vitamin, per se, but it is...
  4. Ollie's Mom
    Hi there, and welcome. I am not the best person to answer all of your questions (there are a lot of really knowledgeable people here. But I'll give you my 2
  5. Ollie's Mom
    IBS isn't really a diagnosis of anything. It's like telling someone they have migraines or fibromyalgia. All it is is a label for a set of symptoms. There's never a cause identified with it, nor effective preventative treatments provided. I have no official diagnosis, but I can't tell you how liberating it is to not have to know where every publically...
  6. Ollie's Mom
    Hi there, I hear ya. I used to think salad didn't agree with me because it would come out within 2 hours of eating it. I also thought I had a problem with alcohol. But nope, it was gluten the whole time. If your "IBS" symptoms resolved while gluten-free, I don't think this is all in your head. Deep down you probably feel the same way. As for continuing...
  7. Ollie's Mom
    Congrats! So glad your little guy is feeling better. :-) Hopefully his GI will give him a diagnosis based on his response to the diet.
  8. Ollie's Mom
    Yes, please have your daughter tested asap! If she does in fact have celiac, it will be a good thing to get a diagnosis for her at such a young age. And even if her testing is negative, if you feel better on the gluten-free diet, then you should do a trial for her as well. (Also, even if your biopsy comes back negative, you should stick with the gluten-free...
  9. Ollie's Mom
    Hi there, I can't answer your question about low IGA without celiac, but I did want to say the following: If you feel that you have gone through all the testing possible (or that insurance is willing to cover) I would highly recommend you put your two children on a gluten free diet for a trial period of no less than 3 months. Changing your diet is...
  10. Ollie's Mom
    I will start this by saying I'm autistic, so don't have much advice about how to handle your family. What you have described sounds highly disrespectful on their parts, but to be honest stuff like that doesn't bother me. Guess you could say I'm lucky that way. I did want to tell you that a few months in you will probably find that your tastebuds have changed...
  11. Ollie's Mom
    ...but, find a knowledgeable doc to do the testing. And be aware that false negatives are common in very young children. If both you and your daughter are still eating gluten, you should both get tested. If your SO is sceptical, I'd likely not test my 9 mo old unless he understood the likelihood of a false negative.
  12. Ollie's Mom
    Be my guest!
  13. Ollie's Mom
    Chiana, I know he's aware of what is happening to him. I'm not sure if he's given up so much as maybe he just feels hopeless? I'm hoping that by reading others' stories it will show him there is some hope, regardless of what doctors say. I get very frustrated with the situation because gluten was destroying my life and I had to figure it out for...
  14. Ollie's Mom
    Raven and Adelaide, thank you for your replies. I will be passing them along to my friend. Before I do, could you let me know how you were ultimately diagnosed? Blood test, biopsy, elimination diet? Thanks again.
  15. Ollie's Mom
    Hi there, I have a request for those of you who have suffered from gluten ataxia. I have a friend who has (according to doctors) "idiopathic ataxia", but I suspect it may be gluten related. But of course they don't think so, because his blood tests were all normal (I don't know what celiac specific tests were done, only that he was "tested" and found...
  16. Ollie's Mom
    My DS didn't have an endoscopy (we have him gluten-free because I react to it and he seemed to as well) but he did have anaesthetic at 16 mos to have tubes put in his ears... he was groggy and cranky afterwards but eating and playing like normal within about 4 hrs. The hospital kept him in recovery for about 45 minutes then we had to stay in peds till...
  17. Ollie's Mom
    Sounds like your mommy intuition is telling you gluten may be affecting your kiddo. I agree with cara - get the tests done on him asap. Good luck!
  18. Ollie's Mom
    I'd like to be able to jump in with some advice, but I find your posts very hard to follow because you use no punctuation. I think you may get more input from others if you punctuate your posts properly.
  19. Ollie's Mom
    Well after having him home with us over the long weekend, eating strictly gluten-free foods prepared by me, we were down to two normal looking and smelling bm's today. This has happened over other long weekends. But two day weekends don't seem to be enough time for him to get back to normal. I guess he must b getting cc'd somehow. Friday he had 5 bm's...
  20. Ollie's Mom
    I must have missed this post. This is from almost a month ago. In any event, I must completely disagree with your statement that a gluten-free diet doesn't make a difference for those with an ASD. I would not have an issue if you said it didn't make a difference in ALL cases, bit I know from experience it makes a difference for some. I am autistic and...
  21. Ollie's Mom
    If she had a positive blood test I'd disagree about her being "all good". Sounds like she has celiac to me. Btw if you are in Ontario, you can most definitely get copies of the test results. You just need to request them.
  22. Ollie's Mom
    Thanks for the input. He doesn't eat oats but deffo he has dairy and soy. He never had issues with them before (when in the infant room at daycare) but anything's possible. Things do crop up over time. I'm just not sure if the catering company can accommodate such a restrictive diet. And daycare policy says I can't bring food in for him. Ugh. But I'll...
  23. Ollie's Mom
    OK so this is about my son's poop. Sorry if tmi but we all know it's a popular subject here... I self diagnosed and have been gluten-free for about 3 years. Shortly after starting solids, we noticed my LO was having really awful, pale, stinky and grainy BM's. He was also pooping really frequently and got horrible bleeding rashes and sores on his butt...
  24. Ollie's Mom
    I have AS and was diagnosed as an adult. For me the label gave me some peace because I now understood why and how I was so different from all the "neurotypicals" around me. Before, I thought that everyone else was just way better at handling the stress off social situations, loud noises, smells, lights, textures, etc. I didn't access any special services...
  25. Ollie's Mom
    I'm sorry about your struggles. I haven't had to deal with anything like this so I won't have much experience to share. Although I was wondering if maybe sticking to foods with low glycemic indices to keep your blood sugar steady might help? I hope you get more advice and find something that works for you.
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